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Prostate Cancer Support Group

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Discussions (320)
Xgeva (denosumab): What side effects and how do you manage them?
My 89-year-old dad was diagnosed in Nov, 2024 with stage 4 prostate that has advanced to his bones, mostly all over skeleton. He has been...
Support Group: Prostate Cancer
Last active: Jun 19 4:41pm
Testosterone: Is everyone's level in the low numbers?
Recap, I have stage 4 Metastasized to the bone. 18 months in. Had chemo, get Firmagon monthly, Xgeva quarterly, take Abiraterone and Prednisone daily. There...
Support Group: Prostate Cancer
Last active: Sep 25, 2024
Is PSA rise inevitable after hormone therapy?
In 2024 I had a prostatectomy & PSA rose, am a Gleason 9, stage 4. PSMA detected lung nodules (only area) that disappeared after Eligard...
Support Group: Prostate Cancer
Last active: Oct 22, 2025
Being the caregiver
I'm about to go to a different city and take care of my mom for a few days as she recovers from a serious illness...
Support Group: Prostate Cancer
Last active: Sep 19, 2024
Does Chemo work? Is it worth it?
Hi,After a 1 1/2 year on Apalutamide and Eligard, PSA is up to 22 now.Oncologist says Chemo. Does it work? Does Cancer go in to...
Support Group: Prostate Cancer
Last active: Feb 16, 2025
PARP inhibitors or radiation: Any thoughts?
I have stage 4 PC, spread to lymph node and pelvis. Being treated with ADT and Nubeqa, started last September, having an MRI tomorrow to...
Support Group: Prostate Cancer
Last active: Jan 19, 2025
Anyone had low-dosage docetaxel? When does the fatigue end?
Hi Everyone,My husband had a spinal cord tumor removed at T4. He has Stage 4 prostate cancer since 2023. Apalutamide wasn't working anymore, and he...
Support Group: Prostate Cancer
Last active: Feb 16 1:21pm
Eligard for Prostate Cancer with Parkinsons (negative side effects)
Hello, I'm a Stage 4 Prostate Cancer patient in my 70s. My oncologist has me on an aggressive, targeted, iodine seed therapy treatment that he...
Support Group: Prostate Cancer
Last active: Mar 24, 2025
If and when to have the HoLEP procedure?
I'm 82. Stage 4 PC (Gleason 3+4, and one local lymph node). WITH a 100 cc prostate. Been on Orgovyx for 2.5 months. Up 4...
Support Group: Prostate Cancer
Last active: Aug 8 6:03pm
Side effects after stopping Eligard
I have stage 4, advanced, aggressive, Gleason 9, Grade 5 Prostate Cancer. One year ago, I went through radiation and started hormonal therapy, which brought...
Support Group: Prostate Cancer
Last active: Mar 7 1:43pm
Oncologist Visit Tomorrow - Need advice
Background...I'm 55 with stage 4 metastatic prostate cancer. Diagnosed November 2025 with Gleason 9 and cancer in my prostate, bones, lymph nodes, and a small...
Support Group: Prostate Cancer
Last active: Aug 31 8:09pm
Chemo and hormone therapy - effects on thyroid
My husband is responding well to triple therapy for his stage 4 prostate cancer. 5 of 6 rounds of chemo done! Before this last round,...
Support Group: Prostate Cancer
Last active: Jul 13 3:23pm
Chemotherapy: When is it recommended for prostate cancer?
My husband's PSA has been climbing and climbing and is now at 40.The Oncologist was talking about starting Chemo at Christmas, but then they did...
Support Group: Prostate Cancer
Last active: May 20, 2025
Husband disgnosed stage 1: Should he wait 5 months for second opinion?
My husband was just diagnosed with prostate cancer grade 2, 3+4=7, stage T1c. PSA 5.7. He wants a second opinion, but he can’t get in...
Support Group: Prostate Cancer
Last active: Aug 26 7:44pm
Have to share this: Dealing with the emotional side of ADT
Diagnosis of stage 4 prostate cancer, July 2024. Currently being treated with ADT: Triptorelin, and Nubeqa (Darolutamide). Cancer has responded, PSA dropped from 62 to...
Support Group: Prostate Cancer
Last active: Jan 15, 2025
In praise of Orgovyx
I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over...
Support Group: Prostate Cancer
Last active: Dec 20, 2025
Has anyone had severe side effects from abiraterone (Zytiga)?
I was diagnosed with stage 4 prostate cancer at the Cleveland Clinic in February. Received a 6 months dose of Leuprolide (Lupron) on March 5th...
Support Group: Prostate Cancer
Last active: May 14, 2025
What a long, strange journey it’s been!
What a long, strange journey it’s been! I had a non-typical diagnosis of stage 4 PC Gleason score of 8 (4 + 4) in January...
Support Group: Prostate Cancer
Last active: May 6 9:09am
Anyone on Lupron, Enzalutamide + Zolodrondric Acid? Side effects?
I have stage 4 prostate cancer diagnosed in February 2019. It is now known to be in my spine, hips, sternum and left shoulder. I...
Support Group: Prostate Cancer
Last active: Dec 1, 2023
Would like to pause Lupron injections. Taking Nubeqa and Lupron.
Taking Lupron for 1 year. PSA undectable for 11 months. Also taking Nubeqa for 4 months. Stopped Erleada because of skin rash after 6 months....
Support Group: Prostate Cancer
Last active: Apr 18 12:44pm