Connect
Public Support Group 9,129 total results
Discussions (628)
Doctor Referrals?
Hey everyone - this is very helpful online discussion board.My biopsy results came back in the "favorable intermediate-risk" range of 3+4 Gleason. MRI showed everything...
Little to no info from Dr prior to starting Proton 1-2 weeks out
Starting proton therapy next week after a 5 months of research, consultations and finally deciding on proton therapy for my 3+4 prostate cancer. I chose...
Labcorp uPSA 0.014 versus < 0.006 issue revisited
TL;DR version is: I got great news on this latest test--back down from 0.014 to < 0.006. And I am suspicious of LabCorp’s reporting standardizations...
Advice from the Trenches for New Members of this Cursed Club
So, you’ve just heard the words: prostate cancer. Welcome to the club no one wants to join — there’s no handshake, no jacket, and the...
Did you start radiation immediately or wait until PSA was 0.2 ng/ml
I am beginning to see that some gents out there started radiation therapy "immediately after" their RP, even before or with their first post-op PSA...
Typical Plan When Post RP PSA goes from < 0.02 to >= 0.02?
I moved out of state since my prostatectomy so for the 18 months following I just did ultrasensitive PSA tests every 3 months. Up to...
ProstoxUltra & Prostox CFRT both high risk-switch to RALP?
I had already started scheduling for SBRT and have a date for SpaceOar. Then I got the results of my ProstoxUltra and ProstoxCFRT back and...
A different kind of scanner
I haven't posted here before in any meaningful way; but want to thank everyone for sharing their stories, and their knowledge, which I have found...
PSA anxiety
Help Freaking out because I had 6 consecutive PSA results < 0.05 readings after restarting degarelix in July, 2024. Yesterday my result was 0.05 -...
Hormone Sensitive, Advance Prostate Cancer - Agressive Treatments
I am 69 and live in Portland, OR. I was diagnosed with a PSA of 25 in 2019 at age 63 and had surgery in...
Proton and Photon Radiation Information
There are several now speciality medical facilities that offer proton radiation treatments. These are centers with extensive experience, latest technology, and do first and second...
Any recommendations for specialist in incontinence post prostatectomy?
Three and half months out from RARP (Jan 15, 2025) closer to three if going from date catheter removed (Jan 29, 2025) . I have...
RARP Pathology II: Looking for direction
Ok. Quick summary is I was diagnosed this year with PC. May 12 had RARP. Post surgery doc (extremely well qualified DP surgeon and head...
What's your radiation therapy experience as a pT3b cancer patient?
At six-months post-RP, and despite having two consecutive post-op PSA test values of < 0.1 ng/ml, my status as a pT3b has seen my urologist...
Lung metastasis: Curiosities from VATS to BATS
“Metastasis to the lung is present in more than 40% of men with metastatic prostate cancer (3); however, lung metastases without any bone or lymph...
About to start treatment with Proton, question about ADT
I am a 55yr old, PSA was 7 in June 2024, sent to Urologist who immediately scheduled an MRI, followed by biopsy. He also did...
Acceptance of Prostate Cancer and its side effects
These discussions are mostly devoted to the nuts and bolts of prostate cancer diagnosis and treatment, and rightly so. Those discussions are immensely helpful to...
The Importance Of Sharing Experiences
I wanted to write about this because it was such a positive thing. Today I met a friend, who is also a customer of mine,...
RARP Pathology report questions
Hi Everyone, first off i would like to say how helpful and comforting this forum is and how much we appreciate everyones feedback sharing of...
What causes a hernia after prostatectomy?
Had prostatectomy now 2 years later I am having hernia surgery.Is there a cause and effect to this?Any one else have this issue?
Connect