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Prostate Cancer Support Group

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Discussions (234)
Stage 4 PC
I am 72 years old, diagnosed with metastatic prostate cancer: 6/1/2026 PSA 13.4 10/1/2026 MRI revealed Locally invasive and metastatic PC PIRADS 5 3/2/2026 Gleason...
Support Group: Prostate Cancer
Last active: Jun 21 11:31am
Estradiol and ADT recovery
I'm now about 15 months past my last dose of Orgovyx. My testosterone recovery hasn't been great but there is some movement over my last...
Support Group: Prostate Cancer
Last active: Feb 20 10:54am
Inoperable prostate cancer for 5 yrs: Low energy and worried
My husband diagnosed with inoperable prostate cancer he is 74 and was diagnosed 5 years ago Gleeson 8, some lesions in bowl wall and lymph...
Support Group: Prostate Cancer
Last active: Dec 22, 2023
PSA post radiation: how to interpret?
PSA post radiation? The correct use of PSA is as a tracking / monitoring tool. Now, my docs put me on Lupron two months before...
Support Group: Prostate Cancer
Last active: Dec 6, 2023
Treatment Dogma - Aggressive is not the same as intelligent
In cancer care, “aggressive” is a word we wear like armor. It suggests boldness, urgency, and strength — the kind of approach that implies we’ve...
Support Group: Prostate Cancer
Last active: Jan 4 10:16pm
Prednisone tapering
I finished ADT on 12/21 and I’m having a difficult time tapering off of the prednisone I was given along side the Zytiga along with...
Support Group: Prostate Cancer
Last active: Feb 17, 2025
Walking a tightrope: Gleason 9 and bilateral kidney stones
I was diagnosed with Gleason 9 in August 2024, 6 cores negative, 1 core Gleason 7 (3+4), 3 cores Gleason 9 (4+5), 2 cores Gleason...
Support Group: Prostate Cancer
Last active: Nov 10, 2025
First Session of Radiation Called Off While on Radiation Table
Hello, My husband has Gleason 9, cribriform prostate cancer, with PTEN-loss, which appears contained in the prostate based on scans. The cancer is diffused with...
Support Group: Prostate Cancer
Last active: Jun 6 6:36pm
Has anyone experienced leg pain while taking Orgovyx?
I am 77 in good health except for PC, my PSA was 27.4, Gleason score 4+4=8, and decipher score was .84. I am into my...
Support Group: Prostate Cancer
Last active: Mar 28 7:42pm
Zero energy 3+ years after radiation and Firmagon for Stage 1 PC
Early diagnosis of Stage 1 PC in 2019. Cancer cells in 3 areas as determined by "12 section" biopsy, but absolutely no tumor formation. A...
Support Group: Prostate Cancer
Last active: Jan 23, 2024
Stopping Eligard early
I have advanced, aggressive, Gleason 9, Grade 5, Stage 4 prostate cancer. I went through radiation treatments and have been on both Lupron and Eligard...
Support Group: Prostate Cancer
Last active: Jun 12, 2023
Post-treatment update
It's been a year and two months since I started treatment (Gleason 7 4+3). I had three months of Casodex and Lupron with 5 sessions...
Support Group: Prostate Cancer
Last active: Jan 15 5:11pm
Shelf life of systemic therapy
After several rounds of cyberknife treatments failed to eliminate prostate cancer cells in my body, I was told that further radiation wasn't viable because of...
Support Group: Prostate Cancer
Last active: Apr 15, 2025
The right time to start radiation post RP with an increasing PSA?
I'm 57 years old and had a Robotic Radical Prostatectomy on 12/1/2022. Since then I've been diligent in my post operation blood work and PSA...
Support Group: Prostate Cancer
Last active: Jan 12 12:09pm
Has anyone else moved from Firmagon to Orgovyx?
I have stage 4 (oligometastatic) prostate cancer, and will be on ADT and androgen-reception inhibitors, basically, forever. I've been on monthly Firmagon (Degarelix) injections for...
Support Group: Prostate Cancer
Last active: Jun 13, 2025
Fact and fiction regarding prostate cancer? Fish oil, vaccines, etc.
Is any body taking fish or krill oil ? I’m seeing conflicting reports concerning prostate cancer.Also. Has anyone come down with prostate cancer since being...
Support Group: Prostate Cancer
Last active: Mar 8 3:07pm
Acceptance of Prostate Cancer and its side effects
These discussions are mostly devoted to the nuts and bolts of prostate cancer diagnosis and treatment, and rightly so. Those discussions are immensely helpful to...
Support Group: Prostate Cancer
Last active: Dec 3, 2024
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
Support Group: Prostate Cancer
Last active: Sep 8, 2025
Estradiol patch prescriptions
I am on Lupron, Zitiga, and now radiation for a Gleason score 8 prostate cancer. The cancer had spread to adjacent lymph nodes and one...
Support Group: Prostate Cancer
Last active: Mar 26 5:52pm
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Nov 5, 2025