Connect
Public Support Group 1,541 total results
Discussions (132)
Photon Radiation Treatment After Effects FYI
I updated a post with this response and then noticed the post was from 2024. This made me want to post my experience with the...
NePtune Trial and surgery questions
Some background - last month (Dec 2024) I was diagnosed with aggressive prostate cancer with a Gleason score of 9 . I am BRCA2 positive...
Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?
I've already had colon cancer and a sigmoid resection that metastasized to my lung ... had a lung wedge resection also. Was doing good except...
Can out-of-state patients do telemedicine?
I'm located in Oregon, and I'm in the process of deciding where and how to get treated for prostate cancer. I'll probably need to travel...
A Strange And Personal Question
You know, in this forum, there are few things that are taboo to discuss because once you've had a dozen people fooling around in the...
Gleason 8. High risk. Prostate swelling-cancer is contained for now.
Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...
Treatment Options & A Mayo 2nd Opinion Questions
Radical Prostatectomy in 1998 - Gleason 6 - 2000 PSA was rising slowly & prostate bed radiation was performed. PSA dropped to 0.1 and remained...
Orchiectomy and PSA decline waiting for Liver Transplant
Hello Guys, Greetings to each and every one of you. I have a story to tell, a little mixed but I wanted to share our...
PSA of 4.1 when never previously higher than 1.0
My apologies for asking such a basic question in a community in which so many are courageously dealing with significant challenges. But I’m filled with...
Did you get a PET scan prior to radical prostatectomy?
My husband has Gleason 7 (4+3) PCA with regional lymphadenopathy. Bone scan, CT negative. Current plan is radical prostatectomy. When originally asked surgeon about PET...
Getting through the pain days
It's been a tough week. The cancer itself is fine (still in full remission), but the damage the cancer did to my body has jumped...
SBRT on T8 Only vs Lower Dose Pluvicto and ADT
I am a Care Partner for husband whom has Aphasia from 2 stroke 14 years ago. He is past the Medicare full retirement age. Diagnosed...
Prostatectomy vs Photon radiation vs Proton Beam Therapy
I’m 58. Gleason 7 (mix of 3-4 and 4-3) 9 out of 12 cores. Stage 2. Intermediate unfavorable. Scheduled to have Petscan and will ask...
Order in the Court
In the courtroom, truth rarely wins. Performance does. The lawyer with the best delivery, arched eyebrow, sonorous voice, and well-timed pause takes the prize. Now...
Stage 4 + Mass Blocking Urethra
My grandparents aren't technologically savvy and having some medical background, I have been helping my grandpa with as much as I can since he was...
Are your Radiation Treatments on Time ?
I’ve gone for treatment 13 times of 44 . I’m receiving Proton Radiation. As many know you show up with a full bladder. Of the...
Considering Creating A Companion Cancer Site
After going through this journey there are some things that I found very helpful, especially here, but also some things that were lacking that could...
So hard to study focal therapy
Right now it is super hard to find a doctor willing to do focal therapy, or information about it, or almost anything really. There seems...
No. Prostate Cancer is not the “good one”
The narrative is tidy. The reality is not. People say all kinds of things when they find out you have prostate cancer. “Oh, that’s the...
Biopsy confirms prostate cancer in 12 out of 12 cores
Hi, all. It appears my initial post ("Journey begins - age 51, PSA 72" https://connect.mayoclinic.org/discussion/journey-begins-age-51-psa-72/) was not premature after all. Based on my biopsy results,...
Connect