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Health Interests
Allergies, Autoimmune diseases, Bone, joint, and muscle disorders, Chronic pain, Digestive disorders, Ear, nose and throat disorders, Healthy Aging, Healthy Living, Immune disorders, Mental health disorders, Neurology (brain and nervous system), Other

Posts (909)

Thu, Mar 19 8:31am · Gratitude Discussion Group in Just Want to Talk

@gingerw , @parus, update on husband. He has been moved to overflow ICU due to his sat rate dropping to 40. I am so thankful to have you all. For obvious reasons I wont be on here except when I can catch a break.

Please keep.him in your prayers.
Love and light,
Mamacita Jane

Fri, Mar 13 3:45pm · When plans change because of health issues. How do you cope? in Just Want to Talk

@gingerw, just keep the Mayo family faith alive. We are still better together. Even in the middle of the mess.
Love and light
Mamacita Jane

Fri, Mar 13 3:40pm · When plans change because of health issues. How do you cope? in Just Want to Talk

@merpreb , she is awaiting surgery next week. She is good. Still on a ventilator. Alert.
Love and light,
Mamacita Jane

Fri, Mar 13 3:16pm · When plans change because of health issues. How do you cope? in Just Want to Talk

@gingerw and everyone, I am here at the hospital with my husband. He is supposed to have surgery to release some of the infection. It is after 3pm and no surgery yet.

Trying to take care of me. So I can take care of him.

Love and light,
Mamacita Jane

Thu, Mar 12 3:21pm · When plans change because of health issues. How do you cope? in Just Want to Talk

@gingerw, I have had to ask for help. My spouse is in isolation with MRSA here at hospital. My daughtwr is in ICU for the third week.

I have had to change my entire life, my whole routine, to be there for my loved ones. My life in community service has come
to a screeching halt.

I will get through this. Faith fights even when it looks hopeless. We have hope!

What greater service is there than being part of your tribe, and loving on them when they need it so desperately?

I miss you all, and hate it that there is so little time for Connect.

Hopefully this is just a long bump in the road.

Take care of each other.
Love you big,
Mamacita Jane

Thu, Mar 5 12:48pm · The ICU experience from a loved one's perspective in Intensive Care (ICU)

@teresa, Volunteer Mentor, my daughter coded last night. She had CPR for 40 minutes. This morning she grasped my youngest daughters hand ever so slightly.

I almost had a meltdown right there in the ICU. But I caught myself and refused to harm myself. It would have just confused the situation to see a grandmother type beating her head with her fists.

That has not been a part of my Autism experience for many years.
Bur this pain goes so very deep. My child deserves better. And it hurt so badly to see her so helpless and to know there could be cognitive impairment.

So we are back to square one. Worse than square one.

We can do this. We have no choice.
Mamacita Jane

Tue, Mar 3 2:55pm · The ICU experience from a loved one's perspective in Intensive Care (ICU)

@teresa, Volunteer Mentor, and @colleenyoung, we are back in rhe ICU waiting room. My daughter from GA is here, and my husband, and our teen.

They won't let you spend the night here.
I played hooky yesterday and rested. Recharged my batteries.

They are still trying to get her off the ventilater. But her oxygen level goes so low. Her lungs are so weak. Her muscles are weak.

But she is in good hands.

Thank you all for your kind support.
Love and light,
Mamacita Jane

Mon, Mar 2 12:20pm · How You Experience Autism in Autism (ASD)

@merpreb , my soninlove does this very thing for my young Grandson.

What we try to do is have these practices in place before a melt down.

With scheduling and inclusion of these simple to use practices, eventually the number of meltdowns we experience is drastically reduced. With these protocols in place at school and at home, working together, the child eventually learns how to self regulate. She has confidence that she can do what the other kids do. Maybe we have to work at it ten times as much as the NT children. But that's only because your typical school setting is outfitted with only the Neurotypical student in mind. We think outside the box. Sooner or later, that kind of thinking is rewarded.

More to come.

Love and light,
Mamacita Jane