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Country of Residence
United States of America

Health Interests
Blood disorders, Cancer, Bone, joint, and muscle disorders

Posts (49)

Mon, Mar 4 7:34am · Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis? in Blood Cancers & Disorders

Good morning, beepoop.
I have wondered if you got the information you hoped for, and if you have confidence to reach out in the future if you have questions or concerns. There is a community ready and willing to do all possible to be here for you.
Peace, Nancy

Sat, Feb 23 11:05am · Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis? in Blood Cancers & Disorders

Hello again @beepoop. I am sorry about your father, and getting your MGUS diagnosis at that time must have been so difficult.
After my 2002 MGUS diagnosis, my Mayo doctor diagnosed Igg kappa smoldering myeloma in 2004. He established the number goal that would require treatment to begin, and he and my local physician followed my status until 2016 when I started treatment. For those 12 years I was very active in spite of spinal surgeries and anemia. But during that wait time, and now your wait time, there was major progress in blood cancer research. My current treatment options didn't even exist those 15 years ago. Or one year ago. I was told that we will manage it like a chronic disease, changing treatment as indicated. And that is what happens. I wish you the same peace of mind as you go forward. Your life has meaning and purpose, and I have found that doesn't have to change. Having faith, family and friends gives me such support that hope is ever present. I wish the same for you.
Blessings, Nancy

Wed, Feb 20 1:43pm · Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis? in Blood Cancers & Disorders

Hello@ bepoop. I am Nancy, and have had significant history with myeloma. Can you tell me about yourself, when and where you were diagnosed? I hope you have been reassured that there is much cause for hope as you follow this diagnosis into your future. My journey started in 2002, so I want to give you all positives possible. But first, about you.

Fri, Feb 8 5:50pm · A Survivor: Meet @merpreb in About Connect: Who, What & Why

It is easy to see your appreciation for life, a quality that brings hope and appreciation to those who encounter you. Thank you for the delightful interview.


Mon, Jan 21 11:51am · Darzalex Treatment in Blood Cancers & Disorders

Hi again. When you think you want to talk about my personal Darzalex side effects, feel free to call me, personal message me for phone number. Any time after tomorrow. We aere in PA, make minimum of yearly trips to MN Mayo, 1,100 miles each way. We call it a vacation. :0)

Mon, Jan 21 6:13pm · Darzalex Treatment in Blood Cancers & Disorders

Funny for sure. And enjoy a Goodwill anywhere, that one included. Ever go our route I can hook you up with a great BBQ restaurant and best cheese stop in Wisconsin. :0) Talk soon.

Sun, Jan 20 2:18pm · Darzalex Treatment in Blood Cancers & Disorders

@friedamay I would like to hear more about how you have been tolerating your Darzalex treatments, what you had before, and how long since your Myeloma diagnosis. If you would please read some of my earlier posts, some of your questions may be answered there. Then please get back to me and we can go from there. I am open to phone conversation it the details of all this can be discussed more easily that way. I would like to help however this complicated issue works best for you.