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Discussions (331)
PSA up at the 3 month point. Looking for guidance
Ok. So trying to get my brain wrapped around expectations for my Dr appt on Tuesday 12/17.I’d like to hear from people who had radiation...
PC Journey Info
PC in family history, monitoring PSAs since 2005. Results jumping around 2014-2024 based on medications, injuries, etc... March 2025 off ALL meds prior to testing....
PARP inhibitors or radiation: Any thoughts?
I have stage 4 PC, spread to lymph node and pelvis. Being treated with ADT and Nubeqa, started last September, having an MRI tomorrow to...
At what point was the PSA undetectable?
Last week my husband had his 4th chemo and has been on ADT both the shot and pills for several months. (Firmagon and Zytiga- he...
Weight gain
Hello everyone, I’m starting my ADT at the end of the week, I’m an active 73 years old I eat what I feel it’s a...
3rd time around. Now stage IVb: What are my treatment options?
In april of 2023 found that PC returned and has metastasized in pelvic area lymph nodes. In 2016 was diagnosed with PC gleason 4+4. Prostectomy...
PET Scan Lighting-up 4 Months after Treatment
Hi, I had a Mayo PET scan in January 2023 that showed a lymph node lighting up. I then started 18 months of ADT and...
At what point do you start Pluvicto?
After the FDA just approved Pluvicto WITHOUT chemo, we're wondering if my husband would qualify for Pluvicto NOW? He's only done one dose of ADT...
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Urine leakage during sexual activity
I had RP in March 2022, BCR in Sept 2022 and 28 SBRT treatments in Jan-Feb 2023 with ADT. Now that the ADT has left...
Recent PSA testing
My PSA has recently gone from 4 or 5 months at .04 A new test showed an uptick of .07 Still feel good Probably bc...
Stage 4: What are my options?
The VA used the terms metastasized, incurable and palliative at my latest appointment with these notes after a "PET PSMA demonstrated a tiny 4 mm...
After radiation: Any advice on next steps, what to expect next 12 mos?
I finished radiation treatment (45 low dose treatments over 9 weeks). ADT shot was in mid-June. Any advice on next steps, what to expect over...
Salvage radiation therapy with 6 months Eligard
I'm starting salvage radiation therapy with 6 month Eligard injection, My care provider is a bit vague about how long before starting radiotherapy I should...
How long after radiation treatment did you repeat the PSMA/PET?
How long after radiation treatment did you repeat the PSMA/PET? Does anyone know how long to wait for the PET after ADT?Thanks
How long can you be on Xtandi?
A doc at Mayo just informed me they want me to stay on Xtandi for 2 more years (I just started it), along with ADT....
A PSA question
I started Eligard in March this year (2025). PSA dropped from 10 to 0.6 a month later. Then in May it crept up to 0.7....
Darolutamide Impact on Testosterone Utilization
I did 13 months of ADT (Lupron injections) with darolutamide (Nubeqa) while doing chemo then radiation. Now I’m on darolutamide only. While my testosterone is...
Switching from Lupron to Orgovyx.
Doing 6 months ADT and considering switching from Lupron to Orgovyx for my second 3-month period. Have any of you done this? If so, I...
Hormone Treatment Experience
Had my first visit today at MD Anderson Proton Center and the Dr ordered AlteraAI to see if Hormone Therapy would help If so he...