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Prostate Cancer Support Group

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Discussion
Rising PSA post RARP + new pet scan results
I’m new here and I have greatly appreciated everyone’s input. My husband’s PSA has been rapidly rising since his RARP in early June. We knew...
Support Group: Prostate Cancer
Last active: Sep 25, 2025
Discussion
Osteopenia Supplements that work?
I had my first-ever bone density scan today, now at nine months on Orgovyx and after 44 weekday radiation treatments February-April. The evaluation indicates Osteopenia,...
Support Group: Prostate Cancer
Last active: Sep 25, 2025
Discussion
3 negative PSMA PET scans with PSA doubling every 4 weeks
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
Support Group: Prostate Cancer
Last active: Aug 25, 2025
Discussion
What is the thought process for this?
I'm one year post-Orgovyx and 18 months post SBRT radiation. My testosterone is 220 and has been dropping instead of climbing with my doctor thinking...
Support Group: Prostate Cancer
Last active: Jan 29 10:45am
Discussion
Deciding about 2-year ARPI (Xtandi) being added to lupron treatment
Seeing my oncologist today for the 6-month lupron injection. Radiation is scheduled for late October. The doctor says he recommends the ARPI because my recurrence...
Support Group: Prostate Cancer
Last active: Sep 23, 2025
Discussion
Guidance to help with ADT decision.
My dad is looking to me to help him understand treatment risks/tradeoffs. After reading posts, blogs, and studies, I am now looking for advice on...
Support Group: Prostate Cancer
Last active: Jan 23 12:15pm
Discussion
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
Support Group: Prostate Cancer
Last active: Aug 13, 2024
Discussion
How to release flatulence without releasing urine?
First of all, I want to say thank you to Mayo Clinic for this forum and all the members of this forum that provide valuable...
Support Group: Prostate Cancer
Last active: May 6, 2024
Discussion
Any other methods Better than PSA to monitor prostate cancer?
I've attached my PSA scores since they started saving in EPIC in 2000. While you can seen a marked increase around 2017, my Family Medicine...
Support Group: Prostate Cancer
Last active: Feb 8, 2025
Discussion
Alternate ADT drug shaking things up: Estrogen?
At my latest appointment with the oncologist who is managing my care during my 2 year ADT sentence, he said the prostate cancer specialists at...
Support Group: Prostate Cancer
Last active: Jan 4 3:38pm