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Prostate Cancer Support Group

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Discussions (132)
Information on limiting ADT
Anyone wishing to get a better handle on whether and when (if ever) he should use ADT, I suggest considering enrolling this clinical trial.NCT05588128 It's...
Support Group: Prostate Cancer
Last active: Aug 23, 2025
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Nov 5, 2025
Anyone opted for radiation for localized high risk cancer under 55?
Has anyone opted for radiation therapy with localized high risk prostate cancer at a relatively young age? Say, before 55? Did you have recurrences?
Support Group: Prostate Cancer
Last active: Apr 8, 2025
Advice from the Trenches for New Members of this Cursed Club
So, you’ve just heard the words: prostate cancer. Welcome to the club no one wants to join — there’s no handshake, no jacket, and the...
Support Group: Prostate Cancer
Last active: Apr 10, 2025
Are castration sensitive prostate cancer patients being over treated?
Ancan.Org had a meeting with doctors from the National Cancer Institute to discuss over treatment of patients that had BCR (biochemically, recurrent prostate cancer). They...
Support Group: Prostate Cancer
Last active: Feb 7 10:53am
Slowly rising PSA 5.8 years since removal!!
I had my products removed in July 2019. Been slowly rising and I had Clear margins, no SV or LN invasion, last PSA was 0.074...
Support Group: Prostate Cancer
Last active: Apr 2, 2025
PET scan explanation, findings & personal conclusion
Background: Diagnosis of prostate cancer 2010. Gleason 3+3; PSA: 6.46 noted as slow growth cancer. Underwent proton radiation therapy at Loma Linda Hospital, a pioneer...
Support Group: Prostate Cancer
Last active: Feb 26, 2025
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
Wife: Stop Reading Those Forums
She has a valid point. As I stated in another post, forums are highly tilted platforms - I know, I've created and administered very many...
Support Group: Prostate Cancer
Last active: Jun 2, 2025
Confusing PSA results: Is it possible side effects could inflate PSA?
I had prostate cancer in 2018. I had brachytherapy and 5 1/2 weeks of IMRT Radiation. My original gleason score was 3+4 and out of...
Support Group: Prostate Cancer
Last active: Jan 18 5:46pm
Cheat sheet for hormone therapy/ADT
I will soon be starting external beam radiation therapy for recurrent prostate cancer. I won’t be doing ADT, but I have been reading a lot...
Support Group: Prostate Cancer
Last active: Sep 9, 2025
Exercise as Medicine: P.C.R.I. Q&A with Rob Newton
Rob Newton's most recent explanation of his research. I can't understand why most doctors pretend that exercise isn't something they should be prescribing for their...
Support Group: Prostate Cancer
Last active: Jan 17 5:28am
Urinary Retention after Robotic assisted Prostatectomy
Is anyone experiencing recurring urinary retention and pain in the urethra post Robotic assisted nerve sparing Radical Prostatectomy? After my husbands initial surgery he was...
Support Group: Prostate Cancer
Last active: Nov 19, 2022
Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx). Prostectomy+ Seminal vesticals+7 lymph nodes...
Support Group: Prostate Cancer
Last active: Oct 27, 2025
White Button Mushrooms clinical trials.
Hi, not sure if I should post this here, but I will remove this if requested. I've been talking to some people here and did...
Support Group: Prostate Cancer
Last active: Sep 4, 2025
Tulsa Pro - share your experiences
I want to thank all for support on my recent prostate cancer treatment, Tulsa pro. I am very thankful to my wife and my daughter...
Support Group: Prostate Cancer
Last active: Sep 1, 2025
2025 European Society for Medical Oncology (ESMO)
This is more of an FYI. Below is an article, and video, with some interesting results, particularly ADT + ARPI and potential for adding Lutetium...
Support Group: Prostate Cancer
Last active: Dec 17, 2025
tip of penis sore after finishing IMRT
I just finished 38 sessions of IMRT for locally recurrent PCa last Tuesday (Nov 18). As I’ve posted about previously, the only notable side effect...
Support Group: Prostate Cancer
Last active: Nov 25, 2025
Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?
Hi, My husband, who is 71 y/o, has recurrent prostate cancer, after 7 years of no treatment. He underwent a proctectomy 7 years ago and...
Support Group: Prostate Cancer
Last active: Apr 29, 2024
3rd time around. Now stage IVb: What are my treatment options?
In april of 2023 found that PC returned and has metastasized in pelvic area lymph nodes. In 2016 was diagnosed with PC gleason 4+4. Prostectomy...
Support Group: Prostate Cancer
Last active: Mar 23, 2024