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Sun, Sep 1 5:41pm · In shock after MAC diagnosis in MAC & Bronchiectasis

Absolutely….

Sun, Sep 1 9:28am · In shock after MAC diagnosis in MAC & Bronchiectasis

hi aunt nanny…I too have psedo…did sensitivites as well..I am using Colistin every other month to keep the psedo at bay…I’m not doing a drug in between, because these drugs cipro and levaquin have hard sideceffects…I’m going all also for a second opinion with our head of infectious disease..drs feel that for now this might be a better plan…I have Toby and Cayston as a back up…my drs say your chances r better not to develop s tolerance if u r doing drug every other month with nothing in between..better on your kidneys and liver..will see what second opinion dr says

Sun, Sep 1 9:18am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Oh no….u might have to get out of there…might not hit Florida now, but aiming for Carolin’s…❤️🙏🏻

Sat, Aug 31 10:29pm · In shock after MAC diagnosis in MAC & Bronchiectasis

Great news Terry👍🏼

Mon, Aug 26 11:32am · In shock after MAC diagnosis in MAC & Bronchiectasis

@sueinmn….I also have psedomonas, mine being much more difficult to treat…tobi doesn’t wrk for me, but Colistin does…depending on your sensitivites as well makes a huge difference and how colonized it is…it is s very dangerous bacteria, and can be difficult to treat, as I’m experiencing…tks for the onfo

Mon, Aug 26 9:41am · Produce especially lettuces in MAC & Bronchiectasis

@Silvermoon8…I wash all produce in boiled water, especially if it grows in the grown where MAC and pseudoman are…I’m not sure if it was Dr Falkingham that mentioned this but I will s Imail him to find out…great question…I have psedomonas which weakens my lungs even more, along with the MAC…better safe🙏🏻

Tue, Jul 30 4:45pm · Water at freshwater lake in MAC & Bronchiectasis

hi Sueinmn…I have never read this info before…would u mind showing the web site..I use my mask 1/2 hr at a time while gardening, bathing cutting grass etc…use until it starts to look a little dirty…tks