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Prostate Cancer Support Group

Public Support Group
2,296 total results
Discussions (187)
Advanced Prostate Cancer
I had prostatectomy in 2008. In October 2022, my PSA was 82.0. A second PSA test was 89.0. Then, I had a PSMA/PET Scan. This...
Support Group: Prostate Cancer
Last active: Feb 28, 2023
Pressured by oncologist
Recently diagnosed: 3+4/7. Suspicious for intraductal, perineural invasion, cribriform decipher .52. Age 66 - healthy & active. Urologist referred me to local cancer treatment facility....
Support Group: Prostate Cancer
Last active: Mar 18 5:25pm
Who prescribes ADT?
I’m working with Cleveland clinic and went to Mayo Jax last week to start the 2nd opinion process. I’m working on getting all my scans...
Support Group: Prostate Cancer
Last active: Feb 25 7:21am
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
BCR Prostate cancer. Need Opinions
Hi thanks for reading. Here is my story: Grade 1 Gleason 6. PC doubling time 67 months. 2003 Radical Proctectomy. For over 10 years my...
Support Group: Prostate Cancer
Last active: Mar 9 3:05pm
PC journey
: In July 2024, I was diagnosed with aggressive prostate cancer after experiencing leg pain, weight loss, nocturia, and a PSA of 62. A biopsy...
Support Group: Prostate Cancer
Last active: May 28 6:18am
PSE Test for Prostate Cancer Before an MRI and for Re-Occurrence
I had a discussion with a SVP at Oxford Biodynamics last night about the accuracy of their PSE test for both potentially new prostate cancer...
Support Group: Prostate Cancer
Last active: Nov 15, 2024
Weighing my surgery options (aka lost in the weeds)
Age 50, Gleason 7 (3+4), 6/12 cores, PSA 6.68, Decipher 0.56, PSMA negative for bone/lymph metastasis, RT not recommended (by surgeons and ROs) due to...
Support Group: Prostate Cancer
Last active: Apr 19 7:33am
Prostate Cancer: Which Treatment to Choose?
I'm 84 years old. Recently diagnosed with Prostate Cancer as a result of psa rising to 7.06 since January. PSMA shows metastasized to lymph nodes...
Support Group: Prostate Cancer
Last active: Sep 24, 2023
Typical Treatment Option Question
My recent biopsy revealed Gleason 9. No lymph node involvement or bone. CT scan was clear for chest, abdomen, and pelvis. No PSMA done. There...
Support Group: Prostate Cancer
Last active: Feb 17 11:22am
The long road
Diagnosed at 48. 14 needle biopsy, all 14 100%. Initial PSA 48. Gleason score 9. I wanted surgery. After 4 denials from cancer treatment centers...
Support Group: Prostate Cancer
Last active: Jun 30, 2024
Final Diagnosis after Radical Prostatectomy- Looking for suggestions
Friends I elected to have a RP on 1/27/25. My Gleason score pre-op was 8. My PSMA Scan was clear. I just received my results...
Support Group: Prostate Cancer
Last active: Feb 4 4:44pm
Difficulty In Deciding on IMRT or Proton Therapy
Hey all glad to find this postings and be in the group. Very helpful and comforting! I'm a 64 years old. Just diagnosed with prostate...
Support Group: Prostate Cancer
Last active: Feb 22 8:48pm
Why is volume of the cancer not used?
Compare two situations: * One has a 3+4 lesion at 2.1 cc of total volume, the 4 at 49% and the 3 at 51%. So...
Support Group: Prostate Cancer
Last active: Sep 22, 2023
Has anyone been prescribed hormone therapy prior to surgery?
My husband is at the decision stage between hormone therapy and radiation or surgery. Localized tumor based on PSMA PET, Gleason score 9(4+5) PSA 9.2,...
Support Group: Prostate Cancer
Last active: Jan 13 6:18pm
Low fiber diet for salvage RT to pelvic lymph node basin questions
Hi all. I’m hoping to hear from fellow PCa patients who endured a low fiber diet and can share ideas of what they ate while...
Support Group: Prostate Cancer
Last active: May 26 8:12am
Recurrence after brachytherapy - looking for the best option
Looks like prostate cancer recurrence is now suspected but not yet confirmed. My original diagnosis - G7 4+3 PSA7.6 in May 2019. Treated with low...
Support Group: Prostate Cancer
Last active: May 6 3:09pm
SBRT on T8 Only vs Lower Dose Pluvicto and ADT
I am a Care Partner for husband whom has Aphasia from 2 stroke 14 years ago. He is past the Medicare full retirement age. Diagnosed...
Support Group: Prostate Cancer
Last active: Apr 25 6:20am
Do I need find a medical oncologist following proton therapy?
I was diagnosed with two Gleason score 8 prostate adenocarcinomas and one with a score of 7, measuring 7 mm, 4 mm, and 1 mm...
Support Group: Prostate Cancer
Last active: May 20 10:12am
Surgeon Experience for Gleason 8
Despite doing yearly PSA tests for the last 24 years, DREs whenever recommended by my primary care doctor, and visits to urologists in centers of...
Support Group: Prostate Cancer
Last active: Mar 18 3:36pm