About

Health Interests
Allergies, Autoimmune diseases, Bone, joint, and muscle disorders, Chronic pain, Digestive disorders, Ear, nose and throat disorders, Healthy Aging, Healthy Living, Immune disorders, Mental health disorders, Neurology (brain and nervous system), Other

Posts (923)

Fri, May 22 2:47pm · How You Experience Autism in Autism (ASD)

@gingerw , hello from the hospital where my honey has finally fallen asleep. He is making progress. Two tubes have been removed. Two more will be removed tomorrow. He looks great and feels good .

How I experience Autism in the middle of the pandemic.

Let me give you an example. I hate wearing a mask. It is a terrible source of anxiety for me. I can't breathe Anything on my face bothers me. Just the touch of a single hair brushing my face sets off a sensory response. Masks are a constant reminder that everything is not ok out.there.

So, having established the fact that my nerves are on edge, you can understand to a certain degree why I ended up in the wrong restroom. And that's not all.

When I got in line to turn in my paperwork (Have you had any of these symptoms in the past week?) I HAD CHECKED EVERY single symptom.

Then I was redirected to complete a new sheet, forcing myself to get in the back of the line to get my temperature checked.

Then I got in the line…six feet of separation…to show my I'D and have the attendant call the nurse to alert her I was coming up to visit Stuart.

But the individual behind me, less than six feet away, had her mask below her chin. At this predicament, I just mentally gave up and moved as far away from her as I could.

Oy vey.

I laugh, because this is my life.
I laugh, because I know that things will get better.
I laugh, because there is indeed a light at the end of the tunnel.

This virus has impacted the entire world. It has definitely impacted our beloved Autism Community. But we are still here for one another in all the ways that count.

And we will come back stronger.

God bless you all.

Love and light,
Mamacita Jane

Thu, May 21 11:16pm · How You Experience Autism in Autism (ASD)

@teresa, I do feel so bad for my poor sweet husband. He just wants to get back home so badly. We hope this is the last surgery for a very long time. I just want him to be able to enjoy his backyard, his,Grandkids, his war games, and his science shows on tv. I want him to be able to safely attend church with the people who love him. Simple things are the best.

Love and light,
Mamacita Jane

Thu, May 21 11:09pm · How You Experience Autism in Autism (ASD)

@merry, it is good to see you! Thank you for asking about my daughter. She is slowly recovering at a rehab facility in Tennessee. To find her way back is not easy. It will take a lot of work on her part. She is in a good place, and we hope to see her when Covid19 settles down.

We are able to talk wirh her frequently. They are working on trying to get her off the ventilator permanently. Her lungs are damaged and we don't know if that will be possible. But we have hope.

We just take it one day at a time.
Love and light,
Mamacita Jane

Thu, May 21 11:02pm · How You Experience Autism in Autism (ASD)

@colleenyoung , I go to the Rock, my strong tower. My hiding place. My Shelter in the time of storm. I read my daily devotional, from a slew of favorites collected over the years. I play praise and worship music. I listen to the birds. I daydream. I pray. I read Psalm 91. I play the piano. I clean and organize. I read. I constantly review my bag of tricks and find other ways to self regulate. I spend time with my family. I try to connect with friends. I come here.

Love and light,
Mamacita Jane

Wed, May 20 2:08pm · How You Experience Autism in Autism (ASD)

@gingerw , hello from a safe distance! I am sitting here at Taco Mama's, where I just had a delicious burrito bowl. The only real carbs were in a few little black beans.

My sweetie is undergoing surgery, again, to place a drain into the pericardial sack. They are updating me every hour or so. This has been a sensory issued person's nightmare. Construction is going on, and it is so loud. The parking garage is creepy.

But my faith is greater than the creepy parking garage. My love for my husband is greater than the pain of walking forever with my cane in the heat so I don't lose my parking spot. My hope is,steadfast, because I have friends like you who have said I can be strong when I need to be.

Autism does not go quietly away when under pressure. But it has learned how to make the best of a hard situation. And to practice mindfulness and self care.

I am alone, because only one person can be with him. All thanks to Covid19.

Just checking in.
Thanks for befriending this Autie.
Love and light,
Mamacita Jane

Mon, May 18 9:33am · Gratitude Discussion Group in Just Want to Talk

@gingerw , I am grateful for a hardworking next door neighbor, her son, and her grandson.

Together they planted the most beautiful flower bed in my backyard. They also planted the vegetable plants I purchased from Lowe's.

My sweet husband was able to enjoy their efforts very much. He had just been home from a very long hospital stay. The growing life right there before his eyes was very motivating.

We anticipate a bit of rain every day this week. So, perhaps I will not have to water quite so much, if at all.

It's also nice to sit outside and listen to the birds. I never appreciated them as I do now.

I hope everyone has a lovely day.
Oh….Almost forgot. I am grateful for all of you.
Love and light,
Mamacita Jane

Thu, May 7 4:54pm · Tips: Traveling to Mayo to get medical care safely during COVID-19 in COVID-19

We just got my husband home from the hospital. He had been there since March 9th. MRSA and eventually two heart surgeries, which were likely caused by the MRSA, has left him sixty five pounds lighter, and a whole lot grateful.

I wear a mask whenever I forage for food or medicine. We will have his first heart doctor appointment in one more week. We will have hand sanitizer with us and will wear our masks throughout the process. We have some gloves, but we don't have a steady supply. They are hard to come by. So, I will save them for the home health procedures they have taught me to do.

For deliveries, everyone is instructed to place items on our front porch. I wear a mask even to go to the mailbox. I cannot control how close a neighbor will come up to me. Church is online. Prayer chains connect us daily. The non profit I work for continues to serve the community in spite of restrictions. Safely, of course.

We may have to do all of this for a very long time. Even when things open up, some ways of doing things may be forever changed.

I had to give my husband his antibiotic infusion today. I was scared to death. But because of Covid19, home health has to restrict what they can do.

Love and hugs to all our friends at Mayo Clinic Connect! We can do this. We are resilient.
And we are better together.
Love and light,
Mamacita Jane

Sun, May 3 7:52pm · Gratitude Discussion Group in Just Want to Talk

@teresa, Volunteer Mentor, I am grateful to still have this community to come to. After all this time. We are still waiting for loved ones to return home from the hospital. This week it will be two months since my spouse entered the hospital. He has had five surgeries, three of which were to repair his heart valves.

The stress has been pretty awful. It's so difficult to do everything on your own, when you've had a partner for 45 years. I have had times that were so overwhelming, I didn't know if I would make it. But I did.

Thank you all for your kind thoughts, prayers, and good words. As things settle down more, I hope to come back and "visit " more frequently. Stay safe, everyone.

Love and light,
Mamacita Jane