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Prostate Cancer Support Group

Public Support Group
962 total results
Discussions (61)
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Anyone opted for radiation for localized high risk cancer under 55?
Has anyone opted for radiation therapy with localized high risk prostate cancer at a relatively young age? Say, before 55? Did you have recurrences?
Support Group: Prostate Cancer
Last active: Apr 8 8:19am
Advice from the Trenches for New Members of this Cursed Club
So, you’ve just heard the words: prostate cancer. Welcome to the club no one wants to join — there’s no handshake, no jacket, and the...
Support Group: Prostate Cancer
Last active: 5 days ago
Typical Plan When Post RP PSA goes from < 0.02 to >= 0.02?
I moved out of state since my prostatectomy so for the 18 months following I just did ultrasensitive PSA tests every 3 months. Up to...
Support Group: Prostate Cancer
Last active: Feb 18, 2024
Slowly rising PSA 5.8 years since removal!!
I had my products removed in July 2019. Been slowly rising and I had Clear margins, no SV or LN invasion, last PSA was 0.074...
Support Group: Prostate Cancer
Last active: Apr 2 7:42am
PET scan explanation, findings & personal conclusion
Background: Diagnosis of prostate cancer 2010. Gleason 3+3; PSA: 6.46 noted as slow growth cancer. Underwent proton radiation therapy at Loma Linda Hospital, a pioneer...
Support Group: Prostate Cancer
Last active: Feb 26 7:37am
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Jan 2 8:02pm
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
Wife: Stop Reading Those Forums
She has a valid point. As I stated in another post, forums are highly tilted platforms - I know, I've created and administered very many...
Support Group: Prostate Cancer
Last active: Dec 12, 2024
Stage 4 prostate cancer treatment options
I have recurring prostate cancer and it has found its way to 5 different bones, including my left shoulder and two ribs on my right...
Support Group: Prostate Cancer
Last active: Mar 25 3:36pm
Urinary Retention after Robotic assisted Prostatectomy
Is anyone experiencing recurring urinary retention and pain in the urethra post Robotic assisted nerve sparing Radical Prostatectomy? After my husbands initial surgery he was...
Support Group: Prostate Cancer
Last active: Nov 19, 2022
Tulsa Pro - share your experiences
I want to thank all for support on my recent prostate cancer treatment, Tulsa pro. I am very thankful to my wife and my daughter...
Support Group: Prostate Cancer
Last active: Mar 4 8:38am
Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?
Hi, My husband, who is 71 y/o, has recurrent prostate cancer, after 7 years of no treatment. He underwent a proctectomy 7 years ago and...
Support Group: Prostate Cancer
Last active: Apr 29, 2024
3rd time around. Now stage IVb: What are my treatment options?
In april of 2023 found that PC returned and has metastasized in pelvic area lymph nodes. In 2016 was diagnosed with PC gleason 4+4. Prostectomy...
Support Group: Prostate Cancer
Last active: Mar 23, 2024
Irradiated prostate and bladder bleeding: Dealing A0fib and cancer
I had both external beam brachytherapy for prostate cancer twenty years ago and am cancer free. I take Eliquis for congestive heart failure and for...
Support Group: Prostate Cancer
Last active: Jul 23, 2024
Waiting for onc to accept my referral; what's too long?
Healthcare and waiting seem synonymous. How long is too long in waiting for an oncologist to determine if he'll take me from a referring urologist?...
Support Group: Prostate Cancer
Last active: Apr 8, 2024
PSA Persistence after RP and Salvage Radiation
I have not seen much information on PSA Persistence post RRP and Salvage EBRT. I think most biochemical recurrences occur over an extended period of...
Support Group: Prostate Cancer
Last active: Dec 30, 2022
Improving Incontinence Post Therapy
This is an anecdotal personal experience/observation but it may be of help to some experiencing continued/increasing incontinence. I had a RP in 10/21. Prior to...
Support Group: Prostate Cancer
Last active: Apr 18, 2024
The arbitrary economics of life and death
It’s a peculiar thing, really—how life can be snuffed out in a school hallway for the price of a semi-automatic and a bad mood, yet...
Support Group: Prostate Cancer
Last active: 21 hours ago
PSA of 4.1 when never previously higher than 1.0
My apologies for asking such a basic question in a community in which so many are courageously dealing with significant challenges. But I’m filled with...
Support Group: Prostate Cancer
Last active: Jul 9, 2024