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Prostate Cancer Support Group

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Discussions (196)
pT3b - what were your radiation outcomes after radical prostatectomy?
I would like to read comments from anyone who was categorized a pT3b after radical prostatectomy (RP), and had radiation after their PSA started to...
Support Group: Prostate Cancer
Last active: Aug 11, 2025
PSA at 0.04 six months post RARP
I was indetectable < 0.02 at three months, the test now came back with 0.04. I think that the lab changed. Is this within normal...
Support Group: Prostate Cancer
Last active: Dec 10, 2025
Rising testosterone during treatment
I have been in systemic treatment for four years now. My PSA has remained undetectable the entire time. However, my last blood test showed an...
Support Group: Prostate Cancer
Last active: Nov 8, 2025
Alternative to prostate removal surgery
So, my PSA is 8.5 but I am on finasteride and Tamsulosin which I'm told doubles the true PSA level. I'm looking for an alternative...
Support Group: Prostate Cancer
Last active: Dec 19, 2024
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
Who is a good candidate for Intermittent ADT?
Who is a good candidate to take a holiday from ORGOVYX until psa start rising and then go back to taking ORGOVYX again?Is it only...
Support Group: Prostate Cancer
Last active: Jun 15, 2025
High -intensity ultra sound treatment....comments please.
Have any of you had high-intensity ultrasound treatment for your prostate cancer? How did it work for you? I have a friend who just learned...
Support Group: Prostate Cancer
Last active: Jul 15, 2025
Additional radiation treatment for 2nd recurrence
My PSA was 5.53 and my Gleason score was 3+4 =7. I had a robotic prostatectomy in 2006. Went undetectable until 2013. I then Had...
Support Group: Prostate Cancer
Last active: Feb 6, 2024
Xtandi and Lupron: Possible drug interaction with spironolactone?
I have been recently diagnosed with prostate cancer with Mets (lymph nodes) and am being treated with Lupron Depot and Xtandi. Due to a rise...
Support Group: Prostate Cancer
Last active: Feb 28, 2023
Is a PSMA-PET scan of value if you have already started ADT treatment?
An acquaintance had a RP in mid July and while the pathology report had some positives his Gleason score increased from a 7 to an...
Support Group: Prostate Cancer
Last active: Oct 10, 2024
Postop pathology to ChatGPT & asked about BCR. Anyone done this?
I used ChatGPT for the first time and input my post-op pathology details into it and then asked about recurrence. To my surprise, it stated...
Support Group: Prostate Cancer
Last active: Mar 4 9:14pm
How long have you been on Orgovyx (relugolix)?
Hello All:I am asking for members to tell me how long they have been on Orgovyx. My prostate was removed (Gleason score of 9) and...
Support Group: Prostate Cancer
Last active: Jan 9 12:02pm
Update on my PSA levels and if I have PC or just BPH
Yesterday I had my 6 month checkup after my negative biopsy for PC. My PSA is 12 and has doubled in 6 months. The urologist...
Support Group: Prostate Cancer
Last active: Oct 10, 2024
Stage 4 with distant lymph node involvement
I had an RP in January 2023. CAT scans and bone scans prior to surgery showed no spread. Post surgery biopsies showed that lymph nodes...
Support Group: Prostate Cancer
Last active: Dec 19, 2023
Prostate cancer treated with Leuprolide
I had 43 days of prostate cancer radiation about 5-6 years ago. My PSA becgan to rise in summer of 2014. Suddenly it went from...
Support Group: Prostate Cancer
Last active: Dec 1, 2022
Testosterone levels are rising after cessation of ADT
I am being treated for high risk prostate cancer . Completed radiation ,ADT AND Casadex for 2 years. I have NOT taken ADT or Casadex...
Support Group: Prostate Cancer
Last active: Sep 20, 2025
Hormone Levels after 90+ days Lupron
Background: @ age 62 Radical Prostatectomy May 2020. Post RP pathology report stated high risk, confirmed 4+3 Gleason, positive margins, Perineural invasion, as well as...
Support Group: Prostate Cancer
Last active: Jan 15 4:00pm
TULSA PRO Results at 3 plus years - Treated for High Grade Gleason 8
In February of 2023, I was diagnosed with prostate cancer. Of my 12 core biopsy, 5 came back with cancer. I had 1 Gleason 6,...
Support Group: Prostate Cancer
Last active: Apr 14 8:55pm
Considering stopping Eligard after first injection and radiation.
My special friend is considering stopping ADT after the first injection (6 months) and radiation treatment. Has anyone made this decision, and what are the...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
PSA & MRI suspicious but biopsy benign
I am 66 & asymptomatic but PSA has been rising 2014-2,2, 2017-2.6, 2019-3.8, 2022–3.6, 2023-5.0 with 16% free. DRE negative & MRI revealed pirad 4...
Support Group: Prostate Cancer
Last active: Apr 10, 2025