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Prostate Cancer Support Group

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Discussions (194)
How to interpret PSA
A little background. GS 8, stage pT3b. RP in September 21, SRT in Spring of 2024. 18 months ADT including 12 months of Abiraterone ending...
Support Group: Prostate Cancer
Last active: Aug 8 8:51am
Orgovyx before surgery
I am scheduled for RARP 4/3/2025. I am on Orgovyx for 3 months prior to this as a way to "shrink the tumor." The ca...
Support Group: Prostate Cancer
Last active: Feb 12 8:04am
PSA, cancer and life insurance
Hi Have Gleason 6 stage 1 prostate cancer. Have MRI set for sept and Psa test. They want do 3 months after my Turp surgery....
Support Group: Prostate Cancer
Last active: Feb 23 8:43am
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Support Group: Prostate Cancer
Last active: Sep 9 8:27pm
Looking for Recommendations for a Urologist Second Opinion
I was recently diagnosed with Gleason 4+3=7 prostate cancer, with "potential" extracapsular extension (ECE) with a PSA of approximately 3 and I'm 63 years of...
Support Group: Prostate Cancer
Last active: 7 hours ago
RARP Pathology II: Looking for direction
Ok. Quick summary is I was diagnosed this year with PC. May 12 had RARP. Post surgery doc (extremely well qualified DP surgeon and head...
Support Group: Prostate Cancer
Last active: Jun 27 3:04pm
Gleason7(3+4) - treatment options recommendation
Got recently diagnosed with Gleason group 2, 7(3+4). Was in state of shock to know about the cancer. I’m 56 year old and fortunately I’m...
Support Group: Prostate Cancer
Last active: Oct 7, 2024
New here! 4 months into my cancer journey.....
I have a Gleason score of 8(4+4). My PSA was 4-5 for several years then took off earlier this past spring to 16. PET scan...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Chemotherapy an option for prostate cancer?
Initial blood test returned PSA 49.9. 21 cores taken at biopsy; 17 were Gleason score 4+5=9, 2 were 4+3=7 and 2 were benign. I was...
Support Group: Prostate Cancer
Last active: Oct 28, 2022
The hypochondria cycle
This happened to me today briefly with my left collarbone — I convinced myself that it was sticking out slightly further than my right collarbone:...
Support Group: Prostate Cancer
Last active: Aug 24, 2024
BCR Post Prostate Robotic Surgery over 3 years?
I am fortunate enough to have had my prostate removed over 3 years ago and remain USPSA < 0.01 (undetectable). I am wondering how common...
Support Group: Prostate Cancer
Last active: Jan 11, 2024
Can Prostate Cancer "Take a New Trajectory"?
Hello, forum friends. I know y'all are not doctors but I've been on this forum long enough to appreciate your knowledge gained from your experiences....
Support Group: Prostate Cancer
Last active: Aug 29 6:50am
Knowledge Is Power
Don't believe me? Ask Google, they became quite powerful peddling knowledge. I see some recurring lines of questions and concerns on here, I thought putting...
Support Group: Prostate Cancer
Last active: Jun 27 11:25am
Concerned procrastinating will affect future prognosis
After RP April 2019 Gleason 9 negative margins pt3a lymph nodes clear, BCR aug 2022 confirmed pet positive lymph node (SUV 1.9) PSA 0.22 was...
Support Group: Prostate Cancer
Last active: Jun 23, 2023
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Zytiga and Lupron Shot
My 89-year-old father was on Orgovx but his PSA went up so they started him on 4 250mg per day along with a prednisone pill...
Support Group: Prostate Cancer
Last active: Jul 15 2:31pm
ADT and Castrate Resistance
Diagnosed Nov 2021. Gleason 9, Decipher .99, stage 4a (spread to seminal vesticles and 1 of 12 lymph nodes tested). I had prostatectomy in January...
Support Group: Prostate Cancer
Last active: Aug 6 3:51pm
New to the brotherhood, is my event timeline reasonable?
Wish I had found this group much earlier, but thankful to have eventually found you all shortly after my RALP on 8/14/2025. My surgeon is...
Support Group: Prostate Cancer
Last active: Sep 5 8:08am
Has anyone been prescribed hormone therapy prior to surgery?
My husband is at the decision stage between hormone therapy and radiation or surgery. Localized tumor based on PSMA PET, Gleason score 9(4+5) PSA 9.2,...
Support Group: Prostate Cancer
Last active: Jan 13 6:18pm
Long-term lodging options in Rochester while in cancer treatment
Hello, we are traveling to Rochester from North Carolina for my husbands radiation treatment for 7 weeks. This diagnosis has thrown us for a loop...
Support Group: Visiting Mayo Clinic
Last active: Jun 11, 2023