Support Groups

Prostate Cancer Support Group

Public Support Group
2,055 total results
Discussions (156)
Getting HIFU tomorrow: Worried about the catheter mostly
Tomorrow is the big day for me. HIFU for two tumors confined to the right spot in the prostate. Orgovyx shrunk the prostate enough to...
Support Group: Prostate Cancer
Last active: Oct 14, 2024
Has anyone done fractionated/metronomic chemotherapy?
I've recently been diagnosed with stage 4, Gleason 7-9 castration sensitive. My PSA was 105 and then after one month on Orgovyx now down to...
Support Group: Prostate Cancer
Last active: Aug 10, 2024
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Support Group: Prostate Cancer
Last active: Feb 3, 2024
Have erection but can't have an orgasm
71, SBRT completed last July, 4 months of Orgovyx. Fortunately, PSA remains undetectable. Testosterone back to my normal limits. Using Trimix now and I can...
Support Group: Prostate Cancer
Last active: Jan 26 4:29pm
Total inability to have an orgasm post radiation
Since finishing radiation treatment two months ago, I've been completely unable to have an orgasm. I'm on Orgovyx for 2 more months, but still have...
Support Group: Prostate Cancer
Last active: Aug 28, 2024
Testosterone recovery after ADT
I'm ending Orgovyx this month. I want to do whatever I can afterward to recover testosterone to my pre-ADT level of 650. I know not...
Support Group: Prostate Cancer
Last active: May 9 8:48pm
I want to learn more about ADT
I am an 83-year-old male who is in good health and had a radical prostatectomy on 9/22/2009. I had salvage radiation on 1/15/2012 and I'm...
Support Group: Prostate Cancer
Last active: Apr 20, 2024
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16, 2024
Hot Flashes and Symptoms
This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently....
Support Group: Prostate Cancer
Last active: Aug 12, 2024
Can anyone share their experience with ProACT (an AUS)?
My 71 year old husband had prostatectomy surgery in August 2023 followed by 6 weeks of radiation therapy which finished the end of January this...
Support Group: Prostate Cancer
Last active: May 9 7:26pm
End of treatment (I hope)
First diagnosed in April 2023 at age 66, after blood work for a routine physical came back with a PSA of 8.2. Urologist re-ran the...
Support Group: Prostate Cancer
Last active: May 5 7:09am
PSA never reaching undetectable
My partner was diagnosed with PSA 92, stage 3a in Nov 2023. Started Orgovyx March of 2024, did 40 sessions of radiation, finishing in June...
Support Group: Prostate Cancer
Last active: Feb 25 1:50pm
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Support Group: Prostate Cancer
Last active: 16 hours ago
Gleason 9 SO wants me to stop ADT @6 Mos for look see
My SO wants to stop ADT after 6 months and wait 2 months then test to see if PSA rises? Does this make sense? Just...
Support Group: Prostate Cancer
Last active: Jun 11 11:11am
Osteoporosis and Osteopenia treatment and prostate cancer?
I am not recovering from Orgovyx as quickly as expected and my post treatment DEXA scan shows osteopenia and osteoporosis that was not present pre-treatment....
Support Group: Prostate Cancer
Last active: May 7 11:31am
Shortest term of ADT needed for G9, non metastatic PCA?
I’m 69 and been on Orgovyx and Zytiga for 5 weeks; and started my 40 radiation treatments a week ago. My side effects so far...
Support Group: Prostate Cancer
Last active: Jul 25, 2024
Got my ArteraAI Prostate Test results
Artera AI test results :Hey. Just wanted to follow up on getting my results yesterday from my Artera A I test. The test is similar...
Support Group: Prostate Cancer
Last active: Jul 24, 2024
Brachytherapy: Regrets & Why ?
Just learned today that my lead-up to HD Brachytherapy is scheduled. I don't like the sound of having a Perineum "Surgery" to insert 20 needles...
Support Group: Prostate Cancer
Last active: Mar 18 2:11pm
PSA rising fast after SBRT
I am 65, Gleason 4+3, localized 2 tumors. PSA 6.7; Had SBRT (4 sessions, 9.5 gray each) in early August 2024. Minimal GI and GU...
Support Group: Prostate Cancer
Last active: May 10 6:33am
PSE test to inform continued ADT
I had SR to the prostate bed and surrounding lymph nodes last spring which was combined with first 6 months of Eligard followed by 12...
Support Group: Prostate Cancer
Last active: Mar 4 8:28am