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Prostate Cancer Support Group

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Discussions (226)
PSA now .04. What might be next steps?
My husband has now been taking Orgovyx and Nubeqa for five months. His post-prostatectomy persistent PSA has dropped from 4.7 to .04. Before the medications...
Support Group: Prostate Cancer
Last active: Feb 20 7:11pm
Tiredness after radical prostatectomy
Curious if anyone has experience with tiredness after having a radical prostatectomy. I am about 3 months out from a RP and have my first...
Support Group: Prostate Cancer
Last active: Mar 5 10:22am
Good News on PET-Scan, time to consider next steps
I discussed my PET-Scan results with my Urologist (PA) yesterday. She said no measurable prostate cancer recurrence was found! The Report: No findings to suggest...
Support Group: Prostate Cancer
Last active: Sep 29, 2025
PC treatment: Prostatectomy or Proton Beam Therapy
67, very healthy and fit. No symptoms. PSA creeping up in last few tests, 5.6 in latest. In recent biopsy 11 of 12 cores positive....
Support Group: Prostate Cancer
Last active: Jan 22 11:40am
Biochemical Recurrence After Prostatectomy
https://www.nature.com/articles/s41391-022-00638-y I came across this article from U of Cal, San Francisco published this year. While I have not done a deep dive into it,...
Support Group: Prostate Cancer
Last active: Oct 30, 2024
SBRT versus IMRT for BCR after prostatectomy
I am 72 years old and had< .02 PSA for two years after my prostatectomy. My PSA went up to .05 then jumped to .15....
Support Group: Prostate Cancer
Last active: Jan 21 1:52pm
Additional radiation treatment for 2nd recurrence
My PSA was 5.53 and my Gleason score was 3+4 =7. I had a robotic prostatectomy in 2006. Went undetectable until 2013. I then Had...
Support Group: Prostate Cancer
Last active: Feb 6, 2024
Advanced Prostate Cancer
I had prostatectomy in 2008. In October 2022, my PSA was 82.0. A second PSA test was 89.0. Then, I had a PSMA/PET Scan. This...
Support Group: Prostate Cancer
Last active: Jul 11, 2025
Stage 4 prostate cancer for 7 years now
Hi, Can anybody have an opinion? I had a prostatectomy on 9/19/2015. My PSA began rising above 0.05, the target value, 14 months after the...
Support Group: Prostate Cancer
Last active: Jul 22 9:30am
Many years since radical prostectomy: PSA values rising
I had radical prostectomy 25 years ago and controlled years of the psa values. in the last four years those values have increased from 1.1...
Support Group: Prostate Cancer
Last active: Jul 1 9:58am
Prostate cancer
Psa from 110 to 228 in 2 months. Pirads 6. Gleason score 8. Prostate 63cm. Cancer tumor 98.6 mm. Also EFE PNI SVI. Severs fatigue...
Support Group: Prostate Cancer
Last active: Sep 30, 2025
Advice for further treatment
I’m sorry if I’m submitting this again. Internet interruption. So, I’ll try again. I would like your advice on further treatment. History Robotic assisted radical...
Support Group: Prostate Cancer
Last active: Aug 8, 2025
pT3b - what were your radiation outcomes after radical prostatectomy?
I would like to read comments from anyone who was categorized a pT3b after radical prostatectomy (RP), and had radiation after their PSA started to...
Support Group: Prostate Cancer
Last active: Aug 11, 2025
Worried about recurrence years after radical retropubic prostatectomy
I had RRP in 2008 at Johns Hopkins by Dr. Partin. I was 42. My post-op was Gleason 6 totally contained with no adverse pathological...
Support Group: Prostate Cancer
Last active: May 14 6:39am
Radiation VS. Prostatectomy? Looking for advise on which best for me.
I'm looking for my best option. What others have had and effects of it. I realize everyone is different. Recently diagnosed current PSA 13.1 65yr...
Support Group: Prostate Cancer
Last active: Jun 20, 2023
PSA is .4 ng/ mL 3 years after prostectomy
I had a prostectomy in Feb of 2021. PSA tests have been undetectable < .07 ng/mL) as recently as 7 months ago. Is a test...
Support Group: Prostate Cancer
Last active: Dec 30, 2024
Hormone Levels after 90+ days Lupron
Background: @ age 62 Radical Prostatectomy May 2020. Post RP pathology report stated high risk, confirmed 4+3 Gleason, positive margins, Perineural invasion, as well as...
Support Group: Prostate Cancer
Last active: Jan 15 4:00pm
Spinal osteoporosis after 10 months on ADT
I went on ADT (Lupron + Nubeqa) in September 2025, 9 months after my prostatectomy and subsequent rise in PSA. (I also had radiation therapy...
Support Group: Prostate Cancer
Last active: Jul 19 1:22pm
How to decide what next for ADT?
My husband had a prostatectomy in 2016 when PSA was 22. Gleason score 7 (4+3). Cancer was autopsied as mildly aggressive. Residual afterwards was PSA...
Support Group: Prostate Cancer
Last active: Aug 4, 2024
Surgeon appointment for Robotic Prostatectomy: Questions to ask?
Tomorrow I will have an appointment with a surgeon for possible robotic surgery (prostatectomy).59yrs oldGleason score 3+4=7One positive core 1.6cmAcinar adenocarcinomaPSA 6/12/23= 4.24PSA 12/12/23=5.13BPH on...
Support Group: Prostate Cancer
Last active: Jun 3, 2024