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Prostate Cancer Support Group

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Discussions (277)
Changes in temper and more: What's you post-Orgovyx experience?
I wrapped up six months of ADT on Orgovyx about four weeks ago. I've noticed for the past couple of weeks that I've been a...
Support Group: Prostate Cancer
Last active: Apr 12, 2025
Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?
I've already had colon cancer and a sigmoid resection that metastasized to my lung ... had a lung wedge resection also. Was doing good except...
Support Group: Prostate Cancer
Last active: Jul 1, 2024
Diet after Radiation treatment and on ORGOVYX or other ADT drugs
What is a good diet to follow while we are on ORGOVIX or other ADT drugs. Myself, I was mostly vegan( Fish occasionally), but now...
Support Group: Prostate Cancer
Last active: Apr 16, 2024
Having a colonoscopy next week, can I still take Orgovyx?
Colonoscopy scheduled next week. I've been taking Orgovyx since August 24, 2024 for Gleason 9, no other medications. Primary care physician said maybe stop a...
Support Group: Prostate Cancer
Last active: Jan 5 10:34am
Withdrawal from orgovyx: How long will fatigue and hot flashes last?
Having hot flashes and fatigue 2 weeks after stopping orgovyx. Is this to be expected and for how long?
Support Group: Prostate Cancer
Last active: Dec 14, 2024
Treatment Orgovyx, Zytiga and radiation: Question about WBC counts
Stage t3a cancer in the capsule but does not appear elsewhere. My question is concerning my white blood cells; both the Lymphocytes and Eosinophils are...
Support Group: Prostate Cancer
Last active: Aug 30, 2024
Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?
Hi, My husband, who is 71 y/o, has recurrent prostate cancer, after 7 years of no treatment. He underwent a proctectomy 7 years ago and...
Support Group: Prostate Cancer
Last active: Apr 29, 2024
Low testosterone after Orgovyx: Should I increase my testosterone?
I started taking orgovyx Dec 2024 and stopped June 2025. I had 4 weeks of radiation treatment in February. I am 67 years old.My testosterone...
Support Group: Prostate Cancer
Last active: Dec 11, 2025
Your PSA Trends after Salvage Radiation & 6 Months of Orgovyx?
I completed 6 months of Orgovyx 4 months ago and finished 39 IMRT Salvage radiation treatments 6 months ago. Just had a ultrasensitive PSA test...
Support Group: Prostate Cancer
Last active: Feb 11, 2025
Can a short term of taking Orgovyx cause leg pain and weight gain?
I have been on ADT Orgovyx just for four months and half but did not gain any weight while I was on the drug nor...
Support Group: Prostate Cancer
Last active: Jan 12 11:00am
Been on Orgovyx for four months. Should I stop taking finasteride?
Diagnosed with prostate cancer via a biopsy August 2024. Six cores were negative, one core Gleason 7, five cores Gleason 9. Negative for perineural invasion....
Support Group: Prostate Cancer
Last active: Feb 3, 2025
How long after stopping Orgovyx did you notice a difference?
I just got off Orgovyx . One of the benefits of Orgovyx is supposed to be quicker testosterone recovery. How long can I expect the...
Support Group: Prostate Cancer
Last active: Jan 18 6:08pm
How long were you on Orgovyx, Xtandi, Talzenna? Fatigue unbearable
How long do you normally stay on these three(orgovyx, xtandi,talzenna). I've been on a couple of months and my fatigue is almost unbearable. Anyone have...
Support Group: Prostate Cancer
Last active: Aug 6, 2025
Side effects of Orgovyx (relugolix): Anyone have stomach or GI issues?
I am experiencing stomach pain after takingOrgovxy for 10 daysAny suggestions?
Support Group: Prostate Cancer
Last active: Nov 18, 2025
How did your team restore low WBC and RBCs on Zytiga + Orgovyx?
Anyone else experience low WBC and low RBC on zytiga + Orgovyx? What did your medical team do to help restore WBC,RBC count to normal?...
Support Group: Prostate Cancer
Last active: Dec 15, 2025
T and PSA levels 6 month post SBRT and 1 month post Orgovyx
Prior to any treatment my PSA was 7.8 and my testosterone was 517. After 9 days of Orgovyx my testosterone was 27.17 At six months...
Support Group: Prostate Cancer
Last active: Oct 9, 2025
Was Gleason 7 (3+4): How soon can one get off ADT (Orgovyx or Lupron)?
I have just completed my 5th and last SBRT treatment today. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. My...
Support Group: Prostate Cancer
Last active: Apr 22, 2025
Painful nipples
After 6 years on Orgovyx and PET scans etc, my doctor decided to give me a “vacation” from Orgovyx. It’s been about 4 months clean...
Support Group: Prostate Cancer
Last active: Mar 23 7:42am
Puzzled by drug prices
Firmagon and Orgovyx would cost the same in Canada if I were uninsured (about US$240/month), but it looks like Orgovyx is 5× as expensive as...
Support Group: Prostate Cancer
Last active: Aug 27, 2024
options for radiation with enlarged Prostate
I'm 72, diagnosed in Dec 25 with Gleason 8, Decipher.29 enlarged 77ml prostate, PSA was 6.2. Single small tumor no involvment/ contained per PSMA. I...
Support Group: Prostate Cancer
Last active: 16 hours ago