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Prostate Cancer Support Group

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Discussions (202)
Adding a second medicine question
I am told by doctors they would like to add second medicine to Orgovyx which I have been doing ok on for about 2 1/2...
Support Group: Prostate Cancer
Last active: Jul 19, 2025
Bone Metastasis: What treatment did you have?
My last PET scan showed a "sclerotic lesion on my right acetabulum" measuring 1.5 x 1.5 cm (PSA was 0.18 and testosterone 37 at the...
Support Group: Prostate Cancer
Last active: May 13, 2025
6 months or 18-24 months ADT with salvage Radiotherapy
After RARP in 2019 my psa is back up to 0.26 from 0.02 post op. After PET/PSMA scan right common illiac node showed possible tumor...
Support Group: Prostate Cancer
Last active: Oct 27, 2025
Prednisone tapering
I finished ADT on 12/21 and I’m having a difficult time tapering off of the prednisone I was given along side the Zytiga along with...
Support Group: Prostate Cancer
Last active: Feb 17, 2025
Inoperable prostate cancer for 5 yrs: Low energy and worried
My husband diagnosed with inoperable prostate cancer he is 74 and was diagnosed 5 years ago Gleeson 8, some lesions in bowl wall and lymph...
Support Group: Prostate Cancer
Last active: Dec 22, 2023
PSA post radiation: how to interpret?
PSA post radiation? The correct use of PSA is as a tracking / monitoring tool. Now, my docs put me on Lupron two months before...
Support Group: Prostate Cancer
Last active: Dec 6, 2023
Treatment Dogma - Aggressive is not the same as intelligent
In cancer care, “aggressive” is a word we wear like armor. It suggests boldness, urgency, and strength — the kind of approach that implies we’ve...
Support Group: Prostate Cancer
Last active: Jan 4 10:16pm
Walking a tightrope: Gleason 9 and bilateral kidney stones
I was diagnosed with Gleason 9 in August 2024, 6 cores negative, 1 core Gleason 7 (3+4), 3 cores Gleason 9 (4+5), 2 cores Gleason...
Support Group: Prostate Cancer
Last active: Nov 10, 2025
Seeking Wisdom and Guidance
I will admit this is a group I had not been planning to join as a fit, 59-year old, but here we are. I have...
Support Group: Prostate Cancer
Last active: Jan 3 1:59pm
Zero energy 3+ years after radiation and Firmagon for Stage 1 PC
Early diagnosis of Stage 1 PC in 2019. Cancer cells in 3 areas as determined by "12 section" biopsy, but absolutely no tumor formation. A...
Support Group: Prostate Cancer
Last active: Jan 23, 2024
Stopping Eligard early
I have advanced, aggressive, Gleason 9, Grade 5, Stage 4 prostate cancer. I went through radiation treatments and have been on both Lupron and Eligard...
Support Group: Prostate Cancer
Last active: Jun 12, 2023
Post-treatment update
It's been a year and two months since I started treatment (Gleason 7 4+3). I had three months of Casodex and Lupron with 5 sessions...
Support Group: Prostate Cancer
Last active: Jan 15 5:11pm
Has anyone else moved from Firmagon to Orgovyx?
I have stage 4 (oligometastatic) prostate cancer, and will be on ADT and androgen-reception inhibitors, basically, forever. I've been on monthly Firmagon (Degarelix) injections for...
Support Group: Prostate Cancer
Last active: Jun 13, 2025
Shelf life of systemic therapy
After several rounds of cyberknife treatments failed to eliminate prostate cancer cells in my body, I was told that further radiation wasn't viable because of...
Support Group: Prostate Cancer
Last active: Apr 15, 2025
Acceptance of Prostate Cancer and its side effects
These discussions are mostly devoted to the nuts and bolts of prostate cancer diagnosis and treatment, and rightly so. Those discussions are immensely helpful to...
Support Group: Prostate Cancer
Last active: Dec 3, 2024
Endocrinology for ADT Side Effects
It's been 2 years since I completed a 4 months regimen of Orgovyx. I had been advised that Orgovyx was easier to recover from than...
Support Group: Prostate Cancer
Last active: Dec 8, 2025
Life after prostate cancer
I am new on here. Age 72. I had RARP in Jan 2020. surgery/biopsy revealed 1 out 12 samples with cancer. Gleason 3+3. Margins were...
Support Group: Prostate Cancer
Last active: May 22, 2024
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
Support Group: Prostate Cancer
Last active: Sep 8, 2025
Why does PSMA Pet Scan show no evidence of mets? Missing something?
-PSA of 7.-MRI May/2025 PI-RADS 5, suspicious for extraprostatic tumor extension, suggesting neurovascular bundle involvement. No lymphadenopathy.-Biopsy June/2025 - Right posterior medial Gleason 3+4, grade...
Support Group: Prostate Cancer
Last active: Jan 3 5:12pm
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Nov 5, 2025