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Prostate Cancer Support Group

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Discussions (192)
Treatment Path with Simultaneous Radiation, HT and Chemo
After a PSA of 37 which indicated a PSA doubling in 6 months, an MRI with two PIRAD 5 tumors in my prostate, a biopsy...
Support Group: Prostate Cancer
Last active: May 3, 2024
PC Journey Info
PC in family history, monitoring PSAs since 2005. Results jumping around 2014-2024 based on medications, injuries, etc... March 2025 off ALL meds prior to testing....
Support Group: Prostate Cancer
Last active: Aug 13, 2025
Hormone Treatment Experience
Had my first visit today at MD Anderson Proton Center and the Dr ordered AlteraAI to see if Hormone Therapy would help If so he...
Support Group: Prostate Cancer
Last active: Jul 22, 2025
My Active Surveillance Journey
This will be a new experience for me on this 13+ year prostate cancer journey —> Tonight (July 30th) at 7:00 (ET), I’ll be presenting...
Support Group: Prostate Cancer
Last active: Aug 1, 2025
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
Support Group: Prostate Cancer
Last active: Oct 16, 2025
When does Mayo stop collecting your PSA?
I got proton treatment in 2019 at PHX, and just got my latest PSA, 0.2 down from 11.0 when I was diagnosed. For several years...
Support Group: Prostate Cancer
Last active: Jan 28, 2025
Burning While Urinating
Had 7 proton prostrate treatments and am going through quite a bit of pain burning when urinating. Tried AZO not much help. Will try tonight...
Support Group: Prostate Cancer
Last active: Oct 13, 2025
Rising PSA's after treatment - an answer
First let me reintroduce myself. I'm one of the grade 10's. An aggressive 10 at that so I have to be on top of things...
Support Group: Prostate Cancer
Last active: Jan 11, 2024
Side effects and PSA after photon radiation.
I would like to hear from people that have had photon radiation similar to me, total 7000 Cgy dosed at 28 sessions of 250 Cgy....
Support Group: Prostate Cancer
Last active: Jun 12 11:17am
How quickly do you recover 'yourself’ after stopping Orgovyx?
Started Orgovyx Jan ‘25. Have SBRT Proton mid-September ‘25. Everything going reasonably well. I am planning a trip to France May 25. Was thinking of...
Support Group: Prostate Cancer
Last active: Mar 1 7:48pm
Hyperbaric treatment to help with recovery
I had my last proton theraphy in December of 2023. I have been doing o.k. No side effects, except ED. I urinated blood clots on...
Support Group: Prostate Cancer
Last active: Mar 16 8:36am
IRE for biorecurrence of PC confined to prostate—any thoughts?
My lesion is right anterior mid-gland, a biorecurrence after Proton therapy at JH 5 years ago. Current biopsy and PSMA/PET showed no spread. My Gleason...
Support Group: Prostate Cancer
Last active: Feb 7 2:41pm
Myrbetriq for overactive bladder.
After my Proton Beam radiation treatment, I experienced an overactive bladder which cause urine leakage throughout the day. Just washing my hands can cause me...
Support Group: Prostate Cancer
Last active: May 29 12:16pm
Proctitis from radiation: Is your Dr addressing this with you?
I’m seeing more reports of Proctitis or rectal bleeding . This is from RadiationDr Schol of PCRI suggests Drs use Spacor or HydroGel to protect...
Support Group: Prostate Cancer
Last active: Feb 4, 2025
Protein intake and ADT
One of the side effects of ADT is muscle loss. I start ADT on May 13. Shortly after I will receive 44 fractions of proton...
Support Group: Prostate Cancer
Last active: Apr 28, 2024
newly diagnosed prostate cancer and nonsurgical treatment options
Recently diagnosed with prostate cancer with biopsy Gleason 6, psa less than 4 and positive MRI. Exploring treatment options that are effective and planning on...
Support Group: Prostate Cancer
Last active: Aug 13, 2025
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
Support Group: Prostate Cancer
Last active: Aug 13, 2024
Penile Clamp Bleeding
Has anyone had this experience? Last week prior to my 7th Proton Prostrate Radiation treatment the techs asked me to use a penile clamp since...
Support Group: Prostate Cancer
Last active: Oct 13, 2025
Supplies recommendations post prostatectomy
I was recently diagnosed with mid grade prostate cancer (Gleason 4+3). I was given option of either Proton Beam+Hormone treatment or nerve sparing prostatectomy. I’m...
Support Group: Prostate Cancer
Last active: Mar 13, 2025
Are you experiencing dry orgasm after prostate cancer treatments?
For me this is a very embarassing question and subject. I think MCC is a great place to ask.I have seen some past post but...
Support Group: Prostate Cancer
Last active: Jun 23 3:56pm