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Prostate Cancer Support Group

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25 Fractions IMRT PROSTATE RADIATION Completed Yesterday
Iam so happy that I can stay home today! I went 25 times over 5 weeks. I finally "went along" with Oncologists insisting on IMRT....
Support Group: Prostate Cancer
Last active: Jan 26, 2025
Radiopharmaceutical treatment now instead of last resort.
What if you're 50 and want to give Pluvicto (or similar radiopharmaceutical) a try now? Why wait until using it as a last resort? Let's...
Support Group: Prostate Cancer
Last active: Mar 2 4:35pm
Has anyone heard of or participated in a trial for Debio 4228-201
They are offering me a trial for this ADT to testosterone blocker it’s a trial for to get the correct dosage for the extended treatment...
Support Group: Prostate Cancer
Last active: Aug 27, 2025
2.5 Yrs After Proton Rad PSA reached 1.05
Hematologist suggested orgovyx and zytyga, been on for 2-months PSA this week < .1, also previous psma/pet showed small lymph node metastasis, was going to...
Support Group: Prostate Cancer
Last active: Jul 14, 2025
Everything quit working
I have been taking nebequa, lupron and chemo for two years and all has quit working and PSA is back to 6.08 Now I guess...
Support Group: Prostate Cancer
Last active: Mar 20 12:24pm
Adding a second medicine question
I am told by doctors they would like to add second medicine to Orgovyx which I have been doing ok on for about 2 1/2...
Support Group: Prostate Cancer
Last active: Jul 19, 2025
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
Has anyone had to discontinue Zytiga due to side effects?
I’m 7 months into an 18 month treatment with ORGOVYX and Zytiga. Everything has been manageable until the last few weeks when I started to...
Support Group: Prostate Cancer
Last active: Mar 9 11:05am
Quandry on my chosen pathway
I was diagnosed with PC late Dec .2025 at Mayo, MN. 1 smaller lesion, PSMA shows no spread. I decided I would do radiation SBRT...
Support Group: Prostate Cancer
Last active: Mar 3 11:32am
Walking a tightrope: Gleason 9 and bilateral kidney stones
I was diagnosed with Gleason 9 in August 2024, 6 cores negative, 1 core Gleason 7 (3+4), 3 cores Gleason 9 (4+5), 2 cores Gleason...
Support Group: Prostate Cancer
Last active: Nov 10, 2025
Results from Orgovys
I have prostate cancer that has metastasized in my lymph system. After taking orgovyx for one month, my PSA has gone from 15 to 1.5....
Support Group: Prostate Cancer
Last active: Dec 18, 2025
Hypothyroidism: Could this be related to my treatment?
Brief summary :RP 9-21Persistent PSAEligard 12/23SR completed 5/24Switched to Orgovyx + Abiraterone + Prednisone 6-24, coming off treatment in 75 daysHad bloodwork yesterday for cardiologist...
Support Group: Prostate Cancer
Last active: Mar 21, 2025
SBRT versus IMRT for BCR after prostatectomy
I am 72 years old and had< .02 PSA for two years after my prostatectomy. My PSA went up to .05 then jumped to .15....
Support Group: Prostate Cancer
Last active: Jan 21 1:52pm
New here! 4 months into my cancer journey.....
I have a Gleason score of 8(4+4). My PSA was 4-5 for several years then took off earlier this past spring to 16. PET scan...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
PSA now .04. What might be next steps?
My husband has now been taking Orgovyx and Nubeqa for five months. His post-prostatectomy persistent PSA has dropped from 4.7 to .04. Before the medications...
Support Group: Prostate Cancer
Last active: Feb 20 7:11pm
Anyone here after ADT undergone TRT
I had SBRT radiation treatment and stopped Orgovyx after 12 months. After 2 1/2 months my T went up to 65 from a low of...
Support Group: Prostate Cancer
Last active: Aug 13, 2025
Preparing for ADT + radiation: What are the do's and don'ts?
Started Orgovyx 01/19/26. Appointment for Fiducial Marker & Barrigel 02/19. Then onto RT. Anything I should or should not be doing in the interim?I'm 67,...
Support Group: Prostate Cancer
Last active: Jan 30 12:45pm
Can anyone share their experience with ProACT (an AUS)?
My 71 year old husband had prostatectomy surgery in August 2023 followed by 6 weeks of radiation therapy which finished the end of January this...
Support Group: Prostate Cancer
Last active: 6 days ago
Hormone Therapy
I am getting ready to start hormone therapy with orgovyx and have read that it can cause brain fog. Can anyone who has experienced this...
Support Group: Prostate Cancer
Last active: Aug 1, 2025