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Thu, Jan 3 11:05pm · praying for help in Chronic Pain

Vicklet, Just like Cognac I also had success with facet shots in S1, L2,L3, L4 and L5. At least for awhile. It would offer me pain relief for 3 to 6 months at the beginning and then eventually they did not work anymore. About 5 years later I had to have major back surgery. I guess the surgery helped, somewhat. But the first fusion didn't take and 1 year after first surgery I had it redone. I then developed complex regional pain syndrome in my right foot and I now have excruciating pain and weakness in my right foot that is getting worse. Docs do not have any good answers for treatment of this.
So just be very aware of everything that can happen. Although many times, we don't really have any other choice. I wish you good luck with the shots!

Sep 19, 2017 · Living with Neuropathy - Welcome to the group in Neuropathy

My name is Kathy Vienna( I believe my on line tag is #kvienna)
I haven’t been on in a while. Just checking to see if there is any new information on CRPS. I explained before that I developed it in my rt. foot in 2007 after a major back surgery.(My 5th back surgery since I had harrington rod placed in 1969. The pain has now spread to my knee. Terrible nerve pain, weakness, numbness, balance issues. (I am now using a walker) I started developing numbness in my left foot this past January after I had surgery to place a rod in my left femur after developing an atypical femoral fracture from taking Prolia for osteoporosis . My pain dr. is sending me to a “Naturalist Dr.” who can help me decide what kind of medical marijuana I should try. I am taking so much medicine now that only “touches” the pain and for only a short time. I am hoping marijuana will due a better job.

Aug 14, 2017 · Harrington Rod and lower back pain in Chronic Pain

Hi Sutherlin. I just read your original post. I, too had a harrington rod placed in my spine in 1969.(lowT – L3). I led a very active lifestyle afterwards…golf, tennis, snow and waterskiing. And the birth of two children. In Dec.1991 I started having sharp pain in my lower back that extended down my leg. Because this was workers comp. It took forever to get to see doctors and specialists. I had a few injections that didn’t work. The pain increased to weakness, as well. After 6 months, I finally saw an Orthopedist who specialized in rods. He thought that might be the problem. He did exploratory surgery and found out that the bottom bracket of the rod had come loose. Unfortunately, it had been rubbing on my nerve for six months and left permanent weakness in my right leg.
Unfortunately, this doctor also did a laminectomy at the L-4 level which eventually led to spondilolithesis. In 2006 and 2007 (first one failed), I had major anterior and posterior fusions L-4, L-5, S-1. After this surgery, I developed CRPS. I have constant pain and weakness in my right leg and I’ve been walking with a cane since. I tripped on a rug in 2011 and caused a double fracture of my pelvis. Then in 2014, I fell and broke my right humerus. Finally, last year, I developed an atypical femoral fracture in my left leg (my good leg) caused by Prolia which I had been taking for osteoporosis. I had a rod placed in the femur and secured with three screws this past January. That seems to have healed. But my CRPS pain is worse. And numbness appears to be starting in my left leg. I take a mixture of meds including cymbalta, lyrica and oxycontin. I cut my oxycontin from 90mg. daily to 15 daily. (It took about a year to do this) I just recently started taking MM drops under my tongue and cream for my foot. It seems to take the edge off. It would be great if this combination really helps.
Probably any more than you or anyone else wants to read. I find this to be a great sight and I am open to any other suggestions to help with the pain and weakness.
Kathy

Aug 3, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I’m already a member. Just checking on new ideas. Scoliosis surgery as a teenager. Multiple spine surgeries, recently. Developed CRPS in right leg below knee, neuropathy in foot after recent spine surgeries. Developed an atypical femoral fracture in my left leg due to Prolia that I was taking for osteoporosis. Now I am feeling numbness in my left foot. I’m afraid it is now the beginning of CRPS in that foot. I’m taking Lyrica, Cymbalta, Alive, and a 5mg.and 10mg.dose of Oxycontin daily. Still doesn’t take care of the pain. Just started taking MM drops under my tongue. Not sure how that is going yet. Obviously, I’m a little overwhelmed. Looking for new suggestions.
Kathy

Aug 2, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Chris-
I just started using MM. Oil in a little bottle with an eyedropper and a cream to smooth on leg and foot where I have CRPS. Is this oil what you describe as “vape” oil. Or are you smoking it? Are you familiar with this eyedropper oil? That seems to work faster for me. But not as good as my meds. I’d love to be able to get off of my meds.

Apr 14, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi a lyric. Yes, phantom limb pain is also considered to be CRPS. I was in a pain therapy program with someone who had phantom limb pain.

Mar 26, 2017 · CRPS in kids in About Kids & Teens

I just read up on the Calmar’Scrambler treatment. Does the Mayo Clinic use this therapy?