Connect
Public Support Group 1,410 total results
Discussions (112)
Urologist said I could stop Orgovyx. Your thoughts?
Age 73, in very good health. Diagnosed with Gleason 9, August 2024. Been taking Orgovyx since then, Not quite 20 months. Completed 28 sessions of...
What is radiated during radiation (SBRT) for prostate cancer?
I'm just looking at what others experience with radiation was. While I was getting radiated, I was thinking what they were zapping each day. Was...
ADT/ARI treatment - 1 month in
mCSPC - Gleason 9 (5+4) - lymph and bone metastasis. Treatment plan is ADT/ARI (Orgovyx/Nubequa) for 3-4 months then IMRT x 20. First blood work...
What does Capsular Invasion mean? What are the next treatment options?
I’m having recurrence after triplet treatment (Lupron and darolutamide, then Chemo, then IMRT) for Gleason 9 metastatic. Thirteen months of Lupron ended last February. Continuing...
radiation
So I started radiation today (9 Sept '25) 9 weeks -42 sessions.. It is photon ( IMRT and IGRT)... My approved providor-Urology Austin apparently does...
Rut Roh Rorge - PSA wrong direction
ADT / ARSI since June 2025 IMRT Oct 2025 PSA: 4/21/25 - 30.11 7/9/25 - 0.55 8/26/25 - 0.19 12/3/25 - 0.23 3/17/26 - 8.80...
Yippie Ki-Yay,…It’s Bell Day!
Well…I rang the bell at 10:48AM. IMRT to prostate x 20 @ 275gy - total 5500 Side effects - minor to moderate gastric discombobulation, some...
first PSA result post salvage RT — 0.086
Late last year I underwent 38 sessions of salvage IMRT for a local recurrence. At the start of radiation treatments, my PSA was 0.094 (ultra...
Anyone familiar with California Proton Center in San Diego
Does anyone have any experience with the California Proton Center in San Diego? It has a troubled financial history, I believe it had outside investors,...
PSA Pool - Anybody wanna play? 😊
How about a little fun. At 6:30 AM this morning, I had blood drawn for my first PSA test after completing 20 sessions of IMRT...
ADT and rising PSA
I could have added this to my previous discussions of “PSA Wrong Direction” but felt this is important enough for its own thread. A couple...
Learned Something New Last Week
While meeting with my NP 3 months post IMRT and HDR treatment for Gleeson 4 +3, PSA 7.1 I learned something new. When I asked...
Radiation & ADT no real problem. Kidney stone lithotripsy terrible
https://connect.mayoclinic.org/discussion/radiation-adt-no-real-problem-kidney-lithotripsy-terrible/
Diagnosed in August 2024 Gleason 9. Started Orgovyx immediately. Then 28 sessions of IMRT, finished April 2025. Colonoscopy January 2026, unremarkable. Latest PSA March 2026...
Die with one condition, live with other(s)
I received great news this week: after eighteen months of ADT treating my PSA 6.4, Gleason 7 (3+4, 4+3) PSMA PET three tumors in prostate...
When do testosterone & side effects improve after Orgovyx?
I completed 38 Sessions of Imrt for prostate reoccurrence 3 years after prostatectomy and completed 6 months of Orgovyx on June 18. My age is...
Has anyone else had tachycardia with Orgovyx?
Rapid heart rate started half way through IMRT. Had fever for 2 weeks before tachycardia. On orgovyx started 12 days before radiation. Got 20 treatments...
End of Radiation
Completed yesterday: 28 sessions (Rad Onc's advice) of EBRT/IMRT/VMAT on a Varian Truebeam CT-Linac with CTCB Image guidance, SpaceOar and tissue markers. Go Photons. Beam...
Rising PSA after SBRT - worrysome or to be expected?
Five years ago, I was diagnosed with Gleason-9 PC and had a prostatectomy. Shortly thereafter, I had a biochemical recurrence and had 39 IMRT treatments...
Best Prostate Cancer Treatment Options If You Have BPH Symptoms?
I've been on active surveillance for two years. I also have some BPH-like symptoms and take Flomax for it. I may need to get treatment...
Hot flashes 3 months after Eligard?
About 10 days before Christmas, I had a 4-month Eligard injection with 3 weeks of Casodex. I then had BT in February and 23 IMRT...
Connect