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Prostate Cancer Support Group

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Discussions (124)
TULSA-PRO Whole gland treatment: Erection recovery expectations?
I had TULSA-PRO whole gland treatment almost 5 weeks ago. The procedure was a success so far. I do not have incontinence issues at all...
Support Group: Prostate Cancer
Last active: Jun 2 4:41pm
Looking for exercise suggestions prior to robotic prostatectomy.
I hope I'm not re-asking a common question... I recently got my prostate biopsy results back and had a Gleason score of 6 (3/3). I...
Support Group: Prostate Cancer
Last active: Jun 6, 2023
RP yesterday at NYU Langone
Fellas: Just wanted to update you. 62 yrs ( my birthday today) G9. Don’t have pathology back yet. Surgeon said everything went well. Spent the...
Support Group: Prostate Cancer
Last active: Mar 28 10:10am
Breathing and kegel exercises
In preparation for an upcoming prostate surgery within weeks, I have pro-actively started kegel exercises to minmize the impact and duration of incontinence post-surgery. Different...
Support Group: Prostate Cancer
Last active: Aug 2 3:02pm
Question you wished you had asked before your Prostatectomy
I've made a list of questions to review with my Dr. regarding my upcoming Prostatectomy. I don't know what treatment they will want to do...
Support Group: Prostate Cancer
Last active: Mar 12 7:55am
Hill-walking/hiking after prostatectomy
Hi, had a radical prostectomy seven weeks ago, recovering really well, no incontinence, walking on the flat for a couple of hours causes no problems,...
Support Group: Prostate Cancer
Last active: Mar 17, 2024
Prostate cancer recurrence: RT advised concerned about quality of life
After 10 years my prostate cancer has come back. PSA went from 0 to 0.4(from 0.2 to 0.4 in last 6 months). PET/CT TEST was...
Support Group: Prostate Cancer
Last active: Feb 25 7:57pm
A different kind of scanner
I haven't posted here before in any meaningful way; but want to thank everyone for sharing their stories, and their knowledge, which I have found...
Support Group: Prostate Cancer
Last active: Sep 26 8:21am
Any experiences with Artificial Urinary Sphincter (AUS) or Sling?
Hello. Just wondering if anyone has a long-ish term experience with either the sling or AUS. I had a partial nerve sparing prostatectomy in 2018....
Support Group: Prostate Cancer
Last active: Sep 21 10:47am
RARP scheduled: what to expect for recovery & day-to-day life?
My RARP surgery is scheduled for early August at Mayo in Rochester. Wondering what to expect for a recovery. I know the incontinence and ED...
Support Group: Prostate Cancer
Last active: May 31 7:53am
Catheter Removal Day is World Cancer Day And So Far So Good!
Might be too soon to tell, but the catheter came out finally, and of course I felt like I needed to pee the whole way...
Support Group: Prostate Cancer
Last active: Feb 5 1:00pm
Questions about MRI report
I had an abnormal PSA for my age and so I was referred to an urolgist who did a digital rectal exam and didn't feel...
Support Group: Prostate Cancer
Last active: May 24, 2023
Supplies recommendations post prostatectomy
I was recently diagnosed with mid grade prostate cancer (Gleason 4+3). I was given option of either Proton Beam+Hormone treatment or nerve sparing prostatectomy. I’m...
Support Group: Prostate Cancer
Last active: Mar 13 11:38pm
How do you deal with your friends' ignorance about your condition?
I have been open and frank with my golf and pickleball buddies about my incontinence after my RALP of several months ago. They have come...
Support Group: Prostate Cancer
Last active: Mar 30, 2024
Pelvic Floor muscle training post-prostatectomy
I hate incontinence and have been spending some time researching treatmentone issue that has come up has to do with how many Kegels a day...
Support Group: Prostate Cancer
Last active: Apr 5 8:35am
Total Gland Ablation Experiences w' TULSA-PRO?
Greetings All, I'm seeking feedback on others' experiences w' PC who had total gland ablation via TULSA-PRO. Cured? ED? Incontinence? Complications? Other? My PC is...
Support Group: Prostate Cancer
Last active: Feb 7 11:41am
Prostatectomy vs Photon radiation vs Proton Beam Therapy
I’m 58. Gleason 7 (mix of 3-4 and 4-3) 9 out of 12 cores. Stage 2. Intermediate unfavorable. Scheduled to have Petscan and will ask...
Support Group: Prostate Cancer
Last active: Nov 15 4:18pm
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Support Group: Prostate Cancer
Last active: Apr 4 2:07pm
Finding the right dosage of Trimix
Since my RARP was non-nerve sparing, I'm permanently impotent. I've tried everything with no usable results, so now it's Trimix. I started at 0.1 ml...
Support Group: Prostate Cancer
Last active: Oct 11 7:03am
Apprehensive, and asking for your advice pre RP
Hello there, in the span of a week I have had a biopsy with positive PC results and scheduling of surgery 8 days from now...
Support Group: Prostate Cancer
Last active: Feb 14, 2024