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Prostate Cancer Support Group

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My Story So Far - 53yo / PSA 130
Hi everyone. New to this forum and this club we are all in. Just before Christmas, my routine check up yielded a PSA of 130...
Support Group: Prostate Cancer
Last active: 2 days ago
Can anyone share their experience with ProACT (an AUS)?
My 71 year old husband had prostatectomy surgery in August 2023 followed by 6 weeks of radiation therapy which finished the end of January this...
Support Group: Prostate Cancer
Last active: Apr 15 7:07pm
Radical prostatectomy completed today.
My screenings before were 4+4 and 15 PSA. Removed prostate ( local malignant) and benign limp nodes. No damage to nerves. Catheter is a bit...
Support Group: Prostate Cancer
Last active: Jan 9, 2025
Recent PSMA PET does not detect cancer, what’s next?
I had a prostatectomy in May of 2016. Gleason of 7 = 4+3, psa of 10.5 . First post op psa was .01 and remained...
Support Group: Prostate Cancer
Last active: Apr 24, 2025
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
Biochemical Recurrence After Prostatectomy
https://www.nature.com/articles/s41391-022-00638-y I came across this article from U of Cal, San Francisco published this year. While I have not done a deep dive into it,...
Support Group: Prostate Cancer
Last active: Oct 30, 2024
Help-what treatment plan has anyone selected for Perineural invasion?
Age 74, diagnosed December 2024 with Gleason 4+4=8. PSA 2.001 June 2024, PSA 2.28 4K Score September 2024. October 2024, Prostate MRI PIRADS 4 High...
Support Group: Prostate Cancer
Last active: May 4, 2025
Additional radiation treatment for 2nd recurrence
My PSA was 5.53 and my Gleason score was 3+4 =7. I had a robotic prostatectomy in 2006. Went undetectable until 2013. I then Had...
Support Group: Prostate Cancer
Last active: Feb 6, 2024
Tiredness after radical prostatectomy
Curious if anyone has experience with tiredness after having a radical prostatectomy. I am about 3 months out from a RP and have my first...
Support Group: Prostate Cancer
Last active: Mar 5 10:22am
TULSA PRO Results at 3 plus years - Treated for High Grade Gleason 8
In February of 2023, I was diagnosed with prostate cancer. Of my 12 core biopsy, 5 came back with cancer. I had 1 Gleason 6,...
Support Group: Prostate Cancer
Last active: Apr 14 8:55pm
Good News on PET-Scan, time to consider next steps
I discussed my PET-Scan results with my Urologist (PA) yesterday. She said no measurable prostate cancer recurrence was found! The Report: No findings to suggest...
Support Group: Prostate Cancer
Last active: Sep 29, 2025
PC treatment: Prostatectomy or Proton Beam Therapy
67, very healthy and fit. No symptoms. PSA creeping up in last few tests, 5.6 in latest. In recent biopsy 11 of 12 cores positive....
Support Group: Prostate Cancer
Last active: Jan 22 11:40am
What is standard long term follow up to prostate cancer after surgery?
What type of long term follow up is suggested/required after having Prostate Cancer/Prostatectomy, other than PSA tests? As an example; to insure you have not...
Support Group: Prostate Cancer
Last active: Jan 28 4:55pm
SBRT versus IMRT for BCR after prostatectomy
I am 72 years old and had< .02 PSA for two years after my prostatectomy. My PSA went up to .05 then jumped to .15....
Support Group: Prostate Cancer
Last active: Jan 21 1:52pm
Advanced Prostate Cancer
I had prostatectomy in 2008. In October 2022, my PSA was 82.0. A second PSA test was 89.0. Then, I had a PSMA/PET Scan. This...
Support Group: Prostate Cancer
Last active: Jul 11, 2025
Hormone Levels after 90+ days Lupron
Background: @ age 62 Radical Prostatectomy May 2020. Post RP pathology report stated high risk, confirmed 4+3 Gleason, positive margins, Perineural invasion, as well as...
Support Group: Prostate Cancer
Last active: Jan 15 4:00pm
pT3b - what were your radiation outcomes after radical prostatectomy?
I would like to read comments from anyone who was categorized a pT3b after radical prostatectomy (RP), and had radiation after their PSA started to...
Support Group: Prostate Cancer
Last active: Aug 11, 2025
Radiation VS. Prostatectomy? Looking for advise on which best for me.
I'm looking for my best option. What others have had and effects of it. I realize everyone is different. Recently diagnosed current PSA 13.1 65yr...
Support Group: Prostate Cancer
Last active: Jun 20, 2023
Prostate cancer
Psa from 110 to 228 in 2 months. Pirads 6. Gleason score 8. Prostate 63cm. Cancer tumor 98.6 mm. Also EFE PNI SVI. Severs fatigue...
Support Group: Prostate Cancer
Last active: Sep 30, 2025
First PSA 1 month post-Proton Therapy higher than I would like
So, status update and gut check. I completed 5 sessions of high-dose Proton therapy at OU Stephenson on February 9. It took a few missed...
Support Group: Prostate Cancer
Last active: Mar 9 7:10pm