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Prostate Cancer Support Group

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25 Fractions IMRT PROSTATE RADIATION Completed Yesterday
Iam so happy that I can stay home today! I went 25 times over 5 weeks. I finally "went along" with Oncologists insisting on IMRT....
Support Group: Prostate Cancer
Last active: Jan 26, 2025
2.5 Yrs After Proton Rad PSA reached 1.05
Hematologist suggested orgovyx and zytyga, been on for 2-months PSA this week < .1, also previous psma/pet showed small lymph node metastasis, was going to...
Support Group: Prostate Cancer
Last active: Jul 14, 2025
Is it ok to take Viagra while on ADT? Alcohol?
Started ADT- Orgovyx 01/19/26, scheduled for Fiducial Markers & Barrigel 02/19, waiting on start date for Rad.1. Was wondering about drinking alcohol while on ADT2....
Support Group: Prostate Cancer
Last active: Feb 3 7:30pm
Has anyone heard of or participated in a trial for Debio 4228-201
They are offering me a trial for this ADT to testosterone blocker it’s a trial for to get the correct dosage for the extended treatment...
Support Group: Prostate Cancer
Last active: Aug 27, 2025
Has anyone had to discontinue Zytiga due to side effects?
I’m 7 months into an 18 month treatment with ORGOVYX and Zytiga. Everything has been manageable until the last few weeks when I started to...
Support Group: Prostate Cancer
Last active: Mar 9 11:05am
Adding a second medicine question
I am told by doctors they would like to add second medicine to Orgovyx which I have been doing ok on for about 2 1/2...
Support Group: Prostate Cancer
Last active: Jul 19, 2025
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
Quandry on my chosen pathway
I was diagnosed with PC late Dec .2025 at Mayo, MN. 1 smaller lesion, PSMA shows no spread. I decided I would do radiation SBRT...
Support Group: Prostate Cancer
Last active: Mar 3 11:32am
Walking a tightrope: Gleason 9 and bilateral kidney stones
I was diagnosed with Gleason 9 in August 2024, 6 cores negative, 1 core Gleason 7 (3+4), 3 cores Gleason 9 (4+5), 2 cores Gleason...
Support Group: Prostate Cancer
Last active: Nov 10, 2025
Hypothyroidism: Could this be related to my treatment?
Brief summary :RP 9-21Persistent PSAEligard 12/23SR completed 5/24Switched to Orgovyx + Abiraterone + Prednisone 6-24, coming off treatment in 75 daysHad bloodwork yesterday for cardiologist...
Support Group: Prostate Cancer
Last active: Mar 21, 2025
Results from Orgovys
I have prostate cancer that has metastasized in my lymph system. After taking orgovyx for one month, my PSA has gone from 15 to 1.5....
Support Group: Prostate Cancer
Last active: Dec 18, 2025
New here! 4 months into my cancer journey.....
I have a Gleason score of 8(4+4). My PSA was 4-5 for several years then took off earlier this past spring to 16. PET scan...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
SBRT versus IMRT for BCR after prostatectomy
I am 72 years old and had< .02 PSA for two years after my prostatectomy. My PSA went up to .05 then jumped to .15....
Support Group: Prostate Cancer
Last active: Jan 21 1:52pm
PSA now .04. What might be next steps?
My husband has now been taking Orgovyx and Nubeqa for five months. His post-prostatectomy persistent PSA has dropped from 4.7 to .04. Before the medications...
Support Group: Prostate Cancer
Last active: Feb 20 7:11pm
Anyone here after ADT undergone TRT
I had SBRT radiation treatment and stopped Orgovyx after 12 months. After 2 1/2 months my T went up to 65 from a low of...
Support Group: Prostate Cancer
Last active: Aug 13, 2025
Can anyone share their experience with ProACT (an AUS)?
My 71 year old husband had prostatectomy surgery in August 2023 followed by 6 weeks of radiation therapy which finished the end of January this...
Support Group: Prostate Cancer
Last active: 3 days ago
Hormone Therapy
I am getting ready to start hormone therapy with orgovyx and have read that it can cause brain fog. Can anyone who has experienced this...
Support Group: Prostate Cancer
Last active: Aug 1, 2025
Preparing for ADT + radiation: What are the do's and don'ts?
Started Orgovyx 01/19/26. Appointment for Fiducial Marker & Barrigel 02/19. Then onto RT. Anything I should or should not be doing in the interim?I'm 67,...
Support Group: Prostate Cancer
Last active: Jan 30 12:45pm
Quick ADT Question
From your experience and understanding from your doctors, does the likelihood of castrate resistance increase the longer you're on ADT? If CR develops, what are...
Support Group: Prostate Cancer
Last active: Jun 18, 2025