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Sep 5, 2016 · CLL - newly diagnosed in Blood Cancers & Disorders

GMACK
First of all, thank you so much for the response….. it will be most
helpful to me in managing my expectations.

Just to let you know, I am a Canadian thus, no involvement in Vietnam or
Agent Orange .

Ibrutinab seems to hold the most promising solution….. I met a Canadian
who was also in the clinical trial and he indicated that it saved his life.

I do have a “Marker” in my cell count which is known as ZAP70.(48%) I have
been advised that it progresses a little faster which may result in
treatment 2 years earlier.

I have also heard that chemo results in significant fatigue….. don’t know
if you experienced that.

I feel OK now but recognize that will change over time.

Ibrutinab or possibly immunotherapy would appear to give me confidence to
deal with this.

Again, thank you so much.

Gerryk

*Gerry Kowalchuk*

Sep 2, 2016 · CLL - newly diagnosed in Blood Cancers & Disorders

My doctor discovered smudge cells as a pre-cursor to CLL in Dec. 2015. This spring of 2016, my lyphmocyte count put over the 5000 threshold wherein I now have CLL. I am 68.

I am blessed that this is a CHRONIC versus an ACUTE cancer.

That said, I am aware that I will ultimately require some form of treatment.

It appears from the information that I have read that the forms of treatment are:

1. CHEMOTHERAPY;
2. IMBRUVICA (IMBRUTINIB)
3. IMMUNOTHERAPY

I am somewhat reluctant to consider chemotherapy.

I would be interested in hearing from CLL patients who have been exposed to EITHER IMBRUVICA or, IMMUNOTHERAPY……..the success, failure, side effects etc.

Thank you so much for taking the time to respond.