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Prostate Cancer Support Group

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Discussions (165)
PSA above 0.2 after RP in 2020 but psma pet scan is negative
RP in 2020. All went well then a couple years later PSA starts rising (about 2.7 years ago) and went above 0.2. Had psma scan...
Support Group: Prostate Cancer
Last active: Oct 28 7:47am
Difference between "PSA" versus "Screening PSA" ?
Not long ago my PSA was 3 ng/ml as reported by LabCorp. Then, on July 15, 2023 my Consultation Notes from a Radiation Oncologist mentioned...
Support Group: Prostate Cancer
Last active: Aug 14, 2023
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Mar 20 7:16am
Question about stopping Erleada
I was on Erleada for 3 years and then my doctor stopped it because he was concerned it may be affecting my heart. My PSA...
Support Group: Prostate Cancer
Last active: Aug 13, 2024
Sudden drop in PSA in just one month
I have cRMPC my PSA has been rising slowly but steadily for about a year. I Am Gleason 9 Over this time my PSA went...
Support Group: Prostate Cancer
Last active: Mar 14, 2024
"Stages" of cancer? Testosterone? Are these important?
I'm just curious that none of my doctors ever told me what "stage" of cancer I have/had. Nor have any of them tested my testosterone,...
Support Group: Prostate Cancer
Last active: Jun 13, 2024
pT3b - what were your radiation outcomes after radical prostatectomy?
I would like to read comments from anyone who was categorized a pT3b after radical prostatectomy (RP), and had radiation after their PSA started to...
Support Group: Prostate Cancer
Last active: Aug 11 4:08pm
Alternative to prostate removal surgery
So, my PSA is 8.5 but I am on finasteride and Tamsulosin which I'm told doubles the true PSA level. I'm looking for an alternative...
Support Group: Prostate Cancer
Last active: Dec 19, 2024
Who is a good candidate for Intermittent ADT?
Who is a good candidate to take a holiday from ORGOVYX until psa start rising and then go back to taking ORGOVYX again?Is it only...
Support Group: Prostate Cancer
Last active: Jun 15 12:44pm
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
Anyone had the same? PC - Micrometastatic recurrence | PSMA PET neg
Just had a detectable PSA rise to 0.09 after been undetectable for 1.5 years after surgery & IMRT + ADT (46 year old). PSMA PET...
Support Group: Prostate Cancer
Last active: Nov 28 7:42pm
High -intensity ultra sound treatment....comments please.
Have any of you had high-intensity ultrasound treatment for your prostate cancer? How did it work for you? I have a friend who just learned...
Support Group: Prostate Cancer
Last active: Jul 15 9:42am
Additional radiation treatment for 2nd recurrence
My PSA was 5.53 and my Gleason score was 3+4 =7. I had a robotic prostatectomy in 2006. Went undetectable until 2013. I then Had...
Support Group: Prostate Cancer
Last active: Feb 6, 2024
Xtandi and Lupron: Possible drug interaction with spironolactone?
I have been recently diagnosed with prostate cancer with Mets (lymph nodes) and am being treated with Lupron Depot and Xtandi. Due to a rise...
Support Group: Prostate Cancer
Last active: Feb 28, 2023
Is a PSMA-PET scan of value if you have already started ADT treatment?
An acquaintance had a RP in mid July and while the pathology report had some positives his Gleason score increased from a 7 to an...
Support Group: Prostate Cancer
Last active: Oct 10, 2024
ADT, Hot Flashes and Ashwagandha: Is it safe?
I have received 3, three-month Lupron shots and radiation therapy for Gleason 3+4 prostate cancer. After the final shot in June, my PSA was <...
Support Group: Prostate Cancer
Last active: Nov 25 6:35pm
Radiation vs RARP for IDC prostate cancer with high Decipher?
70 years old, fit. PSA is 5 and slowly rising. Gleason 3+4. PIRADS 4. Localized. Clean PET. BUT, Biospy showed 6 positive cores - extensive...
Support Group: Prostate Cancer
Last active: Dec 3 2:14pm
Doublet Therapy Holiday - Option for Oligorecurrent Prostate Cancer?
My dad was originally diagnosed with Gleason 7 (4+3) prostate cancer in Dec. 2019. After a RP and IMRT over the course of the next...
Support Group: Prostate Cancer
Last active: Oct 13 2:04pm
Stage 4 with distant lymph node involvement
I had an RP in January 2023. CAT scans and bone scans prior to surgery showed no spread. Post surgery biopsies showed that lymph nodes...
Support Group: Prostate Cancer
Last active: Dec 19, 2023
Testosterone levels are rising after cessation of ADT
I am being treated for high risk prostate cancer . Completed radiation ,ADT AND Casadex for 2 years. I have NOT taken ADT or Casadex...
Support Group: Prostate Cancer
Last active: Sep 20 9:30pm