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Thu, Jul 9 1:04pm · Should 4+ Pseudomonas be treated? in MAC & Bronchiectasis

Hi Auntnanny…maybe ask your dr if you can try Colistin instead every other month..seems to be tolerated better then Tobi…I do saline 7 percent before I use Colistin..ventolin before the saline..this helped me with so much less congestion

Wed, Jul 8 5:24pm · Should 4+ Pseudomonas be treated? in MAC & Bronchiectasis

Hi fdixon63…I too have pseudomonas…they tried to irradiate it, but were unsuccessful…for the last year or so I have been on Colistin every other month that pushes it back to not showing up in my sputum…by the end of the month it is back to moderate…I tried Toby but found it really harsh…..I’m in good shape otherwise, exercise etc…I live in Toronto so we have only 3 nebulized drugs..the other is Cayston, but I will likely have to pay…pseudo is a nasty bacteria…airway clearance is especially important do be diligent x 2a day to get rid of mucous..🇨🇦

Sun, May 24 11:27am · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

Hi Aunt Nanny… I too have pseudomonas and am using Colistin every other month.. Toby made me wheezy and cough a lot… this drug is amazing and has changed my life along with proper airway clearance and 7 percent saline twice a day

Sun, May 24 11:21am · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

National Jewish also recommends 7% saline twice a day for our lung disease.. I have read the same info on many sites saying the same thing..I sometimes can’t tolerate the second dose, so I will use 3% instead with my Colistin..thanks for th3 info Terry

Thu, Apr 30 9:31am · VP's visit in COVID-19

Hi Soliloquized….just to clarify…we r talking about the N95 masks…that have a 0.2 micron filters, for us as well to keep out the MAC….i have always been told by the experts that this mask is what we use both by Mayo, National Jewish, Dr Falkingham, and the list goes on…thank you for the info, but it seems conflicting, and might create heightened anxiety for us that MAC etc…have I got it right?🇨🇦

Mon, Apr 27 2:06pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Nick….I have been using Extra Strength Clear Lungs everyday, only 1 pill as a preventative..if I notice an exacerbation which I don't anymore, then I would increase the dosage…maybe this as well as Nac, Oil of Oregano, and Vit D 6,000 plus K, has helped, even with colonized Pseudomonas, MAC, Bronchiectasis….

Sat, Apr 25 2:24pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Nick…can u resend the message again when u have a minute…tks🇨🇦

Tue, Apr 21 4:20pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Nick…I'm from Toronto…we aren't in great shape as well probably do to the size of the city and our premier's slow response and Prime Minister to the situation…but anyway…can u tell me where u get your extra strength Clear Lungs..couldn't get it in Florida..