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Nov 15, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Roberta,

Thanks for the response. Yes, I’m dealing with MP.

I agree, moving/exercise keeps the pain in check. The more I move, the more I forget about it…and like I said, when I’m sitting it’s the worse (and sadly I have an office job — think I may invest in a standing desk for work).

Regarding the FODMAP stuff – where did you first hear about this? Why did you decide to start a diet for an unrelated condition (is it not for IBS sufferers?)

Thanks again,
Mike

Nov 15, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello all,

I’m still dealing with this annoying condition. My GP has put me on a ‘burst’ treatment of prednisone 40mg/day for 7 days. I’m on day 6 and don’t feel any different. Still minor pain (probably equivalent to a toothache), in the lower left quadrant/pelvis. When I spoke to the GI doc, he indicated to me that if I could manage the pain, to stay off of prednisone because of the side effects. The only reason I decided to try the drug was because I’m travelling overseas to Thailand for a month (December) and thought I should bring a prescription with me..but my doc suggested I take it now. I’m pretty sure this is going to lead to a longer dose — which I’m apprehensive about taking. I think I may just go back to pain management. The frustrating part is the lack of knowledge from the medical community. There doesn’t seem to be any “plan” to combat this situation.

Regarding the food and diet suggestions listed here in this forum. Is there any research supporting this? Can someone post a link? I monitor my food pretty closely for general diet/health purposes, I don’t see any direct connection to what I’ve eaten and how I feel.

Oh..does anyone feel better when standing/lying down? I find the pain worsens when I’m sitting…just curious if anyone else experiences this.

Thanks,
Mike

Sep 23, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you, Roberta. This information is very insightful. Other than feeling “speedy” did you experience any other side effects? (ie the dreaded, “moon face”).

I’ll try figuring out what my triggers are with respect to my diet..and try the soft foods on flare up approach.

Thanks again for your time,
Good to hear things are better! 🙂

Sep 1, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello, I’ve been recently diagnosed with MP a few months ago. A CT scan uncovered the issue while looking for diverticulitis (which was negative). The CT guys thought I should do a colonoscopy to get a full image of the area. Which I did, and all is good. The GI doc says that if I can manage the MP pain that not treating it is fine. He also added that I should wait to see if I encounter severe pain before considering Prednisone because of the side effects.

I’m just wondering – how severe is the pain this community is experiencing? For me, it’s more “uncomfortable” than “crippling”. I mean, it never has stopped me from going to work, or woken me up from sleeping. It’s more annoying than anything…but I’m curious if anyone else has the same kind of issue? Also, is there any over the counter drugs that might be effective (ibuprofen?).

I’m male, 46.

Thanks,
Mike