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Prostate Cancer Support Group

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Discussions (132)
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
Support Group: Prostate Cancer
Last active: Aug 4, 2025
How long do the hot flashes last? Another 3 month Eligard shot today
Hello all. I have completed my 5 1/2 weeks of EBRT for intermediate risk prostate cancer and had first injection of Eligard 3 months ago....
Support Group: Prostate Cancer
Last active: Dec 6, 2025
Good News on PET-Scan, time to consider next steps
I discussed my PET-Scan results with my Urologist (PA) yesterday. She said no measurable prostate cancer recurrence was found! The Report: No findings to suggest...
Support Group: Prostate Cancer
Last active: Sep 29, 2025
What was your highest PSA and still have a clear PET/CT scan?
I just got the results from my most recent PET/CT scan; "There is no abnormal PSMA uptake to indicate recurrence or metastatic disease anywhere despite...
Support Group: Prostate Cancer
Last active: Jul 26, 2024
pT3b Prostate Cancer - where are you now post-op?
I'd like feedback from folks who are diagnosed as a pT3b cancer, the definitive criteria being that you had cancer invade one or both seminal...
Support Group: Prostate Cancer
Last active: Sep 21, 2025
Memorial Sloan Katering Prostate Cancer Risk Calculation Nomograms
Memorial Sloan Katering has excellent pre- and post-radical prostatectomy nomograms which can be used by patients before or after their surgical treatment for prostate cancer...
Support Group: Prostate Cancer
Last active: Oct 1, 2025
Hormone therapy or not ? A helpful tool to decide?
One of you great fellow warriors mentioned what I think can be a very helpful tool in helping you decide risk factors : As I’m...
Support Group: Prostate Cancer
Last active: Jun 1, 2025
Salvage Radiation Therapy Experience
In two days I'll complete my program of 38 radiation treatments for recurrent prostate cancer, and wanted to post a brief update on my experience,...
Support Group: Prostate Cancer
Last active: Feb 25 9:38pm
One year past prostatectomy, in waiting mode.
A year ago I had my prostatectomy- Gleason 8, age 71. Path report indicated ECE, but surgeon removed lymph nodes, seminal vesicles and bundled nerves....
Support Group: Prostate Cancer
Last active: Oct 14, 2024
My Story So Far - 53yo / PSA 130
Hi everyone. New to this forum and this club we are all in. Just before Christmas, my routine check up yielded a PSA of 130...
Support Group: Prostate Cancer
Last active: Mar 11 11:25am
Deciding about 2-year ARPI (Xtandi) being added to lupron treatment
Seeing my oncologist today for the 6-month lupron injection. Radiation is scheduled for late October. The doctor says he recommends the ARPI because my recurrence...
Support Group: Prostate Cancer
Last active: Sep 23, 2025
Prostate cancer-related abbreviations: What acronym would you add?
There are so many acronyms related to prostate cancer. When newly diagnosed these can be overwhelming and frustrating. As you become more familiar with the...
Support Group: Prostate Cancer
Last active: Dec 14, 2025
RARP vs RT plus ADT for Gleason 8 with cribiform and high Decipher
I’m new to prostate cancer, having been diagnosed in December 2025 with Gleason 8 (4+4) with cribiform architecture, stage T1c, PSA 4.7, and Decipher score...
Support Group: Prostate Cancer
Last active: Feb 13 2:52pm
BCR finding in PSMA test
Hi Everyone, I went for PSMA test and got my result. Could you please help me to understand? CLINICAL HISTORY: 53-year-old male post radical prostatectomy...
Support Group: Prostate Cancer
Last active: Jun 11, 2023
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Seeking Wisdom and Guidance
I will admit this is a group I had not been planning to join as a fit, 59-year old, but here we are. I have...
Support Group: Prostate Cancer
Last active: Jan 3 1:59pm
Typical Plan When Post RP PSA goes from < 0.02 to >= 0.02?
I moved out of state since my prostatectomy so for the 18 months following I just did ultrasensitive PSA tests every 3 months. Up to...
Support Group: Prostate Cancer
Last active: Feb 18, 2024
Positive margins - Now what?
I got my post-prostatectomy pathology back today. While I did talk to a physician’s assistant, I won’t meet with my doctor until Monday. It seems...
Support Group: Prostate Cancer
Last active: Mar 20, 2025
Anyone experience urethral stricture after prostatectomy?
Got a urethral stricture 6 weeks post op near the end of the penis (at the Fossa Navicularis) which I think is due to the...
Support Group: Prostate Cancer
Last active: Jan 15 6:02pm
Irradiated prostate & bladder bleeding: Have AFib & cancer
I had both external beam brachytherapy for prostate cancer twenty years ago and am cancer free. I take Eliquis for congestive heart failure and for...
Support Group: Prostate Cancer
Last active: 5 days ago