I had my transplant for PSC 2.5 years ago. Besides the wonderful hepatologists, the surgeons and Transplant Center are top notch. I have been at Mayo Clinic since 2008.
I want to let you know that there is a nonprofit out there with excellent patient support and drive to find a cure. They have funded over $2 million in research, including some grants to Mayo Clinic. One of those research projects is now combining with the U.K. PSC Research Team to create a bigger pool of patient demographics to help find a cure. PSC Partners Seeking a Cure is a wonderful group and they happen to be leading an awareness campaign that started today. It’s PSC Week from Sept. 10-16. Please check out this nonprofit. You can ask me if you have any questions. There is a wonderful PSC family there.
My transplant involved a deceased donor, but I know a few people who have recently had living donor transplants and are doing well.
I wish you the best and please continue to ask questions.
Julianne (in Minnesota)