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Posts (83)

5 days ago · YAG Laser Iridotomy Complications in Eye Conditions

@wantingtoknow I'm guessing the reason that he wants to do the iridotomy is because your angles are becoming more narrow? I do know have glaucoma but I do have narrow angles. Two years ago, mine suddenly got worse over a 4 month period and so he strongly suggested peripheral iridotomy. It is my understanding that if you have complete closure of the angles, you have a very short window of time to get treatment before you face the risk of losing your vision. Because I live 2 hours away from the ophthalmologist, I opted to go ahead with the procedure, one eye at a time. If you decide to pursue this, my one caution would be to do your homework on the position of the iridotomy. My first one was at the 12 o'clock position and it left me with a dysphotopsia. The second was done at a temporal position. See my above posts for more detailed info about that.

Thu, Sep 27 9:03pm · High Heart Rate / Slight fainting type of symptoms in Heart Rhythm Conditions

Just to clarify — it can include a component of anxiety.

Thu, Sep 27 9:02pm · High Heart Rate / Slight fainting type of symptoms in Heart Rhythm Conditions

Has your cardiologist ever considered POTS (postural orthostatic tachycardia syndrome)? With that, your heart rate increases by at least 30 beats from lying down position to standing. Also associated with it can be an increase in adrenaline. Sometimes get labeled with just anxiety — when there could be more to it.

Mon, Sep 24 11:35am · Reveal LINQ Insertable Cardiac Monitor in Heart Rhythm Conditions

Hi — I think a lot of your questions can be answered with this info: CareLink Patient Services at 1 (800) 929-4043. They are available to answer your questions from 7 am – 7 pm CT, Monday – Friday – and asking these questions.

Your questions:
1) I don't think it is a problem to change doctors as long as you notify CareLink.
2) If something comes up on my report, my physician contacts me usually via MyChart notification message. Also if you don't have your Patient Assistant with you but have some symptoms, you can just note the time and the symptoms and then send a message or call your doctor with that information. Or even when I do mark with the PA — I still send a note explaining why I marked at that time.
3) Yeah, it would be great to get access to what the doctor has access to. Darn.
4) My parameters were not initially discussed with me too much. But because I started having some specific problems that we were trying to catch — I talked with my doc about adjusting the parameters. They were set at ridiculous parameters initially, in my opinion – at least for me. Nothing recorded unless less than 40 bpm or higher than 150. We changed this to 50 and 120.
5) Regarding the battery — talk to the CareLink folks about that. I'm not sure.

I suppose it depends on the cardio office that you deal with but mine is very responsive. Whenever they get a report that is concerning, they are on it and checking it.

My biggest disappointment is that the Reveal LINQ does not record my palpitations. It wasn't explained well to me before I got it. But it has been a handy little tool inside of me in the past few months when I've had trouble with my adrenaline levels and high heart rates. I hope it proves to be a very helpful tool in your case.


Mon, Aug 27 10:35am · YAG Laser Iridotomy Complications in Eye Conditions

Check out this article. It speaks of grading of the angle closure.


Sun, Aug 5 10:34pm · Reveal LINQ Insertable Cardiac Monitor in Heart Rhythm Conditions

I've also had mine for two years. If it had been better explained to me how it works and the limitations — I probably would not have gotten it inserted. I too have had pain in my chest where it is inserted. I was told this would last up to the first year allowing for the nerves to heal — but it still bothers me from time to time and I also get that tearing feeling and it can be quite painful and uncomfortable. I don't lift weights but if I am doing lifting around the house or certain activities — it seems to irritate the area. I'm sorry to hear that the events that you hoped to have recorded — were not picked up. In March of this year, I had my parameters adjusted. Previously, it was not picking up anything unless my heart rate was below 45 or over 145 (I think) — anyway, I got the upper limit put down to 120. I was under the impression when I got this thing that I would essentially have a 3-year, 24/7 heart monitor that would pick up all of my arrhythmias. Not true. I was told at my 2nd year appointment that it doesn't pick up on PVCs, PACs, and the like. It can detect atrial fibrillation. Darn — if I had understood this, I would have foregone the procedure — as it was quite expensive. Just a couple of weeks ago, I was having racing of my heart at night. I did contact my cardio office and it was all caught — but had the parameters not been adjusted, it would not have been.

Fri, May 18 11:59pm · Med detective needed, award given - adrenaline spikes in Diabetes/Endocrine System

Good thoughts, mentors and folks. Thank you for the exchange. It is a balancing act between respecting your doctor, understanding and knowing your own body, legitimate research of your own and communication.

Fri, May 18 2:07pm · Med detective needed, award given - adrenaline spikes in Diabetes/Endocrine System

Thanks for your comments. I did want to reply though and say that we are our own best health advocate. We know our bodies the best. For those of us who have had weird things going on in our bodies for years — we have learned to take lots of notes and keep health journals. I am SO VERY THANKFUL that I have a physician who is not intimidated by a knowledgeable patient. Several years ago I suffered a really strange rash. I was concerned that it was leukocytoclastic vasculitis. My physician (family practice) upon seeing it was puzzled and called in the Internal Medicine doc to consult with. Near the end of the visit, I hesitantly and haltingly asked if she would consider whether it was the above-mentioned problem. She promptly responded with – "that is what I'm wondering about". Yay — my research was accurate and she and I were on the same page. Pity the doctor who can't take a suggestion from a patient. I know it has to be approached carefully. Yet if you have a rather atypical set of symptoms or not the run of the mill kind of a problem —- it is quite likely that your family practice physician may not know what the problem is. Last month I was diagnosed (a collaborative effort between my physician and myself) with Ehlers-Danlos, hypermobile type (hEDS). She told me that she doesn't have time to be an ESD specialist but said "I will continue to learn through you". I so appreciate her willingness to learn and not have to be controlling or either threatened in any way.