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Prostate Cancer Support Group

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Discussions (97)
I need advice to help make a decision.......
Just to set the background: RARP on September 16. Cancer was intraductal and they found at least 1 lymph node with PC in it. My...
Support Group: Prostate Cancer
Last active: Dec 3, 2024
Salvage radiation aftermath
Can anyone share their experience with salvage radiation/ADT after what was told to me as a very successful DaVinci surgery? I’m a 71 year old....
Support Group: Prostate Cancer
Last active: Oct 6 8:12pm
4 Weeks on Orgovyx and PSA Undectable
My RARP was in early December 2024. Clean margins and prior PMSA/PET was negative , but I did have signs of PNI and EPE. First...
Support Group: Prostate Cancer
Last active: Jun 1 7:10am
New here! 4 months into my cancer journey.....
I have a Gleason score of 8(4+4). My PSA was 4-5 for several years then took off earlier this past spring to 16. PET scan...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?
Hi, My husband, who is 71 y/o, has recurrent prostate cancer, after 7 years of no treatment. He underwent a proctectomy 7 years ago and...
Support Group: Prostate Cancer
Last active: Apr 29, 2024
Starting TRT now.
I'm 75 now. My prostate was removed in 2021. The cancer spread to my T3 vertebrae. That was treated with radiation. I was put on...
Support Group: Prostate Cancer
Last active: Oct 4, 2024
Anyone stopped Orgovyx and started again if PSA rises?
Hello All:I am 78 year old man, active with exercise and golf. I had my prostate removed over three years ago. Using Viagra and Trimix...
Support Group: Prostate Cancer
Last active: Nov 24, 2024
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
Support Group: Prostate Cancer
Last active: Sep 8 6:15pm
Reversal of penile shortening after stopping Lupron
I am a 71 yo diagnosed with Gleason 9 PC in August2021. Had RP 10/21. Six months post op PSA rose to 0.37 and a...
Support Group: Prostate Cancer
Last active: Dec 1 10:48am
Parenteral Estrogen: an ADT alternative?
Here is a link where this question was examined: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4052190/ Key points I learned: -Oral estrogens were the treatment of choice for carcinoma of the...
Support Group: Prostate Cancer
Last active: Jan 16, 2024
Benefits of staying on hormone treatment past recommended 24 months
I was diagnosed eighteen months ago with locally advanced prostate cancer that metastasized to one regional lymph node. My cancer is considered highly aggressive, Gleason...
Support Group: Prostate Cancer
Last active: Jun 12 12:43pm
Depression and hormone therapy
I was diagnosed with stage IV PC (Gleason 4+5 =9) and started Lupron and Zitiga shortly thereafter. I had six weeks of radiation which I...
Support Group: Prostate Cancer
Last active: Nov 16 6:14pm
ADT/ ORGOVYX Day 45; Told Radiation Is Next
I was diagnosed with Sigmoid Colon Cancer 26 months ago. I had the resection. The colon cancer metastasized to my right lower lung, and 7...
Support Group: Prostate Cancer
Last active: Aug 18, 2024
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Jun 15 10:43am
Fifty shades of beige -how to deal with your chemically castrated mate
Let’s begin with a truth bomb that should come with its own trigger warning: once you’re chemically castrated, you don't "feel like less of a...
Support Group: Prostate Cancer
Last active: Jul 22 11:52am
Gleason 7 (4+3), ECE, PSA 3 – Considering IMRT + ADT vs. Surgery –
Hi everyone, I’ve recently been diagnosed with Gleason 4+3=7 prostate cancer, with extracapsular extension (ECE) and a PSA of 3 I'm 63 year of age....
Support Group: Prostate Cancer
Last active: Jul 31 1:03pm
For Newly Arrived Bros: A Day In The Life With ADT
Gentlemen, gather 'round. You’ve just joined the club. Not by choice, of course, nobody fills out a loyalty card for this one. No, you were...
Support Group: Prostate Cancer
Last active: Nov 7 11:14am
In the home stretch
I am down to my final 56 days of ADT (hopefully forever but we'll see) after finishing SBRT in June. I REALLY want to thank...
Support Group: Prostate Cancer
Last active: Sep 1, 2024
Fifteen Years of PCa Treatment Progress - and the next 15 Years
Fifteen years ago, a prostate cancer diagnosis came with two immediate options: radical prostatectomy or external beam radiation. Both were effective-ish, depending on the stage....
Support Group: Prostate Cancer
Last active: Apr 21 8:55pm
Are there withdrawl symptoms immediately after stopping Orgovyx?
Any of you experienced hot flushes, fatigue or other symptoms worse than prior to stopping Orgovyx?
Support Group: Prostate Cancer
Last active: Apr 4 9:43am