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Prostate Cancer Support Group

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Discussions (207)
Can Prostate Cancer "Take a New Trajectory"?
Hello, forum friends. I know y'all are not doctors but I've been on this forum long enough to appreciate your knowledge gained from your experiences....
Support Group: Prostate Cancer
Last active: Aug 29 6:50am
Prostate cancer care team
I finished SBRT 5 radiation treatments at UCLA. I want to choose a Medical oncologist in Orange county to manage my Hormone therapy(ORGOVYX). Any of...
Support Group: Prostate Cancer
Last active: Apr 22, 2024
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Jul 18 9:20am
Anyone experiencing nausea/vomiting with Abiraterone?
I will be starting Abiraterone and Orgovyx this week. My doctor also prescribed compazine for nausea and vomitting. Reading the List of possible side effects...
Support Group: Prostate Cancer
Last active: May 11, 2024
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Support Group: Prostate Cancer
Last active: Sep 10 2:50pm
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Jun 15 10:43am
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
2.5 Yrs After Proton Rad PSA reached 1.05
Hematologist suggested orgovyx and zytyga, been on for 2-months PSA this week < .1, also previous psma/pet showed small lymph node metastasis, was going to...
Support Group: Prostate Cancer
Last active: Jul 14 3:26pm
Just an update...
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come...
Support Group: Prostate Cancer
Last active: Jul 21, 2024
Completed EBRT recently, first blood test readings done. Any advice?
I was a Gleason 9 when I began taking Orgovyx in September 2024. Testosterone was 825, PSA 6.0 Had 28 sessions of EBRT which concluded...
Support Group: Prostate Cancer
Last active: May 8 11:23pm
Finished radiation therapy today, how will I know if it worked?
Finished 28 sessions of EBRT today, still taking Orgovyx. RO said he will schedule an appointment with him in about a month to determine what...
Support Group: Prostate Cancer
Last active: Apr 6 4:21pm
PSA Rise After ADT
I've been posting and following a few months now. I was stage 4a, Gleason 9, Decipher .99. I've had prostatectomy, followed by radiation and ADT...
Support Group: Prostate Cancer
Last active: Sep 11 10:12am
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: Sep 21 12:53pm
Has anyone heard of or participated in a trial for Debio 4228-201
They are offering me a trial for this ADT to testosterone blocker it’s a trial for to get the correct dosage for the extended treatment...
Support Group: Prostate Cancer
Last active: Aug 27 12:06pm
Timing of ADT + Zytiga - Anyone else start them at different times?
I have locally advanced disease (+ pelvic nodes). My treatment is based on the intensification experiment in one of the arms of the STAMPEDE trial...
Support Group: Prostate Cancer
Last active: Feb 12, 2024
Numbers After SRT/ADT
I just received my post treatment results after SRT with 6 months of Orgovyx. PSA < 0.05. Had been 0.18 before treatment. T = 688....
Support Group: Prostate Cancer
Last active: May 19 9:04pm
25 Fractions IMRT PROSTATE RADIATION Completed Yesterday
Iam so happy that I can stay home today! I went 25 times over 5 weeks. I finally "went along" with Oncologists insisting on IMRT....
Support Group: Prostate Cancer
Last active: Jan 26 10:32am
Has anyone experienced profound hypotension with exercise while on ADT
About 5 months into ADT (Orgovyx) I began to feel light headed during exercise, it was accompanied by a sensation bright lights and colors. I...
Support Group: Prostate Cancer
Last active: Sep 13 3:40pm
Has anyone had to discontinue Zytiga due to side effects?
I’m 7 months into an 18 month treatment with ORGOVYX and Zytiga. Everything has been manageable until the last few weeks when I started to...
Support Group: Prostate Cancer
Last active: Dec 6, 2024
Adding a second medicine question
I am told by doctors they would like to add second medicine to Orgovyx which I have been doing ok on for about 2 1/2...
Support Group: Prostate Cancer
Last active: Jul 19 9:28pm