Support Groups

Prostate Cancer Support Group

Public Support Group
1,657 total results
Discussion
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Mar 20 7:16am
Discussion
PSA up at the 3 month point. Looking for guidance
Ok. So trying to get my brain wrapped around expectations for my Dr appt on Tuesday 12/17.I’d like to hear from people who had radiation...
Support Group: Prostate Cancer
Last active: Dec 17, 2024
Discussion
Recent PSMA PET does not detect cancer, what’s next?
I had a prostatectomy in May of 2016. Gleason of 7 = 4+3, psa of 10.5 . First post op psa was .01 and remained...
Support Group: Prostate Cancer
Last active: Apr 24 12:49pm
Discussion
Salvage radiation therapy with ADT
Anyone with thoughts about PSA results following this procedure? In my case my numbers have been 0.00 when should I considered to have a curable...
Support Group: Prostate Cancer
Last active: Mar 4 11:06am
Discussion
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Support Group: Prostate Cancer
Last active: Apr 20 8:24am
Discussion
BCR after RP inconsistent rise in PSA
I had a RP in January 2023. PSA was 35 at the time and I was stage T3b with Gleason 9 (4+5) and N1, as...
Support Group: Prostate Cancer
Last active: 6 days ago
Discussion
elimination of testosterone through ADT and aggressive behavior
I wanted to solicit your thoughts on something that has been on my mind regarding my treatment. I started Firmagon 2months ago, PSA went from...
Support Group: Prostate Cancer
Last active: Mar 5 3:35pm
Discussion
PSE test to inform continued ADT
I had SR to the prostate bed and surrounding lymph nodes last spring which was combined with first 6 months of Eligard followed by 12...
Support Group: Prostate Cancer
Last active: Mar 4 8:28am
Discussion
Considering stopping Eligard after first injection and radiation.
My special friend is considering stopping ADT after the first injection (6 months) and radiation treatment. Has anyone made this decision, and what are the...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
Discussion
PSA never reaching undetectable
My partner was diagnosed with PSA 92, stage 3a in Nov 2023. Started Orgovyx March of 2024, did 40 sessions of radiation, finishing in June...
Support Group: Prostate Cancer
Last active: Feb 25 1:50pm