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Feb 16, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

blockquote, div.yahoo_quoted { margin-left: 0 !important; border-left:1px #715FFA solid !important; padding-left:1ex !important; background-color:white !important; } Thanks for your response on taking the meds as I am just going to start them on MondayOf course I am scared to deathMy doctor did not recommend a schedule of when to take them so I am very interested in the schedule that works for youI have to start somewhere and your experience will help to guide meHowever I am wondering if you take all of the meds with food. My understanding is that Rafampin needs to be takenOn an empty stomach either one hour before food or two hours after eatingWould really appreciate knowing more about your regimenThanks so muchLynnSent from Yahoo Mail for iPhone

Dec 4, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I live in Greenville SC while it’s a drive, I can recommend Dr William Curran from the Lung Center of Patewood The general number is 864 464 4200It is not easy to find a specialist who knows about and has treated MACI have also been seen by Dr Patrick Flume at MUSC. MUSC had a MAC clinic. He is great however I have chosen to stay with Dr Curran in Greenville as travel to CharlestonIs too difficult. We also have a MAC support in Greenville SC. I believe we will be having a meeting in Januarywe are a group of 30 to 40 members from all over the area. It’s very helpful to meet with others who are sharing your journey. I hope this is helpful and wish both you and your wife succes as you move forward.
Best Lynn

Oct 5, 2016 · Big 3 and Ongoing Bloodwork for MAC in MAC & Bronchiectasis

thank you so much for your sage advice. Happy to hear about the probiotics. Best, Lynn

Oct 4, 2016 · Big 3 and Ongoing Bloodwork for MAC in MAC & Bronchiectasis

Hi Katherine,

Thanks for your quick reply. Can you suggest any tips to help in getting started with the meds. Do probiotics help?

WE moved from Eden Prairie MN jut prior to my diagnosis. How great to have the Mayo..

I live in Greenville, SC and am able to go the MAC Center of Excellence at the Medical University of South Carolina.

I also have a pulmonologist in Greenville and am not sure if I should continue using two docs. Any experience?

Best

Lynn

Oct 4, 2016 · Big 3 and Ongoing Bloodwork for MAC in MAC & Bronchiectasis

Hi Katherine,

I am new to the world of MAC and to social media groups but my sister forwarded something you wrote about your “delight” with the 5 antibiotics that you are being with. I am to begin treatment within the month and I would love to hear how you have coped with all of the meds and the side effects. I have heard nothing good about treatment and I am so scared.

Thanks for your time.