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Posts (165)

Sun, Sep 1 5:41pm · In shock after MAC diagnosis in MAC & Bronchiectasis


Sun, Sep 1 9:28am · In shock after MAC diagnosis in MAC & Bronchiectasis

hi aunt nanny…I too have psedo…did sensitivites as well..I am using Colistin every other month to keep the psedo at bay…I’m not doing a drug in between, because these drugs cipro and levaquin have hard sideceffects…I’m going all also for a second opinion with our head of infectious disease..drs feel that for now this might be a better plan…I have Toby and Cayston as a back up…my drs say your chances r better not to develop s tolerance if u r doing drug every other month with nothing in between..better on your kidneys and liver..will see what second opinion dr says


Oh no….u might have to get out of there…might not hit Florida now, but aiming for Carolin’s…❤️🙏🏻

Sat, Aug 31 10:29pm · In shock after MAC diagnosis in MAC & Bronchiectasis

Great news Terry👍🏼

Mon, Aug 26 11:32am · In shock after MAC diagnosis in MAC & Bronchiectasis

@sueinmn….I also have psedomonas, mine being much more difficult to treat…tobi doesn’t wrk for me, but Colistin does…depending on your sensitivites as well makes a huge difference and how colonized it is…it is s very dangerous bacteria, and can be difficult to treat, as I’m experiencing…tks for the onfo

Mon, Aug 26 9:41am · Produce especially lettuces in MAC & Bronchiectasis

@Silvermoon8…I wash all produce in boiled water, especially if it grows in the grown where MAC and pseudoman are…I’m not sure if it was Dr Falkingham that mentioned this but I will s Imail him to find out…great question…I have psedomonas which weakens my lungs even more, along with the MAC…better safe🙏🏻

Tue, Jul 30 4:45pm · Water at freshwater lake in MAC & Bronchiectasis

hi Sueinmn…I have never read this info before…would u mind showing the web site..I use my mask 1/2 hr at a time while gardening, bathing cutting grass etc…use until it starts to look a little dirty…tks