Glad you are doing well. I am just starting to give up gluten and dairy.
Member has chosen to not make this information public.
Member not yet following any Groups.
Member not yet following any Pages.
And my experience with stomach paraylsis and constipation was frightening but it seems all over. When my health declined and gut issues blew up I had severe gastroparesis and doc wanted to put me on meds whose #1 side effect was it could stop your heart. I hesitated because I didn’t have gastroparesis my whole life it had just started. So I decided to be strict on diet and see over time what happened. My naturopath said it could take 6months to a year or longer to heal and she was right. Whether I had SIBO, parasites, candida, histamine gluten intolerance, mast cell activation issues, other bad guys in my gut and lack of good guys, it didn’t all matter I was sick from multiple factors and had to be very basic. Getting the right supplements and food in place was a tricky game but seems one year later my gut is running fast (no gastoparesis bloating belching or constipation). eating was strict on Elaine Gotschalls SCD diet (she was scientist who came out with diet in 1950’s to heal her sick daughter). Before i found this I kept getting sick again and it was clear even ‘what looked to be okay foods for me’ like rice and potato were indeed beyond my ability to digest. Elaine was right. Once I gave up the hard to digest starch molecules my gut worked better. What seemed to help me the most was eating 24hr homemade SCD yogurt. My gut got much stronger eating this daily. The next piece of the puzzle was mayo figuring out I had issues with mast cells in my gut and I learned about histamine intolerance. Now I follow my five hand rule: no sugar, no wheat, no preservatives, limited specific dairy items, foods low in histamine and I am finally thriving.
Galy, I adore what you wrote: ‘living as if no solution’. This is so interesting and profound to me and strikes a chord resonating inside me. Being an over achiever is interesting, I try with all my might to get well and my mind goes down slopes and keeps sliding down tunnels to get myself well and It’s not a healthy wholeful way to live. For me I have a framework I like to live my life by: eat for nutrients, sleep and exercise and expose my brain to things that make me feel peaceful, laugh and learn. I cannot obsess for the solution. It’s absurd to think I can begin to know how complex a body works so mysteriously. All I can do is listen to any symptoms (without obsessing) and stick to my framework then let everything else go and enjoy the life in front of me. <3. Thanks again for sharing your thoughts they have really helped me.
Histamine is tricky too because your body produces it, some foods contain it and some foods are histamine releasers and many folks have issues clearing histamine from their gut and it causes bloating, constitpation diarrhea symptoms similar to IBS. What Is interesting is the list of foods high in histamine are scattered throughout different food groups so it’s very hard to detect until you do an elimination diet and avoid foods high in histamine. I was shocked how well limiting these foods and taking histamine scavenger with food worked for me.
You may want to read up on histamine intolerance and see if those symptoms sound familiar. It can be tricky having any food sensitivity, intolerance, etc. wheat dairy sugar histamine high foods etc are just a few of the categories.
Thanks for writing this post. It’s a miracle I found it and it helps me realize a lot of stern discipline I’ve got to stick to. Similar plate I share, I do best avoiding dairy/spicy/sugar/alcohol/gluten and no preservatives, canned or packaged foods. And limiting starches such as squash, plantains, potatos. Feel best cooking freshly grown veggies and some meat.
Hi Karl, I pray for your recovery. And I conquer recovery experiences have too many variables involved and doctor experiences vary too widely. It’s frustrating to read about one doc that specializes in personal symptoms and not be able to get help from them or even know who to trust in your specialized needs. My case is very complex and there are so many more concerns and questions I have and I hope I’m being screened for everything including autoimmune hepatitis and other autoimmune dysfunctions. I find good information on various conditions that pertain to my symptoms and experience of getting sick after some sort of viral attack on Mayo research data and articles available and I’m not sure I’m being looked at from all the angles of what Mayo researches but I figure that got to start somewhere. I do not google various conditions because it scares me to death. I only look them up to familiarize myself to be able to communicate to doctors but it’s all so complex. And so far Mayo literature is really good. Whether I can get screened and on a treatment plan that will save my life is another ballgame and I hope and pray works out. I don’t know what else I can do. Just try the best I can and get help from experts and hope I’m lucky enough to have a treatment plan to help me recover. I need to face the alternative of no recovery and early death to be realistic but I have GOT to stay positive. I do not want to die early. But neither did my father bless his heart.
Sorry for rambling I pray for you Karl. Kind regards, Lindsay