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Prostate Cancer Support Group

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Discussion
Seeking your thoughts on PSA of .1 on Orgovyx and Nubeqa
Some of you might remember my sharing that my husband’s PSA kept rising after his prostatectomy, more positive lymph nodes were found by PSMA pet,...
Support Group: Prostate Cancer
Last active: Dec 7, 2025
Discussion
The long road
Diagnosed at 48. 14 needle biopsy, all 14 100%. Initial PSA 48. Gleason score 9. I wanted surgery. After 4 denials from cancer treatment centers...
Support Group: Prostate Cancer
Last active: Jun 30, 2024
Discussion
Difficulty In Deciding on IMRT or Proton Therapy
Hey all glad to find this postings and be in the group. Very helpful and comforting! I'm a 64 years old. Just diagnosed with prostate...
Support Group: Prostate Cancer
Last active: Feb 22, 2025
Discussion
Has anyone been prescribed hormone therapy prior to surgery?
My husband is at the decision stage between hormone therapy and radiation or surgery. Localized tumor based on PSMA PET, Gleason score 9(4+5) PSA 9.2,...
Support Group: Prostate Cancer
Last active: Jan 13, 2025
Discussion
After recurrence, what else besides radiation and 6 month Orgyvx (ADT)
I had RP in July 2013 with Gleason 9 at 53 years of age. Since then my PSA was always <.1 until Nov 2021 it...
Support Group: Prostate Cancer
Last active: Sep 5, 2022
Discussion
Looking for Recommendations for a Urologist Second Opinion
I was recently diagnosed with Gleason 4+3=7 prostate cancer, with "potential" extracapsular extension (ECE) with a PSA of approximately 3 and I'm 63 years of...
Support Group: Prostate Cancer
Last active: Sep 16, 2025
Discussion
What treatment options for paratracheal lymph nodes with BRCA2?
ADT finished in October 2024, and PSA was less than 0.1 until October 2024 when it came in at 0.1 and then has risen to...
Support Group: Prostate Cancer
Last active: Jan 16 8:53pm
Discussion
Weighing my surgery options (aka lost in the weeds)
Age 50, Gleason 7 (3+4), 6/12 cores, PSA 6.68, Decipher 0.56, PSMA negative for bone/lymph metastasis, RT not recommended (by surgeons and ROs) due to...
Support Group: Prostate Cancer
Last active: Apr 19, 2025
Discussion
What was your highest PSA and still have a clear PET/CT scan?
I just got the results from my most recent PET/CT scan; "There is no abnormal PSMA uptake to indicate recurrence or metastatic disease anywhere despite...
Support Group: Prostate Cancer
Last active: Jul 26, 2024
Discussion
IMRT Radiation and ADT
My husband Jeff was recently diagnosed with prostate cancer. He is 62 yo and mostly in good health- walks, runs, bikes, pickleball, lifts weights. He...
Support Group: Prostate Cancer
Last active: Jul 4, 2024