2,833 total results
Discussions (202)
Adding a second medicine question
I am told by doctors they would like to add second medicine to Orgovyx which I have been doing ok on for about 2 1/2...
Bone Metastasis: What treatment did you have?
My last PET scan showed a "sclerotic lesion on my right acetabulum" measuring 1.5 x 1.5 cm (PSA was 0.18 and testosterone 37 at the...
6 months or 18-24 months ADT with salvage Radiotherapy
After RARP in 2019 my psa is back up to 0.26 from 0.02 post op. After PET/PSMA scan right common illiac node showed possible tumor...
Prednisone tapering
I finished ADT on 12/21 and I’m having a difficult time tapering off of the prednisone I was given along side the Zytiga along with...
Inoperable prostate cancer for 5 yrs: Low energy and worried
My husband diagnosed with inoperable prostate cancer he is 74 and was diagnosed 5 years ago Gleeson 8, some lesions in bowl wall and lymph...
PSA post radiation: how to interpret?
PSA post radiation? The correct use of PSA is as a tracking / monitoring tool. Now, my docs put me on Lupron two months before...
Treatment Dogma - Aggressive is not the same as intelligent
https://connect.mayoclinic.org/discussion/treatment-dogma-aggressive-is-not-the-same-as-intelligent/
In cancer care, “aggressive” is a word we wear like armor. It suggests boldness, urgency, and strength — the kind of approach that implies we’ve...
Walking a tightrope: Gleason 9 and bilateral kidney stones
https://connect.mayoclinic.org/discussion/walking-a-tightrope-gleason-9-and-bilateral-kidney-stones/
I was diagnosed with Gleason 9 in August 2024, 6 cores negative, 1 core Gleason 7 (3+4), 3 cores Gleason 9 (4+5), 2 cores Gleason...
Seeking Wisdom and Guidance
I will admit this is a group I had not been planning to join as a fit, 59-year old, but here we are. I have...
Zero energy 3+ years after radiation and Firmagon for Stage 1 PC
Early diagnosis of Stage 1 PC in 2019. Cancer cells in 3 areas as determined by "12 section" biopsy, but absolutely no tumor formation. A...
Stopping Eligard early
I have advanced, aggressive, Gleason 9, Grade 5, Stage 4 prostate cancer. I went through radiation treatments and have been on both Lupron and Eligard...
Post-treatment update
It's been a year and two months since I started treatment (Gleason 7 4+3). I had three months of Casodex and Lupron with 5 sessions...
Has anyone else moved from Firmagon to Orgovyx?
I have stage 4 (oligometastatic) prostate cancer, and will be on ADT and androgen-reception inhibitors, basically, forever. I've been on monthly Firmagon (Degarelix) injections for...
Shelf life of systemic therapy
After several rounds of cyberknife treatments failed to eliminate prostate cancer cells in my body, I was told that further radiation wasn't viable because of...
Acceptance of Prostate Cancer and its side effects
These discussions are mostly devoted to the nuts and bolts of prostate cancer diagnosis and treatment, and rightly so. Those discussions are immensely helpful to...
Endocrinology for ADT Side Effects
It's been 2 years since I completed a 4 months regimen of Orgovyx. I had been advised that Orgovyx was easier to recover from than...
Life after prostate cancer
I am new on here. Age 72. I had RARP in Jan 2020. surgery/biopsy revealed 1 out 12 samples with cancer. Gleason 3+3. Margins were...
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
Why does PSMA Pet Scan show no evidence of mets? Missing something?
-PSA of 7.-MRI May/2025 PI-RADS 5, suspicious for extraprostatic tumor extension, suggesting neurovascular bundle involvement. No lymphadenopathy.-Biopsy June/2025 - Right posterior medial Gleason 3+4, grade...
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
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