My primary care physician diagnosed me. Then sent me to s rheumatologist.
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I had pain in arms and hips. My hands had so much pain, I couldn’t hold a plastic plate. I felt like someone was braking my bones. I have been on steroids July was a year ago. Today I ‘m on prednisone 5. I at 5 and when you get to 5 they do a test to check for inflammation. I took a really bad fall so they have to wait until I am free of inflammation. I was told that when you get to 5 you have to be careful so your adrenalin doesn’t shut down your organs. I know it’s scary especially when you start. I felt great but over time not so good. It has really helped. I was told some people never ever have this problem. I’m not sure which way I will go but I’m a positive person. Having cravings for sweets are the worst. I have gained 15 pounds. My doctor said it will come off when I am finished. The wait comes to your waist up. Good luck!
I have PMR and was put on 20 mg of prednisone. I felt great at first. Then the side effects of prednisone kicked in. I feel miserable. Every time I get to come down a mg. I have all the symptoms again. I feel nauseated and I have AFib really bad. I love my doctor but dont always feel like he understands the auto immune. I have cramps in my feet legs, kidneys and below my shoulders. It hurts so bad some times i have to cry. My hair fallls out in clumps when they lower it. I’m on 9 mg and I go down every 4 weeks. Remission please come . My hands hurts really bad and some times I can’t hold a plate. PRM doesnt get the recognition it needs to help the people who has it. Every time I go to the rheumatologist they have material on everything but PMR. I will pray for each of you every night and hope we all go into Remission. God bless!
I just received my diagnosis and went to the rheumatologist. I am on Predisone 20 for 4 weeks and I’m losing weight. My face and neck looks fuller. The pain is better but not gone. I guess you never get rid of all the pain. I try to eat small meals during the day. I can’t take anti inflammatory because I lost one kidney and my other one is 3/4 %. He did give me a shot in my hip, I go back in 2 weeks and I will see if he will inject my hip on the other side. It really helped.
I just been diagnosed and they put me on steroids. I just would like to find someone who knows about it or had it a while. I want to kinda know what to expect. Thank you!