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Posts (41)

Nov 6, 2017 · Eye evisceration in Eye Conditions

Thank you Jamie: I’ll try to remember to come back and keep kind of a log. Just remind me if I slack off…lol. Right now I’m just trying to stay calm and relax. I’m having the procedure done at a specialist’s office. They have an ambulatory surgical section. There hasn’t been must “support” other than very nice people telling me what expect and when to be there.

There’s such a lonnng story leading up to this surgery that I wouldn’t know where to begin. I’ll just really try to capsule it and say… I had RA from an early age….too many steroids over a long period of time before the RA burned itself out. Steroids led to chronic glaucoma and uveitis which led to years of eye problems which finally led to this day. I have other medical issues to so that makes things a little more difficult.

As for what I’m having done right now. Friday the surgeon will perform an evisceration and insert a round globe to hold the shape of the eye. I can just live with that globe and wear a patch or…..I think he said a lense could be made to fit over the front of the globe that would look like a real eye lense. Because of my age and our financial situation and the distance I’d have to travel to go to someone who could make the lense, I’ll probably just live with the globe. I just have to find some place to buy soft patches that won’t irriate my face. My husband says he’s not concerned about the way I’ll look and I don’t go out much so I’m not going to be seen a lot anyway. I’ll just wear the patch when I leave the house.

I’ll come back after the surgery and tell you how it went.

Nov 6, 2017 · I don't even know where to start..Pain everywhere in Chronic Pain

There are two CBD oil groups on Facebook. There’s CBD Oil Users Group and then there’s CBD Oil Users Group Official. Which one are you referring to. Seems there’s a lot of groups actually but also a lot of people trying to sell things.

Nov 6, 2017 · I don't even know where to start..Pain everywhere in Chronic Pain

I love being in a pool but there isn’t one convenient enough to me that would fit into my situation.

Nov 4, 2017 · I don't even know where to start..Pain everywhere in Chronic Pain

Thank you Jim. I’d be interested in knowing more about the DVD on “Sit and Be Fit”. I’ll look it up on Amazon. I have serious back issues too so I really have to be careful how I move. At 71 I’m just not comfortable with having so many surgeries that “might” help. My understanding is I should consider having both knees replaced as well as neck and back surgeries but the odds they give me are not encouraging. I guess I didn’t mention I’m having my left eye removed next week. I have no choice with that one. It’s a longggg story spanning many years. Bottom line…the time has come. The eye has to come out. I’ve been blind in that eye for over 10 years so at least I don’t have to adjust to seeing out of one eye. I’m just nervous. I haven’t had the best of luck with medical issues. There always seems to be complications to overcome. I just have to be positive and expect no problems…lol. Again..thank you for the kind words. I guess it’s nice to exchange feelings with people who understand.

Nov 4, 2017 · I don't even know where to start..Pain everywhere in Chronic Pain

Thank you very much. After I have my eye surgery I will look into that. I’m on a very limited budget so cost is a factor. My doctor actually gave me a prescription for marijuana and I did try it. It didn’t help with the pain though. Actually sometimes it intensified the pain I felt….sort of like my neck muscles started tightening up so tight it caused pain from my neck down my spine. Seemrf to get different reations at different times. I understand CBD is different though so I will definitely look into it. I Binged CBD and found this interesting article. Here’s the link. https://www.today.com/health/what-cbd-oil-everything-know-about-latest-health-trend-t118055

I’ll look up the Facebook pages you mentioned now. As for Fibromyalgia, it’s strange you say that. Actually just two weeks ago I was at my gut doctor’s office. During our conversation he made a side comment that some of the complaints I had sounded like Fibro to him. I’ve wondered about it too. I’ll check this all out. I assume you’re a member of the CBD Oil Users Group on Facebook.

Thank you again

Nov 2, 2017 · I don't even know where to start..Pain everywhere in Chronic Pain

I really don’t even know where to start here. I’m 71. I started with RA in my left knee when I was a child. Supposedly went into remission later in life after a surgery and way too much steroids which left me with a whole other set of problems. Actually I’m having my left eye eviscerated next week due to years of damage from chronic secondary glaucoma and uveitis. I’ve been told I should have both knees replaced. I have degenerative disc disease so my back is a mess. I have gut issues including IBS-C and OIC from using hydrocodone for pain. I get spasms anywhere (even anal) and anytime my body feels like giving me a little extra zap. My spine itches so badly sometimes it drives me crazy. I hurt everywhere, even my skin hurts. It feels like my nervous system is really screwed up….the signals from my brain to my nerves…or maybe it’s the other way around seem to fire off pain signals all the time. Weather changes?…forget about it…I’m a walking weather station. My skin hurts, my muscles hurt, my bones hurt….everything hurts.
I’m now in a wheelchair so I don’t get much exercise. Yep..you got it. The weight started piling on regardless of what I do or don’t eat. I really should lose 40 lbs.
At my age I’m not going to start having surgery after surgery for both knees, my back, my neck, etc. I can’t afford expensive drugs and the side effects of some of the newer medications you see advertised on TV are daunting and aren’t adviced because of my stomach issues. So why am I even asking anyone for their thoughts? I don’t have a clue. I guess I’m frustrated and feeling overwhelmed. Homepathic thoughts? Eating habits and ideas on healthy foods? I think I eat a pretty healthy diet…fish, chicken, fruits and veggies. My one weakness is a sweet tooth. I don’t eat much in the way of cookies, cake, pastries, etc but I do eat a container of slow churned 1/2 fat Dreyers chocolate ice cream over the coarse of 8 weeks, 4 or 5 mini York peppermint patties in the evening while watching TV, and suck on 3 to 5 Matlow’s peppermint hard candies a day. Does anyone feel like eating sugar triggers pain?

Nov 2, 2017 · Eye evisceration in Eye Conditions

Are there any people here who have experience with having their eye eviserated. I hope I’m wording that correctly. Next week I’m scheduled to have my left eye eviserated. Although I’ve been blind in that eye for years due to chonic secondary glaucoma and uveitis and knew this day was coming, I’m still nervous. I think communicating with others who have gone through it would help. I’m not getting a full eye replacement right now. He’s just going to put a white “ball” in there to hold the shape of the eye and I’ll leave it at that for now. I’m in my 70s and want to keep the cost down so thought I’d just go with an eye patch for the time being so people don’t have to look at a blank white false eye. The doctor said I could have a “lense” put on the “ball” at a later date if I wanted to.

Sep 13, 2016 · This Is A Confusing Place in Just Want to Talk

Just wanted to give you an example of non related e-mails. I just checked my e-mail and there’s a notice about a member by the name of clemlaa who commented on a book she read about diet in a forum titled Specific Carbohydrate Diet. News to me. I’ve never been to that discussion, I’ve never exchanged posts with a clemlaa…basically it’s just something out of the blue for no reason I can surmise. Found it especially surprising as I went into my settings yesterday and pretty much unfollowed everything. Thought I’d try just manually going in and checking forums at my leisure instead of being swamped with too much to have to deal with on a constant basis.