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Aug 3, 2018 · Metastatic breast cancer: Anyone else? in Breast Cancer

Sorry to hear about your husband. Always a harsh wake up call (had one of those myself before I met my husband). I have had MBC for 5 years. I woke up about 6 months ago and realized I was not getting any younger. The Alaska Cruise was on my bucket list so we decided to "gut up" and do it. Since we no longer go to Arizona for the winter, we are spending our "snowbird" money on this cruise. Hope things go well for you. Keep in touch. I do not check this blog very often so if you don't hear from me that is why.

Aug 3, 2018 · Metastatic breast cancer: Anyone else? in Breast Cancer

I was diagnosed with MBC bone mets in September 2013. I have been on Xgeva the whole time – started out once a month and now get shots every three months. I haven't had a bone scan in a while but my last one showed a great deal of improvement in the bone mets. I am now on Ibrance (cycle 4), Faslodex every 4 weeks and Xgeva every three months. My tumor markers have slowly been going up which is why my oncologist put me on the Ibrance. He wants to do a PET scan if the tumor markers continue to go up. I hear it takes a while for the Ibrance to take effect so I am not concerned. Taking a cruise to Alaska in two weeks so I can worry about the MBC stuff when I get back. Keep a positive attitude. There are so many great meds out there. I am on an Ibrance blog which has some very positive input and information from others. If you get on Ibrance you might google that and get on there. It is very specific to that and MBC. Very supportive. Best wishes.

Jun 27, 2018 · Metastatic breast cancer: Anyone else? in Breast Cancer

You are right. Stage IV is the top number. However, metastatic breast cancer is always designated as Stage IV. There have been so many advances. It is not considered "curable" but it is controllable. Stay positive – get a good up-to-date oncologist – and pay attention to what your body is telling you. Keep a close eye on how you feel and do not hesitate to call your oncologist about even issues you might think are minor. I am in a support group and we have ladies in the group who have survived cancer for many years (10 to 15 plus). I also think the survival rates you read on the internet are old and do not reflect the current rates so I do not put much importance in them. Actually the survival rate that's important is yours!! Keep your chin up, be positive and spend as much quality time as you can with friends and family. I do not spend time with negative people – don't need them in the clan. Sending positive thoughts and prayers your way.

Jun 26, 2018 · Metastatic breast cancer: Anyone else? in Breast Cancer

I have had metastatic breast cancer (MBC) for almost 5 years. I have not had chemo but am on medications to block the spread of the MBC to other parts of my body and/or organs. I have done really well on the MBC medications. (Very few side effects). There are lots of advances being made all the time. If you get placed on Ibrance and/or Faslodex, there is a great website with bloggers who have lots of experience with those drugs. (breasecancer.org) (I am currently on Ibrnce and Faslodex). I have been on Xgeva for 5 years which strengtens the bones. I am sure you are scared particularly with a young family but be assured you are not alone on this journey. Positive prayers and thoughts coming your way and lighting your path.

May 27, 2018 · Metastatic breast cancer: Anyone else? in Breast Cancer

Don't know where to start with this reply. I have Stage IV metastatic breast cancer. I too live in a small town in Montana and have a great oncologist in Helena. Don't want to go into detail, but I was a "snowbird" patient at Mayo Clinic in Scottsdale. My experience there was not good. We are now year around residents in Montana partly because of the Mayo experience.

Jun 3, 2017 · Concerned about the side effects of anastrozole in Breast Cancer

Melatonin is pretty benign. (My 96 year old mother takes it.) 3mg is about the weakest dosage. I think they also have 5mg. Sometimes if I wake up and cannot fall asleep I’ll take another if it’s still early (3am or so). I don’t seem to have a “hangover” the next day. Good luck

Jun 3, 2017 · Concerned about the side effects of anastrozole in Breast Cancer

I was on Arimidex for 3 years until my tumor marker shot up. The oncologist was surprised I was on it for such a long time but I was. I was switched to a monthly shot of Faslodex and my tumor marker is 53 which is great. I too have trouble sleeping and the oncologist put me on a 3mg dosage of Melatonin (over the counter). That has helped me a great deal. Keep a positive attitude and keep up the good fight.

Apr 28, 2017 · Metastatic breast cancer: Anyone else? in Breast Cancer

Thank you so much for your post. Just yesterday I was surfing the internet to see how long Faslodex was being administered before it stopped working. I have been on Faslodex about 10 months. I think it’s working well for me also. When I started on Faslodex, my tumor marker was 225, now it’s 56 and has been in that range for 3 months. I really don’t have any side effects. I too have no outward indications of having metastatic breast cancer. If I do something physical (rarely happens, yea) and I get tired, I just sit down. I too am on Xgeva – started monthly injections in September 2013 and now have a shot every 3 months. Big day when I have the Xgeva and Faslodex in the same day. Since September 2013 (when first diagnosed with mbc), I have had 3 bone scans and a PET scan. The bone scans are showing substantial improvement – which I think is a result of the xgeva. I love my oncologist. I really think he knows what he is doing. Best wishes to you. Really excited to read your post.