I’m taking Forteo. My last DEXA was -2.5 – I’ve had no problems with the drug. I also take 2,000 units Vitamin D a day on my doctor’s recommendation. Good luck to you.
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@gretagean i can speak from my personal experience, I have other autoimmune diseases too. Ulcerative Colitis is the other one that gives me the most aggravation. I was told by one doctor that I had celiac disease as well, but my new University of Colorado docs have said my celiac test is negative. I’ve just learned that I have MGUS and I’m being tested for multiple myeloma. Apparently they are linked with autoimmune diseases. I will have the second round of test results back sometime this week.
The way I deal with having a full “dance card” is the same as I would at a dance! One dance at a time. It has been an effective way to live my life so far, but I admit this last one is knocking me off my normal way of dealing, so I understand your post very well. Re your question about nightshade plants & diet. I have eliminated grains (NO wheat), legumes, processed food, all oil except olive oil, & dairy. I do not seem to have a problem with peppers or potatoes. I did this elimination by trial & error over a lot of years.
Let us know how you are doing.
Sending you positive vibes
I have ocular & regular MG. I’ve been on both Mestinon & IVIG Gamunex for a number of years. 2 & 1/2 months ago I stopped the IVIG for other medical reasons & have been trying to control my ocular MG with Mestinon. I have those twitches you are talking about, sometimes in the entirety of the muscles around my eye. It feels like it is squeezing my eye shut. That symptom was controlled better when I was doing both the IVIG & the Mestinon. I take the Mestinon every 6 hours & it works for less than 6 hours. In my experience, that symptom is not from the Mestinon, it is the MG. The Mestinon relieves it for a short time plus helps with my over all fatigue. I would be happy to communicate with you. I also live in a small town without a support group. If you would like to talk, feel free to send me a message.
I just received my results from my bone density scan after one year on Forteo. It showed a decrease in bone density. Has anyone else had these kinds of results? I don’t see my doctor for another month, @ which time she plans to take me off of Forteo. Any thoughts?