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Posts (176)

1 day ago · Top MAC doctor/treatment Rochester: Questions to ask at first appt? in MAC & Bronchiectasis

@n4seth….hi there…I would ask about airway clearance..do I start doing it now, and if so what do I use ie aerobika..how many times a day is recommended, and duration….also, is it too soon to be nebulizing saline 7 percent x2 a day?? Exercise is extremely important, to get the mucus out of our lungs, so as not to create an infection…there is so much more to ask, bug it sounds like you have a great start….Mayo Clinic Connect is what allows me to live a better life with all the knowledge on this forum, especially from Terry…I'm from Toronto, and we were lacking info in so many areas…Knowledge is Power..you are in the right place🇨🇦

3 days ago · Let's Talk about Gardens in COVID-19

Hi Sue….I use to be an avid gardener, finding it very relaxing, until I got MAC, and eventually pseudomonas…Not I make sure that I have on gloves and an N95 mask for protection…I think we have to be careful with gardening and especially the soil in pots

4 days ago · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

Alleycatkate….thank you for that…music always touches my soul

5 days ago · Post Interferon Syndrome in Infectious Diseases

I would get a different doctor until you can get the help you need for a proper diagnosis..the system doesn't partner us well…so you have to fight to get the help you need…hang in there..we all deserve to be treated with dignity, not dismissed…

Mon, Mar 9 7:31pm · Clearing lung technique I found by accident in MAC & Bronchiectasis

Hi Terry…I have been able to keep my psedomonas at a distance along with Colistin…the 7 percent saline and consistency with airway clearing have kept me much healthier, thanks to your advice🙏💕

Nov 24, 2019 · My bronchiectasis specialist is leaving! in MAC & Bronchiectasis

Hi Aunt Nanny…when I tried Tobi for my psedo, it wasn’t as effective as the Colistin…I take 150mg every other month….knocks it back to very lite….after 4 weeks or so back to medium…go on Colistin again for 4 weeks, and so goes my cycle…have been doing this for a few months…feel great💕

Oct 4, 2019 · Water at freshwater lake in MAC & Bronchiectasis

Hi Kathy….my understanding is that there is very little MAC in salt water, if any??? The ocean is the only place I swim when on vacation…I don’t dunk

Oct 1, 2019 · Best Shower heads for MAC in MAC & Bronchiectasis

Steve sunshine…..I guess what it boils down to is who we listen to….your product sounds great, but there are also other options…getting advice from a world renown microbiologist who has researched this, Dr Falkingham, or your new product…I find some of your info incorrect ie MAC is 0.2 microns not 0.1. We have the info..thank you for that