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Prostate Cancer Support Group

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Discussions (193)
PSA of 4.1 when never previously higher than 1.0
My apologies for asking such a basic question in a community in which so many are courageously dealing with significant challenges. But I’m filled with...
Support Group: Prostate Cancer
Last active: Jul 9, 2024
Prostate calcifications and relationship to prostate cancer diagnosis?
Fifteen years (2010) ago proton radiation at Loma Linda Children's Hospital as it was named then. As most know, proton radiation began with children having...
Support Group: Prostate Cancer
Last active: Jan 23, 2025
How do you fire a doctor?
This is a serious question. Recently I drove 11 hours to Mayo, and I've decided to let them treat me from now on. (I was...
Support Group: Prostate Cancer
Last active: Apr 14, 2025
Treatment Options & A Mayo 2nd Opinion Questions
Radical Prostatectomy in 1998 - Gleason 6 - 2000 PSA was rising slowly & prostate bed radiation was performed. PSA dropped to 0.1 and remained...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
Gleason score 3+4 plus perineural invasion
Last year I had a 3+3 biopsy in one core but that was in a random core. This year the MRI found a new target...
Support Group: Prostate Cancer
Last active: Apr 21, 2025
Early mortality risk disclosures
This is from the Ancan.org weekly advanced prostate cancer newsletter, written by Rick Davis. It discusses how having your PSA rise, early after treatment, can...
Support Group: Prostate Cancer
Last active: Jun 29, 2025
What is the thought process for this?
I'm one year post-Orgovyx and 18 months post SBRT radiation. My testosterone is 220 and has been dropping instead of climbing with my doctor thinking...
Support Group: Prostate Cancer
Last active: Jan 29 10:45am
What is next after a final pathology report of T3bN0MX cancer stage ?
The final pathology report after my prostatet surgery last week uncovered a pT3bN0MX cancer stage. I believe it means the cancer has spread beyond the...
Support Group: Prostate Cancer
Last active: Sep 11, 2025
Radiation vs RARP for IDC prostate cancer with high Decipher?
70 years old, fit. PSA is 5 and slowly rising. Gleason 3+4. PIRADS 4. Localized. Clean PET. BUT, Biospy showed 6 positive cores - extensive...
Support Group: Prostate Cancer
Last active: Dec 3, 2025
SBRT Monotherapy (No ADT)
I am specifically interested in replies from those who were (a) younger than 70 when they had their SBRT 5-fraction/high dose before 2018, and (b)...
Support Group: Prostate Cancer
Last active: Jun 2, 2025
Prostate Cancer: Which Treatment to Choose?
I'm 84 years old. Recently diagnosed with Prostate Cancer as a result of psa rising to 7.06 since January. PSMA shows metastasized to lymph nodes...
Support Group: Prostate Cancer
Last active: Sep 24, 2023
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Support Group: Prostate Cancer
Last active: Jun 19, 2025
PCRI Conference interesting points made
Grade group, one HIGH volume likely to proceed to treatment. 5-10% of GG1 within 5 years before progression
Within 10 years 51% of Gleason 6 on...
Support Group: Prostate Cancer
Last active: Apr 3, 2025
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Nov 5, 2025
Rumination
I’m stage four but my oncologist is saying some positive things about my Outlook. Nevertheless, I’m in a very very bad funk right now after...
Support Group: Prostate Cancer
Last active: Sep 29, 2025
Deciding about 2-year ARPI (Xtandi) being added to lupron treatment
Seeing my oncologist today for the 6-month lupron injection. Radiation is scheduled for late October. The doctor says he recommends the ARPI because my recurrence...
Support Group: Prostate Cancer
Last active: Sep 23, 2025
Significant disagreement between 1st and 2nd opinions, what to do?
Advance apologies for the length of this post. I believe I am at a crossroads in my PCa journey and am soliciting opinions on how...
Support Group: Prostate Cancer
Last active: Jan 28, 2025
New PET scan results confused and a little scared
Hi everyone, So I just got results from a new PET scan that was done last Friday the 29th of Aug. Background had RARP last...
Support Group: Prostate Cancer
Last active: Sep 10, 2025
At what point do you start Pluvicto?
After the FDA just approved Pluvicto WITHOUT chemo, we're wondering if my husband would qualify for Pluvicto NOW? He's only done one dose of ADT...
Support Group: Prostate Cancer
Last active: Apr 13, 2025
B12 deficiency with mCRPC
87 year old husband was diagnosed with metastatic prostate cancer 2 years ago with a Gleason score of 9. He responded well to Lupron injections...
Support Group: Prostate Cancer
Last active: Aug 24, 2025