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Prostate Cancer Support Group

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2.5 Yrs After Proton Rad PSA reached 1.05
Hematologist suggested orgovyx and zytyga, been on for 2-months PSA this week < .1, also previous psma/pet showed small lymph node metastasis, was going to...
Support Group: Prostate Cancer
Last active: Jul 14 3:26pm
Just an update...
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come...
Support Group: Prostate Cancer
Last active: Jul 21, 2024
Completed EBRT recently, first blood test readings done. Any advice?
I was a Gleason 9 when I began taking Orgovyx in September 2024. Testosterone was 825, PSA 6.0 Had 28 sessions of EBRT which concluded...
Support Group: Prostate Cancer
Last active: May 8 11:23pm
Adding a second medicine question
I am told by doctors they would like to add second medicine to Orgovyx which I have been doing ok on for about 2 1/2...
Support Group: Prostate Cancer
Last active: Jul 19 9:28pm
Finished radiation therapy today, how will I know if it worked?
Finished 28 sessions of EBRT today, still taking Orgovyx. RO said he will schedule an appointment with him in about a month to determine what...
Support Group: Prostate Cancer
Last active: Apr 6 4:21pm
Anyone here after ADT undergone TRT
I had SBRT radiation treatment and stopped Orgovyx after 12 months. After 2 1/2 months my T went up to 65 from a low of...
Support Group: Prostate Cancer
Last active: Aug 13 6:16pm
Timing of ADT + Zytiga - Anyone else start them at different times?
I have locally advanced disease (+ pelvic nodes). My treatment is based on the intensification experiment in one of the arms of the STAMPEDE trial...
Support Group: Prostate Cancer
Last active: Feb 12, 2024
25 Fractions IMRT PROSTATE RADIATION Completed Yesterday
Iam so happy that I can stay home today! I went 25 times over 5 weeks. I finally "went along" with Oncologists insisting on IMRT....
Support Group: Prostate Cancer
Last active: Jan 26 10:32am
Numbers After SRT/ADT
I just received my post treatment results after SRT with 6 months of Orgovyx. PSA < 0.05. Had been 0.18 before treatment. T = 688....
Support Group: Prostate Cancer
Last active: May 19 9:04pm
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Support Group: Prostate Cancer
Last active: Jun 20 8:07am
Is there a need to stay close to the clinic during radiation treatment
My dad is 84, Gleason 9 (aggressive), PSMA scan shows contained within the prostate. He started Orgovyx one week ago. He will start radiation treatments...
Support Group: Prostate Cancer
Last active: Aug 12 3:01pm
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
Anybody finding that ADT has compromised their flexibilty?
I'm 4 1/2 months ( of 6) in on Orgovyx. In addition to HIT to offset the effects of ADT, I do 20-30 minutes of...
Support Group: Prostate Cancer
Last active: Aug 16 4:28pm
Has anyone had to discontinue Zytiga due to side effects?
I’m 7 months into an 18 month treatment with ORGOVYX and Zytiga. Everything has been manageable until the last few weeks when I started to...
Support Group: Prostate Cancer
Last active: Dec 6, 2024
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: May 31 8:39am
Hormone Therapy
I am getting ready to start hormone therapy with orgovyx and have read that it can cause brain fog. Can anyone who has experienced this...
Support Group: Prostate Cancer
Last active: Aug 1 5:39pm
New here! 4 months into my cancer journey.....
I have a Gleason score of 8(4+4). My PSA was 4-5 for several years then took off earlier this past spring to 16. PET scan...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Quick ADT Question
From your experience and understanding from your doctors, does the likelihood of castrate resistance increase the longer you're on ADT? If CR develops, what are...
Support Group: Prostate Cancer
Last active: Jun 18 10:21am
Castration resistance
What are the modern strategies to delay castration resistance? In my case, I will be on Firmigon (or Orgovyx) for 36 months and Xytiga, for...
Support Group: Prostate Cancer
Last active: Aug 18 8:08pm
a bit depressed today
into 2nd month of orgovyx...thought I was on top of things but last 2 days feeling a bit hopeless/ anxious..anyone else have this happen..?? I...
Support Group: Prostate Cancer
Last active: Aug 16 7:46pm