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3 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@boomerexpert That is very good information for us to have – thank you!

Fri, Nov 15 5:42am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@kathyhg One of the first symptoms with MAC for many is not having an appetite. I was “never hungry.” It has been several years now with this disease for me, and nausea has been a frequent “companion.”. All these helps about ginger in various forms are helpful. Feel better!

Tue, Oct 22 8:52am · In shock after MAC diagnosis in MAC & Bronchiectasis

My guess Elizabeth is that it’s not so much that it triggers MAC symptoms, but that your immune system is under attack with allergies and that in and of itself gives MAC an edge. MAC is an opportunist infection and will use any “opportunity” to make itself known. I am 70 fighting this and think you you must be one strong lady at 86! God bless you real well. (Irene5)

Sat, Oct 19 10:06am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@kathyh The only connection I know of is the effects of both on the liver. One of the big three is of particular concern for the liver, and since most cholesterol meds increase liver enzymes, it can be problematic to take both. I was given the choice of being on cholesterol meds or off while on the Big 3. I chose off. (Irene5)

Tue, Oct 1 4:47pm · Medical Cannabis for MAC in MAC & Bronchiectasis

@suenfl I have a medical marijuana card for cachexia. It was approved because of my severe weight loss and poor appetite. I have MAC and Bronchiectasis. Both my ID doctor and my pulmonologist agreed it was ok as MAC is such a “wasting” disease for some. I have tried it a few times, but clearly I am not a party gal. My husband encourages me to use it, and he was very against marijuana in the 60’s when we were in college. I will say the creams are nothing short of miraculous in terms of arthritis (which has nothing to do with your question). The dispensaries have many different kinds of marijuana products to fit your diagnosis. Insurance does not cover that expense. I hope that answers your question somewhat.