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Posts (135)

2 hours ago · tips for travel in MAC & Bronchiectasis

Hi Terry….I am presuming if it works for MAC in shower as well??? I will Imail him and ask…

4 hours ago · tips for travel in MAC & Bronchiectasis

Hi Terry….iDr Falkingham, microbiologist who speaks regularly at National Jewish…he is the Mac guru, world renown recommend N95 mask, as it keeps out MAC…Mayo Clinic as well…I throw out mask if it gets too wet from shower…can't always take a agh when u travel

1 day ago · tips for travel in MAC & Bronchiectasis

Florida. Lol

1 day ago · tips for travel in MAC & Bronchiectasis

Hi Taya…Cuba was awesome..I always bring boiled bottled water with me to drink and vinegar to clean my aerobika and nebulizer..I don’t drink their water, and no swimming pools, just the ocean, and no dunking…beer from tap, pop from bottles…N95 mask when showering in Luke warm water, and a quick one….I stick to this routine and it wrks….am in Glirida now, and am boiling my drinking water for 10 minutes..same routine👍🏼👍🏼

6 days ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

hi Laura….I'm from Toronto…I had some infection in one eye from Ethambutol, and saw my Opthamologist immediately..turned out it wasn't the drugs…can u not bookam emerge appt with your pulmonary dr or at least talk to them on the phone…mine told me to stop drugs immediately till they knew what was going on. C

Tue, Mar 12 5:35pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi America…if it were me I would stay where u r and do the necessary things to stay healthy…baths, boil your water etc….the emotional component to this disease, I think is even more important…be happy💞

Mon, Mar 11 8:19am · Only read if open to alternative therapy for MAC in MAC & Bronchiectasis

Hi Kristie…..I am so glad that everything worked out…such a scarey thing to go through…the power of prayer💕 I am interested also, in how much she nebulized of CD and the quantity of vinegar she took daily…….

Thu, Mar 7 9:08pm · The big 3 antibiotics for MAC in MAC & Bronchiectasis

@jo Ann…its crazy how weird these side effects can be…or I picked up some weird stomach bug??? Back on meds..no more stomach pain…go figure