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Posts (86)

Sun, Mar 3 11:01pm · YAG Laser Iridotomy Complications in Eye Conditions

Unfortunately it happens to some patients. It is called a dysphotopsia. I had bilateral peripheral iridotomies over two years ago and I still have residual crescent of light that I can sometimes see. It is the worst when watching a movie on our big screen TV, when driving in sunlight without sunglasses or when looking directly towards a window that is too bright. I doubt mine will ever change as it has remained essentially the same since fall of 2016. I will say that there have been stretches of time that go by that I don't seem to notice it as much but then later will be bothered again. Sorry to hear that you are experiencing this.

Tue, Feb 19 6:41pm · Dealing with symptoms from unknown cause in Just Want to Talk

Hoping you get some answers soon. I think doctors pull the "anxiety" card when they don't know the real cause of the problem. Definitely neurological processes such as MS, cervical vertebral problems and autonomic dysfunction could account for your symptoms. I would suggest seeking a second opinion and being assertive. I once had half my face go numb and it was scary. It was felt to be a hemiplegic migraine.

Thu, Jan 24 1:38pm · Possible S3 nerve damage in Spine Health

@annette50 I have recently been diagnosed with symptomatic Tarlov sacral cysts. They are a type of spinal cyst. Specifically, These are also sometimes called perineural cysts or sacral nerve root cysts They are dilations of the nerve root sheaths and are abnormal sacs filled with cerebrospinal fluid that can cause a progressively painful radiculopathy (nerve pain). They are located most prevalently at the S2, S3 level of the sacrum. The sacrum is a fused triangle-shaped bone comprised of the five sacral vertebrae forming the base of the spine. The five lumbar vertebrae are located just above the sacrum, and the four coccygeal vertebrae are just below the sacrum forming the coccyx or tailbone.

If you do not already have a copy of your MRI reading — I would obtain that. See if it mentions Tarlov or perineural cyst. They are often underreported and poorly understood by much of the medical community. If there is no mention on the reading — you can ask your radiologist to re-review the MRI and specifically ask if there are any Tarlov cysts present. Many radiologists were taught that a Tarlov cyst is a clinically insignificant finding. For many people that is the case. About 5% of the population do have asymptomatic cysts of this type. Only 1% of us have symptomatic Tarlov cysts. An excellent source of information to learn more about symptoms is: https://www.tarlovcystfoundation.org/faqs/

Dec 6, 2018 · YAG Laser Iridotomy Complications in Eye Conditions

@wantingtoknow I'm guessing the reason that he wants to do the iridotomy is because your angles are becoming more narrow? I do know have glaucoma but I do have narrow angles. Two years ago, mine suddenly got worse over a 4 month period and so he strongly suggested peripheral iridotomy. It is my understanding that if you have complete closure of the angles, you have a very short window of time to get treatment before you face the risk of losing your vision. Because I live 2 hours away from the ophthalmologist, I opted to go ahead with the procedure, one eye at a time. If you decide to pursue this, my one caution would be to do your homework on the position of the iridotomy. My first one was at the 12 o'clock position and it left me with a dysphotopsia. The second was done at a temporal position. See my above posts for more detailed info about that.

Sep 27, 2018 · High Heart Rate / Slight fainting type of symptoms in Heart Rhythm Conditions

Just to clarify — it can include a component of anxiety.

Sep 27, 2018 · High Heart Rate / Slight fainting type of symptoms in Heart Rhythm Conditions

Has your cardiologist ever considered POTS (postural orthostatic tachycardia syndrome)? With that, your heart rate increases by at least 30 beats from lying down position to standing. Also associated with it can be an increase in adrenaline. Sometimes get labeled with just anxiety — when there could be more to it.

Sep 24, 2018 · Reveal LINQ Insertable Cardiac Monitor in Heart Rhythm Conditions

Hi — I think a lot of your questions can be answered with this info: CareLink Patient Services at 1 (800) 929-4043. They are available to answer your questions from 7 am – 7 pm CT, Monday – Friday – and asking these questions.

Your questions:
1) I don't think it is a problem to change doctors as long as you notify CareLink.
2) If something comes up on my report, my physician contacts me usually via MyChart notification message. Also if you don't have your Patient Assistant with you but have some symptoms, you can just note the time and the symptoms and then send a message or call your doctor with that information. Or even when I do mark with the PA — I still send a note explaining why I marked at that time.
3) Yeah, it would be great to get access to what the doctor has access to. Darn.
4) My parameters were not initially discussed with me too much. But because I started having some specific problems that we were trying to catch — I talked with my doc about adjusting the parameters. They were set at ridiculous parameters initially, in my opinion – at least for me. Nothing recorded unless less than 40 bpm or higher than 150. We changed this to 50 and 120.
5) Regarding the battery — talk to the CareLink folks about that. I'm not sure.

I suppose it depends on the cardio office that you deal with but mine is very responsive. Whenever they get a report that is concerning, they are on it and checking it.

My biggest disappointment is that the Reveal LINQ does not record my palpitations. It wasn't explained well to me before I got it. But it has been a handy little tool inside of me in the past few months when I've had trouble with my adrenaline levels and high heart rates. I hope it proves to be a very helpful tool in your case.