About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (91)

12 hours ago · YAG Laser Iridotomy Complications in Eye Conditions

I'm sorry to hear that you have had so many problems and feel like it was a terrible decision to have had iridotomy. I was troubled with the dysphotopsias immediately following the procedure but now that I am 3 years post procedure — it is far less of a problem. I hope with time that you have improvement. I'm glad I had mine done as I now have that "relief valve" in place — especially since I am 2 hours from my ophthalmologist.

2 days ago · YAG Laser Iridotomy Complications in Eye Conditions

I do still have the dysphotopsia but it is not always as noticeable. It is weird. I didn't notice much at all for several months and then it will suddenly be more noticeable in bright sunshine. I don't know why that is so but it isn't very bothersome now.

2 days ago · YAG Laser Iridotomy Complications in Eye Conditions

I do have cataracts — but most people do after the age of 40. They are not progressing rapidly or a problem.

Jul 31, 2019 · Heart Rhythm Episodes - AFib; Tachycardia, High Blood Pressure in Heart Rhythm Conditions

I have had increasing episodes of increased heart rate over the past year but it is episodic. Mine, I believe, is related to dysautonomia – a dysfunction of the autonomic nervous system due to my connective tissue disease, Ehlers-Danlos. I have a Reveal LINQ implanted which has caught all of these episodes. Last year, within less than a two week period, I had over 600 episodes of heart rate over 130 but the longest episode was under 3 minutes and most were around 1 minute in length. Most of the time, I was unaware of the increased rate. My cardiology provider gave me the option to increase my metoprolol if I felt I needed to, in January or February, I bumped it from 37.5 mg to 50 mg a day. I am apparently still getting the episodic tachycardias. But my provider is not particularly concerned — no really concerning arrhythmias.

Jul 31, 2019 · Heart Rhythm Episodes - AFib; Tachycardia, High Blood Pressure in Heart Rhythm Conditions

Have you been worked up for causes? Have you been considered for pheochromocytoma? Can cause episodic times of increased heart rate and BP. Just a thought.

Mar 3, 2019 · YAG Laser Iridotomy Complications in Eye Conditions

Unfortunately it happens to some patients. It is called a dysphotopsia. I had bilateral peripheral iridotomies over two years ago and I still have residual crescent of light that I can sometimes see. It is the worst when watching a movie on our big screen TV, when driving in sunlight without sunglasses or when looking directly towards a window that is too bright. I doubt mine will ever change as it has remained essentially the same since fall of 2016. I will say that there have been stretches of time that go by that I don't seem to notice it as much but then later will be bothered again. Sorry to hear that you are experiencing this.

Feb 19, 2019 · Dealing with symptoms from unknown cause in Just Want to Talk

Hoping you get some answers soon. I think doctors pull the "anxiety" card when they don't know the real cause of the problem. Definitely neurological processes such as MS, cervical vertebral problems and autonomic dysfunction could account for your symptoms. I would suggest seeking a second opinion and being assertive. I once had half my face go numb and it was scary. It was felt to be a hemiplegic migraine.

Jan 24, 2019 · Possible S3 nerve damage in Spine Health

@annette50 I have recently been diagnosed with symptomatic Tarlov sacral cysts. They are a type of spinal cyst. Specifically, These are also sometimes called perineural cysts or sacral nerve root cysts They are dilations of the nerve root sheaths and are abnormal sacs filled with cerebrospinal fluid that can cause a progressively painful radiculopathy (nerve pain). They are located most prevalently at the S2, S3 level of the sacrum. The sacrum is a fused triangle-shaped bone comprised of the five sacral vertebrae forming the base of the spine. The five lumbar vertebrae are located just above the sacrum, and the four coccygeal vertebrae are just below the sacrum forming the coccyx or tailbone.

If you do not already have a copy of your MRI reading — I would obtain that. See if it mentions Tarlov or perineural cyst. They are often underreported and poorly understood by much of the medical community. If there is no mention on the reading — you can ask your radiologist to re-review the MRI and specifically ask if there are any Tarlov cysts present. Many radiologists were taught that a Tarlov cyst is a clinically insignificant finding. For many people that is the case. About 5% of the population do have asymptomatic cysts of this type. Only 1% of us have symptomatic Tarlov cysts. An excellent source of information to learn more about symptoms is: https://www.tarlovcystfoundation.org/faqs/