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Prostate Cancer Support Group

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Discussions (156)
Looking for tips on managing Radiation-induced proctitis
Looking for tips from anyone who has experienced bowel incontinence caused by radiation induced proctitis. My husband was diagnosed with radiation induced proctitis 2 years...
Support Group: Prostate Cancer
Last active: Apr 5 11:07am
4 years post RARP no erection
4 years post RARP no erection.manually orgasm with extreme pain and loose bladder control(and get UTI).ED meds 100 mg just gives a headache.Still have stress...
Support Group: Prostate Cancer
Last active: 1 day ago
Pumpkinseed oil
Has anyone has any success with the use of pumpkinseed oil for incontinence or over active bladder. Thanks
Support Group: Prostate Cancer
Last active: Mar 20 6:19am
Anyone had a Peripheral Nerve Evaluation (PNE)?
Has anyone had the PNE procedure? After talking to my doctor my recent test has put a question in his mind whether I should do...
Support Group: Prostate Cancer
Last active: Mar 15 2:49pm
Requesting opinions on Pelvic Floor Trainers
Hello Everyone! Has anyone had experience with electronic pelvic floor trainers? It's all in the quest to strengthen the pelvic floor muscles to improve urinary...
Support Group: Prostate Cancer
Last active: 11 hours ago
Need fix for small uncontrolled bowl movements after radiation?
In April 2025 I had 28 days of radiation for prostate cancer which resulted in some continuing uncontrolled bowel incontinence. My doc said it would...
Support Group: Prostate Cancer
Last active: Mar 7 4:40pm
Husband's prostate cancer story
My 64 yr old husband was having urination frequency and enlarged prostrate. Visited the urologist for at least two years. His PSA was around 4,...
Support Group: Prostate Cancer
Last active: Sep 21, 2023
Anyone recently experience sudden diaper rash using "Shields"?
Bottom line question first, then the detail:Has anyone noticed a change in the "feel" of their incontinence "Shields", such that they are getting irritation and...
Support Group: Prostate Cancer
Last active: Mar 27 9:02pm
Pelvic Floor PT, post RARP. How many sessions?
I've read of many people having Pelvic Floor Training (aka PT) for incontinence either before or after prostatectomy. How many sessions did you have? More...
Support Group: Prostate Cancer
Last active: Feb 20 11:17am
RALP or SBRT for a 51 year old?
Hi guys,Sorry for the possible repeat in question here, but I feel like everyone has a different story, or maybe different extenuating circumstances. So with...
Support Group: Prostate Cancer
Last active: Jan 25 4:05pm
Considering Creating A Companion Cancer Site
After going through this journey there are some things that I found very helpful, especially here, but also some things that were lacking that could...
Support Group: Prostate Cancer
Last active: Feb 9, 2025
Artificial Urinary Sphincter (AUS)
I had successful prostate cancer surgery in 2002 at age 53. I am now 77 years old and for the past year or so I...
Support Group: Prostate Cancer
Last active: Mar 16 8:20pm
Diagnosed today w/ PCa. Seeking feedback w/ treatment I think I want
Well, have been learning from this support group for past 5 months since PSA test came back 11.7 then 5 months later 8.7. Today, biopsy...
Support Group: Prostate Cancer
Last active: 1 day ago
Artificial urinary sphincter - not a rave review
This thing was activated 2 days ago. Does it take getting used to? I've been reading how it takes 2 or 3 pumps to work...
Support Group: Prostate Cancer
Last active: Jul 28, 2025
I want to learn more about side effects of robotic prostatectomy
Hi all: I am 65 and have recently been diagnosed with prostate cancer. I am stage 2A with a Gleason score of 7 (3+4). The...
Support Group: Prostate Cancer
Last active: Feb 24 5:17pm
RARP vs RT plus ADT for Gleason 8 with cribiform and high Decipher
I’m new to prostate cancer, having been diagnosed in December 2025 with Gleason 8 (4+4) with cribiform architecture, stage T1c, PSA 4.7, and Decipher score...
Support Group: Prostate Cancer
Last active: Mar 25 5:58pm
Who saw Dr. Ram Pathak at Mayo Jacksonville for Tulsa Pro?
Discussed both removal and Tulsa Pro with Dr Ram Pathak at Mayo Jacksonville for my localized Gleason 3+4=7 cancer, PSA 4.5. Have been on AS...
Support Group: Prostate Cancer
Last active: 4 days ago
Sling, or artificial urinary sphincter?
I'm getting way ahead of myself here, but terrible incontinence (9 pads per day) after 10 weeks is getting me down. Given that I still...
Support Group: Prostate Cancer
Last active: Feb 3 1:06pm
Persistent urgency even after urinating, 3 months after prostatectomy
My prostatectomy was 3 months ago. My incontinence has been complicated by an unrelenting urgency to pee. Oddly, it's most acute right after emptying my...
Support Group: Prostate Cancer
Last active: 5 days ago
Devastated by support group meeting: I'm doing everything wrong
Just absolutely devastated last night during a PC support group meeting. I thought I'd share with the support group (via zoom) that my RP surgery...
Support Group: Prostate Cancer
Last active: 4 minutes ago