mosaic (@mosaic)

Totally understand, I had to convince a couple of cardiologists that I saw Dr Barry Maron at Tufts and not his son, Dr Marty Maron, who heads up the HCM clinic at Tufts. They kept insisting he was in MN! I finally told them I wasn't crazy and that I actually met both father and son!!

I felt like fainting before my myectomy. The best way I handled it was to walk slowly and always try and be near someone or something so I could hang on until the feeling passed,

we cannot give medical advice of course but I can share my experience. when I was obstructed and diagnosed the first thing my doc did was take me off Losartan because it includes a diuretic and diuretics can be dangerous for people with the obstructed form of the disease. I do not know if all forms of Losartan include a diuretic or if you are obstructed.

Dr Barry Maron is not in Minneapolis any longer. He moved to Boston and is affilated with the HCM Center at Tufts. There are several excellent HCM specialists at Mayo and elsewhere. HCM is not a common disease in that most cardiologists do not see a lot of patients with this disease. Therefore, if you can get to a specialist you should. You can contact the HCM Association in NJ for a list of certified HCM centers of excellence. 4hcm.org . good luck

I had echoes at age 21 and 47. My HCM did not show up until an echo at age 63. Hope this is helpful

Is there any benefit to a patient diagnosed with HCM to have genetic testing, or is the benefit exclusively for the patient’s children, grandchildren?