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Discussions (250)
After recurrence, what else besides radiation and 6 month Orgyvx (ADT)
I had RP in July 2013 with Gleason 9 at 53 years of age. Since then my PSA was always <.1 until Nov 2021 it...
Support Group: Prostate Cancer
Last active: Sep 5, 2022
Gleason 6 But high decipher score.
Treatment suggestions for newly diagnosed 69-year-old Gleason 6 In 2 out of 15 Biopsy samples. Both malignant samples were in a small nodule. Had high...
Support Group: Prostate Cancer
Last active: Dec 13, 2024
PSA Persistence after RP and Salvage Radiation
I have not seen much information on PSA Persistence post RRP and Salvage EBRT. I think most biochemical recurrences occur over an extended period of...
Support Group: Prostate Cancer
Last active: Dec 30, 2022
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18, 2024
Salvage radiation therapy with 6 months Eligard
I'm starting salvage radiation therapy with 6 month Eligard injection, My care provider is a bit vague about how long before starting radiotherapy I should...
Support Group: Prostate Cancer
Last active: Jul 27, 2023
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
BCR after RP inconsistent rise in PSA
I had a RP in January 2023. PSA was 35 at the time and I was stage T3b with Gleason 9 (4+5) and N1, as...
Support Group: Prostate Cancer
Last active: Apr 28, 2025
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Support Group: Prostate Cancer
Last active: Apr 20, 2025
Gleason 7 (4+3) radiation, but ADT also? Over treatment?
Hello,I will be 80 next August and apart from newly diagnosed PC am in good overall health. I have a diagnosis of Gleason 7 (4+3)...
Support Group: Prostate Cancer
Last active: Jun 12, 2025
Early mortality risk disclosures
This is from the Ancan.org weekly advanced prostate cancer newsletter, written by Rick Davis. It discusses how having your PSA rise, early after treatment, can...
Support Group: Prostate Cancer
Last active: Jun 29, 2025
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
Support Group: Prostate Cancer
Last active: Sep 8, 2025
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
Support Group: Prostate Cancer
Last active: Oct 16, 2025
How long after EBRT does the PSA bounce around?
Hello from Vancouver Island. I had a prostatectomy about three years ago and the PSA went down from 4.0 to about 0.03 after surgery. Within...
Support Group: Prostate Cancer
Last active: Dec 16, 2023
A different report: I can stop ADT
Hello; as I scanned the posts for today’s reading I thought it’s a good time to share my status. I just returned from my MO...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
Does age influence choice of radiation + ADT over srugery?
Age 77, cribriform 4+3 Gleason score, grade 4, PSA 4.3, Pet Scan no spread, Genetic Test, low risk. 16 core biopsy 4 positive. Would prefer...
Support Group: Prostate Cancer
Last active: Mar 11, 2025
T3b L1 Gleason 9 Question
So newly diagnosed as a Gleason 9, and one of the lymph nodes they took out during my RALP tested positive as well. ADT and...
Support Group: Prostate Cancer
Last active: Feb 11, 2025
ADT and Blood Lipids
Just got my blood test results from my PCP, which do not test for PSA and T - the oncology team handles that. In early...
Support Group: Prostate Cancer
Last active: Apr 11, 2025
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
Support Group: Prostate Cancer
Last active: Apr 16, 2025
Orgovyx - asking for advice
Hi everyone, I’m hoping to get some advice from anyone who’s currently taking Orgovyx. I had surgery to remove my prostate in January 2025, but...
Support Group: Prostate Cancer
Last active: Oct 6, 2025
Gleason 3+4 A.S. or treatment?
First off, thanks to everyone who participates in this forum. PC is a journey that is different for all of us. Information exchange is really...
Support Group: Prostate Cancer
Last active: Jan 13 12:14pm