Support Groups

Prostate Cancer Support Group

Public Support Group
1,031 total results
Discussions (70)
Anyone received salvage lymph node removal for BCR after prostatectomy
After experiencing biochemical recurrence after robotic prostatectomy (4 years ago) current PSA 0.25 my social health care was scheduling me for 25 sessions RT with...
Support Group: Prostate Cancer
Last active: Apr 17, 2023
Prostate cancer AND bladder cancer - any others with both?
My husband has high grade bladder cancer in a diverticulum and also prostate cancer with Gleason score of 4+3 plus. TURBT surgery 3/14/23. Urologist has...
Support Group: Prostate Cancer
Last active: Aug 23, 2024
How long do the hot flashes last? Another 3 month Eligard shot today
Hello all. I have completed my 5 1/2 weeks of EBRT for intermediate risk prostate cancer and had first injection of Eligard 3 months ago....
Support Group: Prostate Cancer
Last active: Nov 30, 2024
What was your highest PSA and still have a clear PET/CT scan?
I just got the results from my most recent PET/CT scan; "There is no abnormal PSMA uptake to indicate recurrence or metastatic disease anywhere despite...
Support Group: Prostate Cancer
Last active: Jul 26, 2024
Prostate cancer-related abbreviations: What acronym would you add?
There are so many acronyms related to prostate cancer. When newly diagnosed these can be overwhelming and frustrating. As you become more familiar with the...
Support Group: Prostate Cancer
Last active: Nov 17, 2024
One year past prostatectomy, in waiting mode.
A year ago I had my prostatectomy- Gleason 8, age 71. Path report indicated ECE, but surgeon removed lymph nodes, seminal vesicles and bundled nerves....
Support Group: Prostate Cancer
Last active: Oct 14, 2024
BCR finding in PSMA test
Hi Everyone, I went for PSMA test and got my result. Could you please help me to understand? CLINICAL HISTORY: 53-year-old male post radical prostatectomy...
Support Group: Prostate Cancer
Last active: Jun 11, 2023
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Typical Plan When Post RP PSA goes from < 0.02 to >= 0.02?
I moved out of state since my prostatectomy so for the 18 months following I just did ultrasensitive PSA tests every 3 months. Up to...
Support Group: Prostate Cancer
Last active: Feb 18, 2024
Positive margins - Now what?
I got my post-prostatectomy pathology back today. While I did talk to a physician’s assistant, I won’t meet with my doctor until Monday. It seems...
Support Group: Prostate Cancer
Last active: Mar 20 10:36am
Anyone opted for radiation for localized high risk cancer under 55?
Has anyone opted for radiation therapy with localized high risk prostate cancer at a relatively young age? Say, before 55? Did you have recurrences?
Support Group: Prostate Cancer
Last active: Apr 8 8:19am
Advice from the Trenches for New Members of this Cursed Club
So, you’ve just heard the words: prostate cancer. Welcome to the club no one wants to join — there’s no handshake, no jacket, and the...
Support Group: Prostate Cancer
Last active: Apr 10 9:25am
Slowly rising PSA 5.8 years since removal!!
I had my products removed in July 2019. Been slowly rising and I had Clear margins, no SV or LN invasion, last PSA was 0.074...
Support Group: Prostate Cancer
Last active: Apr 2 7:42am
Wife: Stop Reading Those Forums
She has a valid point. As I stated in another post, forums are highly tilted platforms - I know, I've created and administered very many...
Support Group: Prostate Cancer
Last active: 1 day ago
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Jan 2 8:02pm
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
PET scan explanation, findings & personal conclusion
Background: Diagnosis of prostate cancer 2010. Gleason 3+3; PSA: 6.46 noted as slow growth cancer. Underwent proton radiation therapy at Loma Linda Hospital, a pioneer...
Support Group: Prostate Cancer
Last active: Feb 26 7:37am
Tulsa Pro - share your experiences
I want to thank all for support on my recent prostate cancer treatment, Tulsa pro. I am very thankful to my wife and my daughter...
Support Group: Prostate Cancer
Last active: 6 days ago
Proton, Photon, or Cryotherapy?
78 1/2 years old; 4/9 cores involved(adenocarcinoma); R mid gland transitional zone; 4+3 in one(40%); 3+4 in all three others(highest tumor involvement of those 70%);Stage...
Support Group: Prostate Cancer
Last active: 4 days ago
Urinary Retention after Robotic assisted Prostatectomy
Is anyone experiencing recurring urinary retention and pain in the urethra post Robotic assisted nerve sparing Radical Prostatectomy? After my husbands initial surgery he was...
Support Group: Prostate Cancer
Last active: Nov 19, 2022