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Oct 19, 2016 · #AsktheMayoMom about Pediatric Congenital Heart Defects in Heart & Blood Health

Hi, will it be possible to get a recording of the event? Thank you.

Oct 19, 2016 · #AsktheMayoMom about Pediatric Congenital Heart Defects in Heart & Blood Health

Hello, our 14 month old daughter has a complex combination of CHDs. She has been diagnosed with Ebstein’s anomaly with trivial TR, Bicuspid Aortic Valve with small Aortic Annulus and severe Subaortic narrowing with a sub-aortic membrane, abnormal Mitral Valve with mild MR, small ASD and VSD. When she was 4 days old she had surgery to repair severe Coarctation of the Aorta. The next surgery she will require is for her LVOT.

Her surgeon has talked about a modified Konno however, they have never experienced her combination of CHDs before. In your response to their consultation letter on 4th September 2015 you mentioned the possibility of a transaortic resection.

The results from her latest Echo a couple of weeks ago show her LVOT Peak Velocity at 3.34 m/s and Aortic Valve Diameter 0.80 cm. Previously in July it was 2.66 m/s and 0.77cm. For the July echo she was sleeping however for the latest echo she was awake.

Our questions are:
• Have you experienced the combination of Ebstein’s anomaly and severe subaortic narrowing before?
• If so, what type of surgery did you preform and what were the outcomes?
• What indicators do you use to time your intervention?

Thank you.