Support Groups

Prostate Cancer Support Group

Public Support Group
1,692 total results
Discussions (146)
"Sexual Problems" Top Concern After Prostate Cancer Treatment
A UK study of 650 men (ages 50 and up, diverse ethnicities and sexual orientations) found "sexual problems" the top concern after prostate cancer treatment....
Support Group: Prostate Cancer
Last active: Apr 5 12:05pm
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16, 2024
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Support Group: Prostate Cancer
Last active: 12 hours ago
Jansen clinical trial ADT & Erleada and surgery
I am 75 years old and a year ago my biopsy indicated that I had NM advanced aggressive Gleason score 9 prostate cancer and my...
Support Group: Prostate Cancer
Last active: Dec 15, 2022
Hormone Levels after 90+ days Lupron
Background: @ age 62 Radical Prostatectomy May 2020. Post RP pathology report stated high risk, confirmed 4+3 Gleason, positive margins, Perineural invasion, as well as...
Support Group: Prostate Cancer
Last active: Mar 16 3:28pm
Hot Flashes and Symptoms
This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently....
Support Group: Prostate Cancer
Last active: Aug 12, 2024
Why isn't hormone therapy used in all prostate cancers?
An observation and insightful comment by one group member here: "Lupron/Eligard both shrink the prostate and stops the production of testosterone which feeds the growth...
Support Group: Prostate Cancer
Last active: Apr 5, 2023
Blood sugar levels, GLP-1 agonists, weight gain and cancer cell growth
I listened to a podcast this morning, where “sugar” was discussed as an accelerator for cancer cell growth. Turns out, it does, but not for...
Support Group: Prostate Cancer
Last active: Dec 23, 2024
Have erection but can't have an orgasm
71, SBRT completed last July, 4 months of Orgovyx. Fortunately, PSA remains undetectable. Testosterone back to my normal limits. Using Trimix now and I can...
Support Group: Prostate Cancer
Last active: Jan 26 4:29pm
Changes in temper and more: What's you post-Orgovyx experience?
I wrapped up six months of ADT on Orgovyx about four weeks ago. I've noticed for the past couple of weeks that I've been a...
Support Group: Prostate Cancer
Last active: Apr 12 9:13pm
Question regarding resistance training.
Greetings: Background: I was diagnosed in February 2023 with Gleason 9 PC, PSA 25 and 9/12 cores positive. The PSMA-Pet showed no spread, however the...
Support Group: Prostate Cancer
Last active: May 7, 2024
Been on Orgovyx for four months. Should I stop taking finasteride?
Diagnosed with prostate cancer via a biopsy August 2024. Six cores were negative, one core Gleason 7, five cores Gleason 9. Negative for perineural invasion....
Support Group: Prostate Cancer
Last active: Feb 3 11:47am
Three Years Post SBRT
Hello just wanted to introduce myself I am in Manhattan and had SBRT for mostly G6 with one core of 8 upgraded at second opinion...
Support Group: Prostate Cancer
Last active: Apr 26 4:21pm
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Post-treatment update
It's been a year and two months since I started treatment (Gleason 7 4+3). I had three months of Casodex and Lupron with 5 sessions...
Support Group: Prostate Cancer
Last active: May 31 10:36am
Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?
I am 77 years old. I had my prostate removed over 3 years ago. After 2 years my PSA began to rise from < .01...
Support Group: Prostate Cancer
Last active: Aug 8, 2024
Treatment Dogma - Aggressive is not the same as intelligent
In cancer care, “aggressive” is a word we wear like armor. It suggests boldness, urgency, and strength — the kind of approach that implies we’ve...
Support Group: Prostate Cancer
Last active: Apr 18 3:55pm
Has anyone else moved from Firmagon to Orgovyx?
I have stage 4 (oligometastatic) prostate cancer, and will be on ADT and androgen-reception inhibitors, basically, forever. I've been on monthly Firmagon (Degarelix) injections for...
Support Group: Prostate Cancer
Last active: Jun 13 11:02am
6 months or 18-24 months ADT with salvage Radiotherapy
After RARP in 2019 my psa is back up to 0.26 from 0.02 post op. After PET/PSMA scan right common illiac node showed possible tumor...
Support Group: Prostate Cancer
Last active: Mar 17, 2023
Bone Metastasis: What treatment did you have?
My last PET scan showed a "sclerotic lesion on my right acetabulum" measuring 1.5 x 1.5 cm (PSA was 0.18 and testosterone 37 at the...
Support Group: Prostate Cancer
Last active: May 13 6:17pm