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Sun, Sep 8 11:53am · Losing weight due to MAC in MAC & Bronchiectasis

No you don’t!!!

Sun, Sep 8 11:37am · Losing weight due to MAC in MAC & Bronchiectasis

@esssbeee That is excellent advice from @sueinmn. I lose weight like it’s my job. It is horrible. Eating those kinds of foods every few hours is key. Making yourself consume them when you don’t want to eat is crucial. My ID doctor has me drinking Garden of Life meal replacement- only it is in addition to a meal. It is scary and concerning to lose weight when you aren’t trying. Good luck to you. (Irene5)

Sun, Sep 1 6:48am · Statins and MAC medication in MAC & Bronchiectasis

@tinaesims I was allowed to make my own decision whether or not to continue on the statins. I chose to not take them. Irene5

Fri, Aug 30 4:22pm · In shock after MAC diagnosis in MAC & Bronchiectasis

That is awesome news Terri!! Hip, hip, hooray!

Mon, Aug 26 1:21pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@sandykayhud Many teachers have been blessed with MAC. I don’t know about you, but I worked in dirty old buildings for 43 years. I did my own cleaning. I don’t think the vents were ever cleaned! K is the best age. They tell you everything and are such sponges. I miss it! Irene5

Wed, Aug 21 10:03am · MAC nodules in MAC & Bronchiectasis

BX is the abbreviation for biopsy.

Sun, Aug 18 5:11pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@silvermoon8Thanks for asking. Unfortunately I’m not doing very well right now most likely because I have other health things that impact me. I am a very positive person and have a very supportive family. My weight (or lack there of) has been my biggest problem. I go to UMass ID for MAC treatment. They have been excellent.

Sun, Aug 18 2:54pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@sueinmn when I was diagnosed the CT scan said “indicative of MAC/MAI” and I was immediately sent to a pulmonologist who did a bronchoscopy, and the culture from that was sent out. It came back positive, and the rest is history. (Irene5)