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8 hours ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes Sue, at age 70 my body says “no thank you” to those everyday too. Some people tolerate them well. I was not one of those. I am on the alternating meds like Terri for the bronchiectasis and will discuss the 7% saline next week with my ID doctor at UMass. I want MAC gone for all of us! Irene

16 hours ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@garry Sorry to tell you, but it kind of does! I never had a radiologist call me at home till we moved to Tennessee for a hot second. This Dr. called me and told me to get right to my primary for further evaluation as there was something very suspicious on my X-ray. (Which was taken for a back issue). I calmed the poor man down and told him “No worries, I have nodular MAC, and my doctor is well aware.” I was actually touched by the fact he was so concerned and had called me! So I guess it kind of shows up as “something.” A CT scan will confirm MAC.

17 hours ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@garry I think that is very good that your hot tub is outside. What I understand about MAC is that we don’t want to continually reinfect ourselves. I have no earthly clue (just maybes) about how/where I got MAC, but I am careful to avoid anything that I know could potentially “feed” it or be a source. Yes, MAC is everywhere, so we can’t avoid that. However, my goal is to get it gone from my body. I may have taught the importance of sharing in kindergarten, but I don’t like sharing my body with this opportunistic pathogen! (Nope – not one single bit!)

18 hours ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@garry I am so sorry for your frustrating situation. Years ago we would say ,”c’est la vie!”. Now” c’est la guerre” seems more appropriate. It is a good idea to loosen that stuff up in order to get it out , but I am sorry to tell you a hot tub is a big no no for MAC patients. Feel free to google that. Hope you feel better soon. No bueno as my daughter says! (Irene5)

Thu, Jan 16 8:00pm · Dentist in MAC & Bronchiectasis

@crepassNever heard of that, and I am the queen of dental work- crowns, bridges, implants etc.. With MAC you are only infectious to yourself. Many have suggested it is the water in dentist offices that is a “way in” for mycobacterium especially with invasive types of dental work. I would be interested in knowing why your dentist wants to wait. That is odd to me. (Irene5)

Wed, Jan 8 7:50am · When should your PCO start treatment if your CAT scan was taken at as in MAC & Bronchiectasis

That is excellent advice Margie. I have learned to advocate for myself because of this site and have recently become an advocate for my husband with his sarcoidosis. We need to always have our CD’s plus all medical notes in our possession. Katherine (our original mentor) said that and encouraged us to advocate for ourselves. I am trying to teach a few of my more hesitant and quiet children that lesson as well. I hope @jillsart will be encouraged by you and Sue. (Irene5)

Sun, Jan 5 12:39pm · How to stay healthy with Bronchiectasis in MAC & Bronchiectasis

Having bronchiectasis makes you susceptible to MAC and other pathogens. So I would think the MAC came second.