First Name

Last Name



Country of Residence
United States of America

Health Interests
Blood disorders, Cancer, Bone, joint, and muscle disorders

Posts (44)

2 days ago · Darzalex Treatment in Blood Cancers & Disorders

Hi again. When you think you want to talk about my personal Darzalex side effects, feel free to call me, personal message me for phone number. Any time after tomorrow. We aere in PA, make minimum of yearly trips to MN Mayo, 1,100 miles each way. We call it a vacation. :0)

2 days ago · Darzalex Treatment in Blood Cancers & Disorders

Funny for sure. And enjoy a Goodwill anywhere, that one included. Ever go our route I can hook you up with a great BBQ restaurant and best cheese stop in Wisconsin. :0) Talk soon.

3 days ago · Darzalex Treatment in Blood Cancers & Disorders

@friedamay I would like to hear more about how you have been tolerating your Darzalex treatments, what you had before, and how long since your Myeloma diagnosis. If you would please read some of my earlier posts, some of your questions may be answered there. Then please get back to me and we can go from there. I am open to phone conversation it the details of all this can be discussed more easily that way. I would like to help however this complicated issue works best for you.

Mon, Jan 14 8:10am · Waiting on Multiple Myeloma testing in Blood Cancers & Disorders

Helchen, I hope you can first recognize your testing as positive opportunity with caring professionals. Second, you will have options available to you when answers come. I was diagnosed with MGUS in 2002, and then Multiple Myeloma at Mayo Clinic in 2004. There has been so much progress in treatment options since then, it truly feels like managing a chronic disease. My mantra has always been, "Be smart, not scared". No matter your outcomes, remind yourself that you are empowered to steer this ship. I wish you the best. Nancy

Fri, Jan 11 3:02pm · Tech-Lover, Researcher and Cook: Meet @contentandwell in About Connect: Who, What & Why

@contentandwell, I love when anyone recognizes non-judgmental on Connect. Thank you for that mention, as it will offer confidence to those who may hesitate to share.

Dec 14, 2018 · Mentors - Introduce yourself or just come say "hi" in Mentors & Moderators

I want to thank all who sent such friendly and kind messages to me when Colleen introduced me to your Mentor group. As she said, my formal participation is on hold while I take care of the part of me that wears a patient hat. I have a wealth of God stories that have been prominent in my life since my Multiple Myeloma diagnosis at Mayo Clinic in 2004. It was June 2016 when my treatment started and has continued to be done with the coordination of my doctors at Mayo and at home. I appreciated finding Connect, and occasionally became involved conversation. At this point I am awaiting test results, will have another carpal tunnel surgery (easy for me), and continue all activities as possible. I am blessed in that I have never had a moment of fear, my husband (of 56 years) and I share the same reality about my life, and my faith has not been shaken. Pain and fatigue are the two inconveniences that need managed, but we do that. I look forward to getting past this current phase and focusing less on me! We have a beautiful time of year to celebrate life and all our blessings. I wish you all Joy of this Christmas Season, and time with those you call family. Know that I look forward to having opportunity to know you in the coming year.

Nov 30, 2018 · Making Time for Herself Helps Her Help Others: Meet @harriethodgson1 in About Connect: Who, What & Why

@harriethodgson1 I loved the heart and generosity you expressed in your interview. Connect is very fortunate to have you on board. If we lived closer, I would welcome an opportunity to meet over a cup of coffee and enjoy getting to know you even better. Thank you for all you do for this site.

Oct 28, 2018 · MGUS in Blood Cancers & Disorders

I have always said to go where they "see the most, know the most and do the most " of your particular condition(s). That took me from PA to Mayo in MN in 2003 when I had a known year of MGUS behind me,then diagnosed with multiple myeloma in 2004. Do the math. I didn't start treatment until 2016, years in double digits later. Followed vigilantly at Mayo and at home, by professionals who communicate with me and with each other, I have seen my options for care and survival grow over time.
Good luck as you move forward with much reason for hope.