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19 hours ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Another thought is that MAC itself interferes with your thyroid. I remembered that before I was diagnosed, my doctor commented on how I had stopped taking my thyroid medication. I told her I hadn’t missed a day since I was 18! That same year I was diagnosed with MAC, and my thyroid has had to be monitored carefully ever since.

20 hours ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@anniepie For some resin the Big 3 interferes with thyroid medication. Perhaps your doctor will increase the amount you are on. As for cholesterol meds, since those increase liver enzymes, they pose a problem when taken with the Big 3. I was taken off the cholesterol meds (or at least given the choice) since I needed the Big 3 more. (irene5)

Sun, May 19 9:06pm · 'PINK SLIME' Data Base in MAC & Bronchiectasis

@sounder27All I can say is I feel so bad for you! When you said you never had MAC till the condo, I knew how you felt. I have said that too – not about a condo, but I said that too. I guess we just have to move on knowing we do have MAC, and try not to beat ourselves up with questions of – if we had done certain things differently.

Fri, May 17 10:45am · softener/conditioners in MAC & Bronchiectasis

@sueinmn I have a question. First, that is very good info. Many years ago half the members of my family contracted giardiasis when we lived in Berlin, New Hampshire. It was not able to be filtered out of the town water supply because of its size. It had apparently gotten into the water when a military group had been up there doing exercises or something we were told. We were also told something about beavers connected to that. Who knows. Anyway, if filters are made to get rid of it, wouldn’t all municipal water systems have such a filter now since giardiasis is a third world country thing? Thank you. (Irene5)

Fri, May 17 7:07am · softener/conditioners in MAC & Bronchiectasis

@tinaesims I think water softeners/conditioners are a personal preference. I don’t think they get rid of MAC. Radon in water is a concern these days, but “bubble up” systems for that are $5,600. You, most likely, would want a softener/conditioner in a city because of the chlorine. A cheaper fix, however, is a Brita. Our children who live in cities use those and are very satisfied. I guess it depends on how much you want to spend.

Wed, May 15 5:57am · Negative sputum results without treatment in MAC & Bronchiectasis

Yay ! That is the best news! What a beautiful new day!

Thu, May 2 11:11am · Increasing meds in MAC & Bronchiectasis

@franthony My treatment was the opposite- started with seven days a week and then went to three days/week. So yes, it does happen. (irene5)

Wed, Apr 17 6:52pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@becky33wishing you all the best! Congratulations on your perseverance!