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Posts (9)

Jun 6, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have tried everything…clicking unsubscribe doesn’t work, going to Katherine’s site came back “not available”, I have blocked it through Google directions …begged, pleaded…nothing will stop the 25 to 50 posts per day. I have MAC but I am not ready for all the chat.

Jun 6, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Please disconnect me from these messages….PLEASE…I have tried and tried and tried and begged…Let me go!

Jun 2, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

PLEASE PLEASE PLEASE PLEASE…..take me off your discussion email list. I have tried everything to block the emails…divert them etc. and they still fill up my inbox daily. I DO NOT WANT TO READ ABOUT THIS.
Ruth Van Dyne

Jan 13, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I was on probiotic with diverticulosis treatment and it didn't stop the infection. I have read and reread the forum. Infectious disease Dr. said no to antibiotics at my age, Pulmonary Dr. is the one pushing it, Gut Dr. said no…so I am pulled in many directions. I just figure if I am not that miserable I'll will stick with what is. Utter fatigue seems to have subsided so as long as I can be mobile and take care of myself I won't choose the meds. My name is Ruth…20 years free from RA flareups. A miracle here in Santa Barbara. I note the high concentration of MAC in my area…has anyone at all mentioned chemtrails that are so prevalent these past years. I know my system was compromised by the RA meds of 10 years AND I live about 4 months in Mexico in a very very windy dusty place….so lots of ways I could have contacted MAC. How do I stop all the notifications from Mayo Connect replies?Ruth

Jan 13, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I joined the discussion last year but have not been an active contributor. I was having problems deciding whether to go on meds. I am still deciding. CAT last week showed increase in MAC but increase in breathing capacity…go figure. I guess I don’t feel as bad as most of you because choosing to be nauseated, fatigued etc. on meds doesn’t make sense to me at my age. (79). I still exercise, travel, garden, I kicked RA, diverticulosis, breast cancer, neck surgery etc.(just one antibiotic for 10 days had me throwing up and left me with yeast infection after diverticulosis), I yell at the MAC to leave my body daily. Maybe I can kick this also! As long as MAC doesn’t have me incapacitated, I will continue on my pathway sans meds much to my lung spec. dismay. Blessings to all.

Aug 9, 2016 · I was diagnosed with MAC in May 2015. in MAC & Bronchiectasis

Thanks, I appreciate your input. I have probably lost faith having searched
for answers to my reoccurring pneumonias, coughing, heavy chestedness, RA
for over 30 years and having all kinds of diagnoses (Legionaires, HIV,
allergies, asthma, bronchiectasis etc. and apparatuses. If I hadn’t
contracted pneumonia while hospitalized with neck surgery, I might still be
searching. Putting a name to the problem eases some concern, now I must
take my steps toward what to do with that name attached to this body. I’ll
try MAC truck first! Plow my way through.

Aug 7, 2016 · I was diagnosed with MAC in May 2015. in MAC & Bronchiectasis

I think for now my Plan A will be the course of action. Continue as normal
and wait for the CAT in Jan. I’m already on drugs for RA, Dry Eye and HB.
Perhaps my condition is not as severe as many I have read about (52% lung
capacity). Just can’t opt for nausea and vomiting and be bedridden. Thanks
for the support keep spreading the love.