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Posts (156)

4 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi pfists…sorry to interrupt…I too am dealing with psedomonas. I presently nebulize Co,istin every other month at 150 ml…75 ml x2 a day…keeps it at bay.. what r u taking to keep psedomonas at bay?? B

4 days ago · Disinfecting nebulizer in MAC & Bronchiectasis

just got off the big 3..woot woot…I have been sterilizing with vinegar…..Dr Falkingham suggests either alcohol or bleach to kill bacteria…he is not sure about vinegar…it appears that things are changing again as indicated by what National Jewish is also saying…I want to do it right, but there seems to be confkicypting info again. Lol…my u derstanding is that Mayo suggests vinegar..help…what is everyone doing?

Sat, Jun 15 5:44pm · What now? What else can be done? in MAC & Bronchiectasis

hi Terry…I think u r right…will ask about that July 11 when I see my Dr✌️✌️

Fri, Jun 14 9:31am · M. Chimaera in MAC & Bronchiectasis

Hi Dulwitch…I think before they start u on the big 3 they have to do 3 sputum samples to confirm a proper diagnosis..my sputum recently showed another bacteria same family as yours, starting with F…they r doing more sputum to grow culture again…they will only put u in the big 3 with s confirmed diagnosis..sometimes bacteria shows up randomly and disappears…I’ve been on big 3 for 14 months..quite tolerable👍🏼

Fri, Jun 14 9:26am · What now? What else can be done? in MAC & Bronchiectasis

hi Pam…I too have psedomonas, MAC, MAI.. my dr uses Colistin every other month at 150 ml..going to try 300ml to see if it kicks it back longer…probably do Cipro or Levaquin in between

Mon, Jun 10 4:49pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Kathyhg…..sorry to interrupt but I'm from a Toronto…who r u going to see??? I see Dr Brode at Western who works under Dr Maras our top MAC guy, and I see Dr Tullis at St Mike's for the psedomonas…where do u live???

Tue, Jun 4 9:17am · Diagnosed with MAC but not being treated in MAC & Bronchiectasis

@auntnanny…r u on 300ml of Toby….it took a few weeks when I was on it, to notice improvement

Sun, May 19 3:15pm · Negative sputum results without treatment in MAC & Bronchiectasis

@sayaboleh….NTM is not a reportable disease In Canada…wrong info given