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Prostate Cancer Support Group

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Discussions (202)
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
Gleason 8. High risk. Prostate swelling-cancer is contained for now.
Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...
Support Group: Prostate Cancer
Last active: May 11, 2023
Fatigue after Eligard and proton Beam
In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have...
Support Group: Prostate Cancer
Last active: Aug 3, 2021
Starting TRT now.
I'm 75 now. My prostate was removed in 2021. The cancer spread to my T3 vertebrae. That was treated with radiation. I was put on...
Support Group: Prostate Cancer
Last active: Oct 4, 2024
Estradiol patch prescriptions
I am on Lupron, Zitiga, and now radiation for a Gleason score 8 prostate cancer. The cancer had spread to adjacent lymph nodes and one...
Support Group: Prostate Cancer
Last active: 2 days ago
Advice on Penis pumps
I am 4 months post prostate surgery and soon to start radiation since some cancer still evident. The mental stress of cancer is bad enough...
Support Group: Prostate Cancer
Last active: Feb 8, 2025
MRI guided SBRT. Where is it offered and best radiation oncologist?
Has anyone had MRI guided SBRT outside of the clinical trials. I don't mind participating in a trial, but I can't find an open one....
Support Group: Prostate Cancer
Last active: Dec 15, 2023
Masturbation post prostatectomy and radiation. Will it affect PSA?
Prostatectomy 12 years ago, and maintained non detectable PSA. recent PSA in 2024 rise rise to .16 and had 37 bouts of salvage radiation. PSA...
Support Group: Prostate Cancer
Last active: Sep 25, 2025
Lupron and Nubeqa (darolutamide): Anyone on this protocol?
I have advanced PC with metastasis in the lymph nodes and pelvis. Gleason 6-9 and PSA>20. Began with 3-month Lupron injection. Began Darolutamide (Nubeqa) at...
Support Group: Prostate Cancer
Last active: Jul 27, 2024
Continuing progress report 2 year mark
4th and final 6 month post. Background review Original diagnosis was 14.7 PSA and 8 Gleason score or "intermediate high risk". My radiologist extended the...
Support Group: Prostate Cancer
Last active: Oct 9, 2025
Has anyone experienced leg pain while taking Orgovyx?
I am 77 in good health except for PC, my PSA was 27.4, Gleason score 4+4=8, and decipher score was .84. I am into my...
Support Group: Prostate Cancer
Last active: 10 hours ago
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: Sep 21, 2025
Defeating Prostate Cancer
Diagnosed @age 76 PSA 20 Gleeson Score 9 all the urologists wanted to take it out.After interviewing 12 men who had the cut done It...
Support Group: Prostate Cancer
Last active: Jan 31, 2023
Masturbation (ejaculation) dilemma
I am new to the group and a new patient with PSA/PCa findings. During my annual physical, we discovered elevated PSA - doubling from the...
Support Group: Prostate Cancer
Last active: Aug 21, 2025
ADT/ARI treatment - 1 month in
mCSPC - Gleason 9 (5+4) - lymph and bone metastasis. Treatment plan is ADT/ARI (Orgovyx/Nubequa) for 3-4 months then IMRT x 20. First blood work...
Support Group: Prostate Cancer
Last active: Aug 26, 2025
Hot Flashes and Symptoms
This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently....
Support Group: Prostate Cancer
Last active: Aug 12, 2024
Have erection but can't have an orgasm
71, SBRT completed last July, 4 months of Orgovyx. Fortunately, PSA remains undetectable. Testosterone back to my normal limits. Using Trimix now and I can...
Support Group: Prostate Cancer
Last active: Jan 26, 2025
Blood sugar levels, GLP-1 agonists, weight gain and cancer cell growth
I listened to a podcast this morning, where “sugar” was discussed as an accelerator for cancer cell growth. Turns out, it does, but not for...
Support Group: Prostate Cancer
Last active: Dec 23, 2024
Why isn't hormone therapy used in all prostate cancers?
An observation and insightful comment by one group member here: "Lupron/Eligard both shrink the prostate and stops the production of testosterone which feeds the growth...
Support Group: Prostate Cancer
Last active: Apr 5, 2023