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Oct 20, 2016 · #AsktheMayoMom about Pediatric Congenital Heart Defects in Heart & Blood Health

My 18 month old son has Criss Cross heart in conjunction with DORV, ASD, VSD and pulmonary stenosis. He has had 3 OHS so far including PDA ligation, BT shunt and atrial septosomy and finally the Glen in Jan 2016 with Fontan planned for sometime in next 18 months. All treatment to date has taken place at the Royal Brompton Hospital in London. As criss cross heart is so rare we have not been able to obtain much information as regards long term prognosis or possible further treatments post fontan. I would be interested to hear your experiences of treating this condition especially as regards future treatment/condition management. Many Thanks in advance.