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Public Support Group 3,283 total results
Discussions (255)
How long before relapse occurs or ADT fails?
There seems different studies/opinions regarding how long treatment of high risk PC last without surgery lasts. In cases with radiotherapy, or without, with chemo or...
BCR after 5 years Prostatectomy now questions about SRT
This forum has been very helpful. I just discovered I have BCR after 5 years no levels of PSA tests. Had the Prostatectomy with little...
Guidance to help with ADT decision.
My dad is looking to me to help him understand treatment risks/tradeoffs. After reading posts, blogs, and studies, I am now looking for advice on...
6 months or 18-24 months ADT with salvage Radiotherapy
After RARP in 2019 my psa is back up to 0.26 from 0.02 post op. After PET/PSMA scan right common illiac node showed possible tumor...
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Anyone have severe bone (spine) loss with recurrence of PC?
Had RALP 1/2022, ADT, Lupron for 2 years and PSA 0 through last test 09/25. Now I have compression fractures in vertebrae T5, T7, &...
After recurrence, what else besides radiation and 6 month Orgyvx (ADT)
I had RP in July 2013 with Gleason 9 at 53 years of age. Since then my PSA was always <.1 until Nov 2021 it...
Gleason 6 But high decipher score.
Treatment suggestions for newly diagnosed 69-year-old Gleason 6 In 2 out of 15 Biopsy samples. Both malignant samples were in a small nodule. Had high...
PSA Persistence after RP and Salvage Radiation
I have not seen much information on PSA Persistence post RRP and Salvage EBRT. I think most biochemical recurrences occur over an extended period of...
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
BCR after RP inconsistent rise in PSA
I had a RP in January 2023. PSA was 35 at the time and I was stage T3b with Gleason 9 (4+5) and N1, as...
Salvage radiation therapy with 6 months Eligard
I'm starting salvage radiation therapy with 6 month Eligard injection, My care provider is a bit vague about how long before starting radiotherapy I should...
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Gleason 7 (4+3) radiation, but ADT also? Over treatment?
Hello,I will be 80 next August and apart from newly diagnosed PC am in good overall health. I have a diagnosis of Gleason 7 (4+3)...
Early mortality risk disclosures
This is from the Ancan.org weekly advanced prostate cancer newsletter, written by Rick Davis. It discusses how having your PSA rise, early after treatment, can...
How long after EBRT does the PSA bounce around?
Hello from Vancouver Island. I had a prostatectomy about three years ago and the PSA went down from 4.0 to about 0.03 after surgery. Within...
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
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